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Found 2 results

  1. Hi, Im Gemma and I'd like to tell you my mother's story and ask some advice from anyone out there who can relate. my mum had her SAH 6 weeks ago (7/3/17) My mum is 50, very fit, non smoker. She found out she had an aneurysm 8 years ago, as it was small she was advised to just have it monitored each year and was told it wasn't at risk from rupture. She had a seizure and went into a comma 3 minutes after the headache and sickness started. Her SAH was graded as 5 (highest grade) as she was in a comma with GCS 3 on admission and did not regain any consciousness for 4 days. scan showed 2 aneurysms, the new one (de novo aneurysm) was the one which had ruptured. She was put on life support to see if swelling would go down in her brain and 24 hours post admission coiling of the aneurysm via angiogram was attempted but unsuccessful. Clipping of the two aneurysms were later successful via craniotomy. Mum was in a comma on full ventilation for 4 days. She came round and was able to move all limbs and respond to simple commands. However on day 8 she suffered serverly from vasospasm causing her to become unconscious (GCS 5) and loose movement in her left side, triple H method was not enough to control the spasms even with her BP being maintained at 220 systolic so she underwent a chemical angioplasty. The spasms continued in a milder form up to day 20 when she was finally weaned off of noradrenaline. She also suffered badly with hydrocephalus (excess CSF/ brain not absorbing CSF) so she had to have her EVD (drain) in place for 20 days after surgery, She spent 3 weeks in neuro critical care and a further week on a neuro ward. she was released home with a carer. amazingly my mum is up, walking, talking, with only a 2% left side weakness remaining. Her only symptoms are extreme tiredness and substantial loss of short term memory/ lost ability to process/ sequence in the way she use to and moderate confusion. she has amazed everyone. She has no memory of the 2 weeks prior to her SAH or anything about the ICU My questions are has anyone experienced anything similar? What was your cognitive recovery like? I am meant to be getting married in Cyprus in 4 months (5.5 months post SAH) from me in the UK it's a 4.5 hour flight and it will be very hot this time of year. Do you think there is a risk of rebleed or any other complication from the flight or heat? Thanks in advance Gemma
  2. Hey everyone ! It's been a week since I've been discharged from hospital after my Subarachnoid Haemorrhage. I was in hospital for 10 days and I would say the first 3/4 days I suffered from massive headaches because of my Subarachnoid Haemorrhage and fractured skull. I was very sensitive to light for the first 3/4 days as well but after the 4th day I was able to start walking about and quickly felt fine. Every doctor I talked to kept bringing up the fatigue I would feel throughout the day doing basic things but I haven't once since I've started doing my normal daily routine. For example going to Uni and relying on public transport as now I've been banned from driving because of the haemorrhage. My question is am I the only one ? Because after reading a lot of other people's recovery posts I can't relate to anything? Okay I had the headache for the first couple of days in hospital but haven't had one since ? I don't feel run down or remotely fatigued throughout the day, I feel like i did before all this happened. I guess I've been lucky but I'm just really interested to see if anyone else had/has been through the same.
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