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Hi all, Just need some advice. In November I experienced a sah due to a fall off my horse. I've been back to work 5 weeks only doing mornings. I'm still experiencing tiredness, dizzyness and headaches, has anyone experienced this still after and if so for how long? I've been signed off for another 6 weeks to rest but I live on my own and can't afford ssp for 6 weeks. Hope to hear from you and any help accepted. Love shazza x
Hi, Im Gemma and I'd like to tell you my mother's story and ask some advice from anyone out there who can relate. my mum had her SAH 6 weeks ago (7/3/17) My mum is 50, very fit, non smoker. She found out she had an aneurysm 8 years ago, as it was small she was advised to just have it monitored each year and was told it wasn't at risk from rupture. She had a seizure and went into a comma 3 minutes after the headache and sickness started. Her SAH was graded as 5 (highest grade) as she was in a comma with GCS 3 on admission and did not regain any consciousness for 4 days. scan showed 2 aneurysms, the new one (de novo aneurysm) was the one which had ruptured. She was put on life support to see if swelling would go down in her brain and 24 hours post admission coiling of the aneurysm via angiogram was attempted but unsuccessful. Clipping of the two aneurysms were later successful via craniotomy. Mum was in a comma on full ventilation for 4 days. She came round and was able to move all limbs and respond to simple commands. However on day 8 she suffered serverly from vasospasm causing her to become unconscious (GCS 5) and loose movement in her left side, triple H method was not enough to control the spasms even with her BP being maintained at 220 systolic so she underwent a chemical angioplasty. The spasms continued in a milder form up to day 20 when she was finally weaned off of noradrenaline. She also suffered badly with hydrocephalus (excess CSF/ brain not absorbing CSF) so she had to have her EVD (drain) in place for 20 days after surgery, She spent 3 weeks in neuro critical care and a further week on a neuro ward. she was released home with a carer. amazingly my mum is up, walking, talking, with only a 2% left side weakness remaining. Her only symptoms are extreme tiredness and substantial loss of short term memory/ lost ability to process/ sequence in the way she use to and moderate confusion. she has amazed everyone. She has no memory of the 2 weeks prior to her SAH or anything about the ICU My questions are has anyone experienced anything similar? What was your cognitive recovery like? I am meant to be getting married in Cyprus in 4 months (5.5 months post SAH) from me in the UK it's a 4.5 hour flight and it will be very hot this time of year. Do you think there is a risk of rebleed or any other complication from the flight or heat? Thanks in advance Gemma
There are countless posts on the forum about tiredness after SAH, going on for years in many cases. The medical advice seems to be that you just have to cope with this and it will reduce in time, but not necessarily to where you were before. There seems to be no medical interest in helping people deal with this, although I know many people have suggested ways of coping such as energy drinks, naps etc. The effectiveness of these varies between people. However I have been wondering if there is anything else that can be done? I noticed one post where someone mentioned their doctor prescribed ritilan, with some beneficial effects. I also saw a reference to Vinpocetine - which is not licensed as a medicine but is sold as a food supplement. -- quote from the Amazon website " It is shown to enhance cognitive performance and deals with short-term memory loss. It may also have a significant effect on the circulatory parameters including total cerebral blood flow. " There is a interesting Wikipedia article about it here There is also another interesting article on about.com here. I have not tried it, and AM CERTAINLY NOT recommending or even suggesting anyone should take it - but I would be interested in other people's views on this topic. I had my SAH 10 months ago, and went back to my part time job after 3 months. My tiredness improved steadily for the first 6 months but I feel it has leveled out since then, still a long way short of what I was like a year ago. No aneurism.