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Found 6 results

  1. Hi Everyone, Today I had an appointment with my Optician, my normal 2 year check up. For just over a week I have been having a problem with my left eye, the only way I can describe it is to say it has felt like i am looking through a very fine net curtain, probably sounds a bit odd, Anyway i mentioned it to him today, so he set about investigating what it could possibly be, his first conclusion was the start of a cataract, which he said at the moment didn't need to be dealt with. He then decided to look a little more closely at my eye, putting drops in, the drops didn't cling to what he thought was the cataract as it normally would, he was a little confused at this point, so out came another piece of equipment and another horrid bright light, which was very uncomfortable to my eye. He discovered at this point that it wasn't a cataract, infact it was a problem with my Cornea, he did give it a name, which i can't remember, but he did say what I have is very unusual, he has seen this problem at the front of the cornea, in his 37 years as an Optician he has never seen it at both the front and the back of the cornea. Anyway to cut a long story short, he will be advising my GP of this problem and to let them decide if I should be referred for further investigation. Apparently this is usually connected to trauma, such as substance being splashed in the eyes and can also be connected to SAH, that he said could be why it has affected both front and back, he can't be certain but because I haven't suffered any actual trauma to my eye from an accident, he feels that the damage was probably caused by the bleed. I did ask why had I suddenly got this net curtain feeling, he said it has probably been a gradual worsening, i also asked what should I expect to happen, he feels that an eye hospital will weigh up the advantages or disadvantages of doing anything, as I have sight in the eye, although a little blury they probably would leave well alone, as it's a complex operation to correct it, using a donor Cornea and the rejection levels are apparently very high, which would mean I would lose the sight in that eye altogether, not something I even want to think about. I have no pain in my eye, it is more of an annoying thing, keep wanting to rub my eye to get rid of it, i have learned to cope with other physical issues, i am sure I will learn to cope with this too. I will be monitored every 12 months instead of the usual 2 years, so that they can keep a check on it, any problems in between and he has told me go go straight back for a check up, so can't really ask for more than that. I just wish I could recall the name of the condition. Love Michelle xx
  2. I had SAH with coiling and EVD 11 weeks ago. How long before I should get a follow up appointment? My GP says I should have one as does my contact from the Stroke Association and someone at Headway. I still have back pain although it’s not as bad as it was. What’s worrying me more and more are the auras. They are getting more frequent around 3 times a week. My GP knows about them and says to ring for a follow up hospital appointment. I keep trying but all I get is an answerphone and I leave a message but no appointment materialises. At a bit of a loss to know what else to do. It’s like a brick wall. Does/did anyone else have frequent auras ?
  3. I’ve previously posted about developing blind spots in my vision. I’m 4 months post SAH. I’ve had tests at the rvi. Newcastle and they found eyes looked normal. I’m going back for electrode tests on 28th to see if optic nerve etc is functioning. I’ve got flashing lights and blurry vision as well as blind spots. Every day is a challenge for me. Im not coping with this at all. I spoke to a first response counsellor who is referring me to the acquired brain injury people for occupational and psychological help. Im ruminating constantly over not calling an ambulance when the bleed happened as it was 11 at night and I didn’t realise how serious it was so tried to sleep it off. I was walking around quite conscious the next day when I went to a&e and it all went wrong from there on. Not treated for a further 5 days! All I can think about is I was so lucky to have survived the bleed and to be conscious it must have been a small one and if I’d got treated straight away then like many survivors on here I’d still have my vision. I look at photos of my life this time last year and I just cry. I’m can’t see a future and how I can be the partner and mum that I once was. Where do you start when every day you struggle to get out of bed and everything you do or watch on tv reminds you that you can’t do that anymore because you can’t see properly to do it? Im 47 and waited so long to have my little girl now I just feel I’ve let her down. I was a hands on mum doing everything I had the best life working part time spending the rest of my week looking after everyone else. Now all I do is walk her to school when it’s light enough for me to see. And cuddle on the sofa watching tv. Im so sad all I want to do is stay in bed as that’s where I can remember how good life used to be.
  4. I have previously posted about having blind spots and blurry vision post sah. I feel like my life has just come to a stand still and I don’t know where I go from here. I find it difficult to go out due to where the blind spots are as I get disorientated.. I am waiting for neurology referral at rvi Newcastle but I guess they can only tell me what’s happened not provide a cure. I am torturing myself over not going to hospital the night it happened as I didn’t know how serious it was. All I can think about now is how different my recovery may have been if I’d been treated within 24 hrs.. Might I still have good vision? I’ve been reading that early treatment gives a better chance of a good recovery. This is eating me up inside. I am waiting for counselling but I feel I am the only one to blame for the situation I now find myself in. I also find it hard to sleep as my brain seems to tense up and stop me processing logical thoughts and when I think about something I could do before the vision loss it sends shock waves to wake me up. I guess this is probably trauma. But I also worry it is permanent damage. I don’t have my first mri check up until February. I’m a total mess mentally and physically. Everyone keeps saying stay positive it’s early days at just under 4 months. But Im finding it so hard.
  5. Hi everyone, I’ve previously posted about blind spots in my vision and change in perception. I’m really struggling right now! Last week my vision went blurry so on Monday I called the doctor. He advised me to go to a&e in case it indicated a change in the coiled aneurysm. After a night on a stretcher I was admitted and I had an angiogram which thankfully came back ok. I then had full opthalmic assessment and was told eyes are healthy. I’ve also had a bit of spotting of blood at the top of my nose which the consultant says it is unrelated. But it’s going to get investigated. So here I am day 3 in hospital hoping next stop is neurology. My vision has gone really blurry and it’s worrying me greatly. I dont recognise myself anymore. I’ve lost so much weight. My vision wearing my glasses is probably what it was before I used to put them on. This is so scary!! I worry it will get worse. I worry i have strained my eyes trying to adjust to the blind spots. Im lying in my hospital bed thinking how did I get here? Why am I still here? What use can I be to my family? The doctors are hoping to get some counselling for me. I am so low right now. I feel like I’m just existing and eating just to stay alive!
  6. Good morning everyone, In April my wife had an aneurysm and it was coiled. Since then she has experienced some sight issues in her left eye that shows up as a grainy area towards the nose side when she closes her right eye but this has become a side issue to what the scan showed up on Tuesday. Anyway..........some 7 weeks ago she had an MRI scan to see if all was okay with the coiling and last Tuesday she got an appointment with the neurologist at Walsgrave Hospital in Coventry which is where the operation took place to discuss the scan. The neurologist was there who we had spoken to before plus another who was sitting in on the meeting. After discussing the scan which showed the coiling to be intact they pointed out about five small white dots on the other side of the brain. They seemed to talk between themselves as though we were'nt in the room and one said I don't think it's signs of MS and the other shook his head but they said that it's a little early for these spots to show up. They asked her age (54) and if she has ever smoked. She said she hasn't but her family has a history of Cardio Vascular disease and her father died from a heart attack in his mid 40's. She is now on blood pressure tablets as of two months ago and her cholesterol levels were found to be borderline high when checked around the same time. She eats healthily and is not over weight. Now the neurologist has decided that another MRI scan should be done in 6 months instead of the 18 months initially discussed and that he is going to refer her to someone more specialised in this area. We are now thinking is six months too long to wait? Are the white spots vascular disesse realated, is it MS or a direct result of the aneurysm? I just wish MS hadn't been mentioned in front of us. He gave us the mortality statistics for the outcome of an aneurysm and basically said be thankful you're alive and with such little side effects. At the end of the meeting he just said have a nice Christmas as if his part of the job was done and now we're handing you over to someone else. We are very very grateteful for the surgery of course but this last meeting and the word MS has left my wife basically in a deep depression. My wife found this great forum in the first place and I have signed her up but she hasn't been ready to tell her story just yet. We have however both found the comments on here extremely helpful. We were elated after the surgery considering the possible outcome but things have now gone in a different direction. Thank you for reading this Ashley
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