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julianc

Introduction from a newbie SAH survivor from the UK

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Good for you Julian,

 

Glad you have kept in touch as it gives us hope that we can do it xx

 

Never overdo it and keep in touch, and remember the smile xx   

 

Regards

Win xxxx

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Thank you Win.  Rest assured that the nerdy part helps the absent minded part so I have a recurring calendar entry for the anniversary of the NASAH.  That way I will be reminded to be grateful and to share my progress with those who really understand what this is like.  Speaking of smiles, I am investing some time, effort and cash into bringing it to peak performance and whiteness.  Shades are advised.

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Hello again everyone, back again around the anniversary of my NASAH, Non aneurysmal (Perimesencephalic) subarachnoid haemorrhage.  Mostly good, practically 100%.

 

The heightened sensitivity to high pitch noises persists but far less than before.
Fewer and fewer headaches or warning of them.
Stress is definitely a factor, for sure.

Hope everyone else's journey carries on bringing more and more positive things.

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Hello Julian, and many thanks for getting in touch four years post your bleed.

Great to hear that you continue to do well.

Best wishes for you and your family .

 

 

Subs

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Hi Julian 

 

Happy NASAH Anniversary :)

Great to hear all mostly good, practically 100%

Wishing you well with your on going recovery.

 

Take care

Tina xx

 

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Hello Julian loved reading your posts.  My husband is now 13 months post PASAH and doing well although we recently went to the pictures again and he said that the loudness bright lights triggered headache and also fatigue.  Therefore I’ve read your posts out to him and he realises that he also has been a very luck man also.  

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Dear All

Thank you for taking the time to respond to my updates.  I honestly thought that they would just be a long term, sparse journal for me to look back on and remember my journey.  I am delighted that some of you have found them useful.  I am honoured.  Honestly.

 

Thought I would add a very recent incident that occurred and provided a clear example of how some noises (at least in my case) can be a trigger even for us 'lucky ones'.

It was at my youngest's birthday party.  20 or so children in a school hall, with an adjoining hall where a gymnastics team had set up some apparatus to entertain and exercise the children.  I set up tables, set the tables, served food, made tea and coffee, entertained some children, cuddled my babies (they are 6 and 8 but still my babies), sorted out a connectivity issue to allow music streaming to a loaned Alexa device, all extremely good, lets party!!!

UNTIL LUNCHTIME!

 

When they sat down to eat each of the children found a foil blowout in their lunchbox.  Foil blowout is the term for those raspberry blowing things that unfurl as you blow through them, curl back again when you stop, repeat as desired. The upshot was that a couple of dozen children honking on these things sent my brain into a minor meltdown.

I didn't fall over or pass out, but my mood definitely changed for the worse.  I was no longer happy, I was edgy, my mind was a bit clouded and I no longer found it at all a happy occasion.  Nonetheless it was subtle and not particularly debilitating, I tidied up, packed away tables, swept the floor, but I was just desiring for it to all end.  When I got home, I did a couple of pc based work, then after an hour, got into bed and went to sleep... 4pm.

NOTE TO ALL POST NASAH SELFS...  BEWARE FOIL BLOWOUTS AND OTHER NOISEMAKERS AND ALWAYS ALWAYS HAVE EARBUDS OR EARPLUGS WITH YOU... ALWAYS.

NO Foil blowout.jpg

EARBUDS.jpg

EARPLUGS.jpg

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Makes note never get around children and foil hooty tooties /blowouts :~  Julians advice. 

 

Bet the kids loved them but poor you..Still it could have been worse I could have sung a song lol. 

 

Good to hear from you Julian and apart from the blow outs all is well with you xx hasn't that year passed quickly !!!

 

Keep them coming and letting us know how life is treating you after what You/We went through xxxx

 

Good to hear from you again xxxx  Keep em coming  xxxxxx

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Congratulations Julian!  Glad you are progressing, still on 'the long and winding road.'

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I know exactly how that must have been Julian - terrible. I always avoid place with loud noises now, babies crying is another big no no for me, luckily I haven't any grandchildren yet!

 

Glad to hear you are well.

 

Clare xx

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Guess who is celebrating their birthday with a dinner out and finds themselves with crying babies on 2 sides!!!

 

2019, starting strong.

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Julian hope you had a great Birthday and the crying babies didn't ruin your dinner out :rolleyes: hope you had your ear plugs ! .... stay strong ;) xx

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Julian, I had a similar experience at a baby shower I was at last week...not from the noise ... seemed to be with all the motion (people walking back and forth) and when I began helping to clean up (also walking back and forth)...I was very overwhelmed and feeling mixed up (an old feeling I thought I had left behind)...but I sat and regained my sense of stillness...

 

I think ear plugs are a good thing to have in my bag...I guess we keep on learning how our new brain works...Sounds like you are making great progress Julian...babies to hug...so wonderful, mine are all grown, I miss it..

 

Win you always make me smile, would love to hear you sing :)

 

Jean

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Trust me Jean you'd need earplugs like Julian needed  lol 

 

Think I sound good,  then hubs says give it a rest Win ha ha  that is when I realise  the zzzz and buzzing I get stops me from hearing myself lol xxxx

 

Better go to Docs about hearing  xxxx  Be well Swishy Jean XXXX

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