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Hi everyone, Today marks my 4 year NASAH anniversary! March 28, 2015, just two days after my 40th birthday, I experienced 'the headache'. I knew something was wrong within minutes and had my first ambulance ride to our local hospital. They thought I had an aneurysm so they rushed me to the trauma hospital the next city over. A few hours later a neurologist told me I had blood on the brain. He never used the term SAH, NASAH or stroke, just blood on the brain. When I was discharged days later, I asked, what happened to me? What is this called so I know my medical history? I had never heard of SAH until it happened to me. I was off work for 2 months and it was absolutely the worst months of my life. I couldn't work, drive, read, watch TV, think straight, cough or sneeze. My body was just still. It was afraid of what a jolt might do. With family support, meditation and just taking things day by day, things did get better. Four years later, I'm doing well. I celebrated my 44th birthday a couple of days ago, no ambulance ride or ICU This is progress. I'm still scared it's going to happen again, I'm afraid the next time it may be worse. But I don't want to live in fear. I want to live each day the best I can. Whatever happens to me, will happen to me whether I worry about it or not, so I try not to overthink. My SAH is a mystery to this day. No cause determined. I suppose not everything in life has an explanation. Thank you to BTG. I do check in and read the articles, your stories and it's comforting to know we are not alone. Cheers from Burlington, Ontario - Canada! Alison
Hi, all. My name is Jade, & I am new to all this, so please bear with me if I'm not doing this correctly. So, here is the background of the situation that brings me here: Right now, my boyfriend & the love of my life (his name is Todd, & he is 45) is in the ICU at a hospital 2 1/2 hours away from me. He suffered an SAH on Sunday, April 10, in the evening, while he was in the shower. I did not know what had happened until the next day (Monday) evening, when I called him after work & he told me he felt very sick (had gotten awful headache, vomited, had neck pain, etc.), & had been sleeping on & off since it happened. I urged him to go to the urgent care center by him, & he said he was feeling better, but would call the doctor the next day (Tuesday). He did, & scheduled an appointment for Wednesday. Late afternoon Wednesday, he texted me to tell me the doctor thought he had meningitis, or a brain aneurysm. I figured, surely, if it were an aneurysm, he'd have been sent to the emergency room. He told me a CT scan was planned for Thursday, but that he wasn't sure what time it would be. I received a phone call & voicemail from him Thursday morning (I was still asleep), telling me he was in quarantine in the ER for meningitis. I immediately called him, & was able to speak with him briefly. Later that afternoon, a phone call from his mother informed me that he'd had an aneurysm, & was in surgery for a coiling procedure. I immediately broke down, of course. She called later Thursday evening to tell me his surgery had been successful, & that he'd woken up & was able to speak. I was overjoyed that he came through surgery successfully, & told her I would be headed to hospital to see him Friday after work. When I arrived Friday, he seemed to be doing well, considering he was only a day removed from surgery. He was talking, smiling, able to open his eyes, move his arms & legs, & only seemed groggy/sleepy. They let me stay with him past midnight, & he seemed to be doing well when I left. Saturday was much more difficult- the occupational therapist asked him questions, & he struggled greatly with remembering the answers, & also, w/ his words in general. They told us his blood pressure must be kept high, to avoid "vasospasming". When his lunch arrived, he ate every last bit of it, which delighted me to see he had an appetite. He then became very sleepy (to the point his mother & I could not wake him), although he did kiss me goodbye & say, "I love you", before I had to leave to head home. Yesterday (Sunday, so one week after his SAH occurred), his mother told me he seemed to be doing better, but that they were still concerned about the risk of vasospasming, & were trying to adjust his fluids, salts, etc. accordingly. I called the hospital this morning to learn from the nurses that he'd required a procedure for the vasospasms late last night, was on a ventilator, & would be having a second procedure this morning. When I asked his mother a few hours later how he seemed, she said he was very sleepy prior to the second procedure, & that they'd made him fully unconscious. She told me the doctor said they'd do the procedure (again, I'm still not exactly sure what it is they're doing) as many times as necessary to stop the vasospasms, but from what she gathered, the doctor was indicating that my boyfriend is still remaining very strong through all this. As someone who is geographically removed from her loved one during a terrifying event, I am asking anyone to please give me any advice/information you may have about this situation, based on your experience during your/your loved one's SAH & recovery. Is it normal for me to feel more afraid than I ever have over these vasospasms?? I was so thankful & filled with joy that he survived the SAH, seemed to be cogent afterward, & seemed to be doing well after his coiling procedure, but this vasospasming has me in a panicked, sobbing frenzy. I cannot stop scavenging the Internet trying to find evidence that vasospasming does not necessarily mean fatality or permanent impairment. Please, if you can, help me understand the impact of vasospasming, & share your positive outcomes with me- I'm really, really scared for my boyfriend. Thank you all for reading this, I know it was a lot.