goldfish.girl Posted April 27, 2012 Author Share Posted April 27, 2012 Hi David, please do. I worry about posting threads like this though as the last thing I want to do is scare people who have recently had SAH. The first year sees so much improvement in every aspect and the NS did say that 'for some people' the fatigue does not get better. I don't want to put anyone off trying to reach their full post brain injury potential by asking for information from others who are a few years down the line. But, I do occasionally STILL have questions that I hope other members can answer or confirm that I am not mad because I, personally, didn't get as much better as I thought I would. Michelle xx Quote Link to comment Share on other sites More sharing options...
goldfish.girl Posted April 27, 2012 Author Share Posted April 27, 2012 Hi Momo, My SAH was July 2008 & I joined BTG nearly 2 years later in April 2010, looking at your join date you must've been nearly 2 years after before you joined too? Scotland must be lacking badly on after care! I know you (and many others) are still working though. I did go back to my job for 2 years before I was medically retired. I am struggling a lot with knowing that my previous admin work wasn't possible for me and am now I'm looking at trying something more practical but the physical fatigue is stopping that too. Apologies for making personal replies to comments on this thread, the replies are aimed at anyone reading the thread, it just helps me to concentrate dealing with comments one at a time and I know this is a moderators nightmare - sorry. Michelle x Quote Link to comment Share on other sites More sharing options...
janicegrewe Posted April 27, 2012 Share Posted April 27, 2012 hi all, I just had an appt. with my primary care dr. cause i felt like i was living in a fog,no motivation even though i knew what i had to do ,i just did not,any way there wer a lot of issues,no joy in what i once loved to do,a little bit of guilt for surviving this event ,so i felt i should be doning more,well she said i had "post trumatic brain injury syndrome",so she put me on some more meds to help the nuerons connect,like connecting the dots, well what a difference!!i feel almost normal!she said it will take 2-3 weeks for it to work correctly!so i am one happy camper!jan grewe Quote Link to comment Share on other sites More sharing options...
MaryB Posted April 28, 2012 Share Posted April 28, 2012 (edited) http://www.ncbi.nlm.nih.gov/pubmed/21207050 http://www.ncbi.nlm.nih.gov/pubmed/9766304 I am too tired to comment on this. LOL:crazy: Edited April 28, 2012 by MaryB Quote Link to comment Share on other sites More sharing options...
MaryB Posted April 28, 2012 Share Posted April 28, 2012 http://www.ncbi.nlm.nih.gov/pubmed/21207050http://www.ncbi.nlm.nih.gov/pubmed/9766304 I am too tired to comment on this. LOL:crazy: http://books.google.com/books?id=8N1ACp5FEqQC&pg=PA30&lpg=PA30&dq=SAH+fatigue&source=bl&ots=vu8kXDYlQD&sig=qsblCpBzORVaSqosiR1XbO-ejSQ&hl=en&sa=X&ei=5zSbT_ORNoWC8QSj7vD7Dg&ved=0CEkQ6AEwBQ#v=onepage&q=SAH%20fatigue&f=false I am not sure how I got into this book but it is very interesting Quote Link to comment Share on other sites More sharing options...
Sandi K Posted April 28, 2012 Share Posted April 28, 2012 Wow Mary, good Internet sleuthing! I'm too tired read the info right now but skimmed over the parts in the book about fatigue and will go back and read in more detail. Thank you for sharing. Time for sleep now. Sandi K. Quote Link to comment Share on other sites More sharing options...
goldfish.girl Posted April 28, 2012 Author Share Posted April 28, 2012 I think I should print off the extract from the book - that's exactly the kind of thing I was looking for. Thank you Mary! Michelle xx Quote Link to comment Share on other sites More sharing options...
MaryB Posted April 28, 2012 Share Posted April 28, 2012 Thank you Ladies. Funny how things come up sometimes in your seach adn other times nothing! Quote Link to comment Share on other sites More sharing options...
Sandi K Posted June 13, 2012 Share Posted June 13, 2012 Hi everyone, I visited my GP yesterday and went over the results from all the tests I've had done. Only one thing lacking, vitamin D. Everything else is great, cholesterol, etc, other vitamin levels, hormones, liver, kidneys, all good. I don't think Vit D deficiency causes fatigue but GP says its possible. We talked and I explained that a few minutes into brain games my weirdo symptoms come back. We agreed I need to rest longer so I go back in a month and in the meantme carry on with what I'm doing. My GP doesn't doubt that I have fatigue but because she's never had a NASAH patient before she doesn't know what to expect. I think she's surprised that I seem so 'with it' but start to get the headache and sore legs and blurry vision as soon as we start discussing something that requires my concentration. It's been said here before, some of us have fatigue from our SAH. I'm kind of sad we didn't find some other reason that could have perhaps been easily fixed but now that I've been tested I know I'm otherwise healthy but still recovering from the brain bleed. Sandi K. Quote Link to comment Share on other sites More sharing options...
MaryB Posted June 13, 2012 Share Posted June 13, 2012 Vitamin D does cause fatigue but it is probably not all the reason for yours! SOrry, Did they check B vitamin levels or hormones? Just wondering. Mary Quote Link to comment Share on other sites More sharing options...
Sandi K Posted June 13, 2012 Share Posted June 13, 2012 Hi Mary, I'll be over the moon if Vit D supplements take away my fatigue but somehow I don't think I'll be so lucky! My vitamin B levels and hormones are good. Sandi K. Quote Link to comment Share on other sites More sharing options...
goldfish.girl Posted June 14, 2012 Author Share Posted June 14, 2012 Hi Sandi, I am waiting to hear from my NS who has contacted a medical rehabilitation Dr about my on-going fatigue. I am hoping there may be some way of reducing it, although I am not keen to take any more medication. I will let you know if she comes up with any advice or answers. Michelle xx Quote Link to comment Share on other sites More sharing options...
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