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Hope you get some answers Jan. I too have tinnitus, doesn't affect me during the day too much but at night it's a constant buzzing? I never had this before my nasah & am now also prone to ear infections, blocked sinuses etc....it's got to be connected to bleed somehow. Xx

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Hi , I got my days mixed up, not for the first time!! My appointment isn't today it's on Thursday,?I'll let you know how it goes tomorrow ! , !

Lyn, mine is worse at night too

Jan xx

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Late into this post, I know!  I find so little time to even look here with everything else that goes on in life.

 

Whatever, I have had the wretched ringing in my head ever since my SAH.  I can cope with it a lot of the time - but not when extraneous noises exacerbate it from outside - power tools and, in particular petrol bush cutters, drive me mad.  We live in a village in Devon, which should be pretty peaceful.

 

Gardens are small so, honestly, people don't really need these.  But oh, these men get out in their little back gardens (with their ear muffs) and cut down pretty well nothing with the wretched things.  I can understand the need for cutting the longer things in the graveyard across the road but that's only once a month.  There are days and days in the summer when I feel marooned in my own house because of the continuing noise around.

 

But the worst thing is when it decides to move around in my head - I think they call it volatile tinnitus.  It can happen anytime and I cannot identify any trigger - it just waves in ringing through my head and I can do nothing other than sit down and let it pass.  It destroys my already dodgy balance.  

 

Overnight, I have dealt with it by plugging my ears into Radio 4 on a personal radio (the Shipping Forecast music is particularly helpful!) and, during the day, I use earplugs when it is all getting too much.  But they feel awfully grubby to me, those earplugs - all nasty when you put them in and even worse on taking them out.  I'm not using the wax ones - the sort of hard spongy ones - whichever, they are not nice to use. 

 

Crumbs - I'm not offering any solution - sorry 

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I know two people left with tinitis after a subarach who died of a brain haemmorhage later, I have tinitis too for 15 years from loud music (Sound engineer on tour with motorhead) you will get used to it, one of the upsides is it tells you when your blood pressure is up, in your case what you think is it moving about left to right is probably your anger at the loud noise raising your blood level and feeling it in your ears, get it checked and chill. 

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Hey

 

Suffered from tinnitus at some point in my life since I can remember.  No worse before the SAH to after it - only get it now when I've been in a loud environment, am tired or am coming down with a headcold.

 

Get it checked by GP if it's worrying you though x

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Tinitus, yup, especially when I am tired. I reckon 8 hours a day. When it 'switches' on sometimes it can be, let's say, unsubtle!

 

The Bells! The Bells! Hunchback of Notre Damme.... lol.

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On 8/5/2011 at 15:31, SarahLou said:

Hi,

I was wondering if anyone has started suffering from tinnitus since they've had SAH?

I've never had this before but started to get it 6 months after my operation.

I've seen an ENT specialist,my hearing test was fine and he said he was sure the tinnitus had been caused by the brain trauma.

 

However, when I saw the neuro consultant a few days later he said no, the tinnitus wasn't caused by my op if it had been I would have had it since when the op was done. No one can tell me if it will be permanent. At neuro they checked all over my head and neck pressures,all ok.

 

I see ENT again in sept.Gp has given me sleeping pills,but I know I can't stay on them for long.I don't sleep too great even with the meds. The tinnitus drives me insane, to cope with that on top of everything else at times brings me to my knees in tears.

 

Wondered if anyone else suffers with this too since SAH??

SarahLou Xx

Hi Sarah my wife had a SAH and since op she is suffering with tinnitus and our surgeon said the same thing but it was not there before the op

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I got hearing aids that can create “white noise”. I can adjust it depending on how bad the tinnitus is at the time. It doesn’t cure it or even cover it 100% . But it does seem to help. 

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On 05/08/2011 at 15:31, SarahLou said:

Hi,

I was wondering if anyone has started suffering from tinnitus since they've had SAH?

I've never had this before but started to get it 6 months after my operation.

I've seen an ENT specialist,my hearing test was fine and he said he was sure the tinnitus had been caused by the brain trauma.

 

However, when I saw the neuro consultant a few days later he said no, the tinnitus wasn't caused by my op if it had been I would have had it since when the op was done. No one can tell me if it will be permanent. At neuro they checked all over my head and neck pressures,all ok.

 

I see ENT again in sept.Gp has given me sleeping pills,but I know I can't stay on them for long.I don't sleep too great even with the meds. The tinnitus drives me insane, to cope with that on top of everything else at times brings me to my knees in tears.

 

Wondered if anyone else suffers with this too since SAH??

SarahLou Xx

 

Yes utterly soul destroying tinnitus.....began early after and now nearly unbearable x

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I have had tinnitus since the SAH ... I'm 15 years post recovery this year, but it does get better or perhaps you just learn to live with it?...I don't have the answer. 

 

I still get what I call "white noise" ... normally when I'm feeling tired and I've done too much ....  but it does get better.x

 

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Hello Mark ... so sorry you are sufferinging from severe tinnitus.

 

This may be entirely coincidence, however Mrs Subs began using a hearing aid and and noticed a significant improvement.

 

Hope you do get some relief soon.

 

 

Subs

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A neighbour of mine is having a course of acupuncture, he says it works for a while then comes back. I have three pitches in my Tinnitus, but I can still hear a pin drop. It gets worse i am sure when my blood pressure is higher, I do not bother about it at all.

 

I do not reference my sub arac from 1998 as something I am in recovery from, it was what it was and after the angiogram revealed no berries I knew it was not life threatening any more.

 

I tell people as a matter of interest but it does not worry me at all. I say this because I want you to live a worry free life. It’s short enough without being scared of it.

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Thankfully I've not suffered with tinnitus, but I can imagine it must be very annoying.  

 

I have however read up on the condition recently and apparently it is quite common amongst the population. It appears to me to affect a lot of people after having had a subarachnoid haemorrhage.   There is more than one type of tinnitus and apparently, according to what I've read, tinnitus is rarely an indication of a serious disorder.

 

However, I have recently discovered what one of these rare and serious disorders is, having been diagnosed with a Dural anteriovenous fistula.

I do not have any symptoms, but when I asked my consultant what symptoms I should be looking out for, he replied Pulsatile tinnitus. (There are other symptoms caused by a davf, but that was the only one he mentioned to me)

 

I would stress that most cases of tinnitus will not be a symptom of a davf.  A GP should be able to say whether tinnitus is pulsatile or not and if he/she thinks it requires further investigation.

 

The following is a very brief insight into a davf:-

The dural arteries bring high pressure oxygen-rich blood to the brain and the dural veins take the oxygen-depleted (deoxygenated) low pressure blood back to the heart. A DAVF causes the high-pressure arterial blood to enter into the veins or sinuses that normally handle low-pressure blood returning to the heart. This can result in ruptures leading to bleeding and brain hemorrhage as well as other neurological issues.

 

 

Sarah

 

 

 

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I too suffer with tinnitus have a loss of hearing (only slight) in one ear but I just ignore it sometimes I get a sudden noise (like my ear as gone under water) then it makes a long sound like derrrrrrr but I am used to it now so don't really think about it anymore 

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HI.

I had a NASH in Nov 2019 where I was admitted to a neuro department for angiograms and tests and started on the medication nopodamine where I had a severe skin reaction to the drug. The ct scan did not show a bleed on the brain and it was picked up by a lumber puncture. I had all the symptoms of a subarachnoid hemmorage.

 

Whilst in hospital I had all kinds of problems with spots in eyes blurry zones in eyes and insomnia and once starting to get to sleep and what seem like someone knocking my head woke me up.I was very weak but very lucky as some had severe disabilities and I was lucky to keep the use of my arms and legs.

 

Now six months later I suffer with black spots in my eyes blurring vision and pulsating tinnitus which comes and goes and fatigue.Feels like you are going to bleed again and can be quite daunting.

 

Its seems that my Doctors don't really understand what goes on in recovery and is hard to pin down where the problem is coming from. I cant understand how they cant tell where the bleed came from as there were no burst anuerysms they did mention it could seal itself up. They said it was an non anuerysm subarachnoid hemorrhage.

 

During the angiograms when injecting dye I had pain in my right ear which was the side of where I felt the pulsating and the severe pain when the bleed happened

 

I had a femoral and radial catheter inserted for the procedures after the radial  test I developed a clot in my arm which they said they couldn't do anything for it. I've got to admit the fatigue the headaches and all the smell anxiety and funny sensations where horrendous for about 4 months.

 

I have again been left with pulsating tinnitus and eye spots and blurring and also problems with words.

 

Can anyone shed light on if this is permanent and should I be having further scans as no bleed point was identified? It just seems to me they are not interested.

 

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Hi Mat Y,

Welcome to BTG as we call it, so sorry that you suffered SAH without them being able to give you a reason, sadly there are a lot of members here who had NASAH andi am sure some of them will come along and share their own experiences with you which may help to put your mind at ease a little.

 

I suffered SAH 2014 mine was an Aneurysm, then in 2015 I was diagnosed with Tinnitus and still suffer with it, sometimes I don't notice it but during this lockdown it has been a constant white noise, not sure if it's stress or just that things are a lot quieter than normal so I am noticing it more than usual. I do have times when I am not aware of it, I do however think you learn to live with it as time goes on.

 

You mention fatigue, this is normal it is one of the side effects of SAH, listen to your body, if you feel tired try to rest, your brain has a tendency to let you know when you are over doing things, another bit of advice is to make sure you drink lots of water as dehydration can also contribute to fatigue, it's still early days in your recovery so try to take things easy.

It does get better as time goes on and you will start to notice things improving, I had a problem with finding words early on in my recovery and it did get better, I only have problems now with that if I have over done things or I am tired.

 

Anyway I am sure you will have a few replies to your post and I wish you well as you go on with your recovery journey.

Take care

Love

Michelle xx 

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