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I am very fortunate that my husband has been continually with me since my coiling at the end of August. I am now beginning a slow return to work - again I'm fortunate that I work from home and can minimise any travel for the time being. Previously I would be travelling most weeks (flying as I live on an island). Clearly travelling now with work is a more difficult as I'm not driving but I do have a concern with travelling (flying in particular) and being away from people who know my heath history.

 

I have a partially coiled aneurysm and a second aneurysm that's being monitored. I feel like I need a bracelet or a card in my wallet to say I've got aneurysms and if I keel over please deliver me to the nearest neuro unit! :-) Maybe it's overkill but has anyone else felt like this?

 

Thanks

Andrea

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Hi Andrea.

Not unusual at all . I have a key ring on my front door keys with a medical ID symbol and engraved on the back of it states I have acquired hydrocephalus, my hospital number and also SAH and the date. I Also have a summary card I created in my notebook that stays in my handbag which summarises my treatments for SAH, my ' other' anneurism , my shunt settings and key contacts personally and medically and last but not least I carry a Hydrocephalus alert card in my purse.

I think even if I didn't have a shunt I would have wanted to keep some form of record with me when I started going further from home. It helped my confidence initially to know I had something with me and also as my kids were young I wanted to be able to convey history without relying on them should the situation ever arise. I have used the card of my history a number of times at hospital and when meeting new registrars at check ups etc and actually having a simple condensed version of facts helps get across the key information so maybe try something like that.

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Andrea

 

You can get them online I think, someone here will know.

 

I'd need a breakfast menu around my shoulders lol, to say what I had wrong, like a billboard. j/k

 

I have nothing on me I will look into it also, you can get stroke bangles online.

 

Hope you find one you like xx

 

Love

Win xx xx 

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Andrea,

I know the shine charity does a hydrocheplus card, also there is medic alert who do a pendent or bracelet which can and does hold the relevant information. I think they are all online so easy to get hold of,  good luck in your recovery.

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Hello Andrea,

For many years I've worn a Medic Alert bracelet, had all my SAH information added when I had that 5 yrs ago.

It gives me great peace of mind knowing that all my medical details are there should they be needed.

You also get a wallet card containing further information on any conditions, ICE numbers, GP details, hospital numbers etc.

When ever I've contacted them (needed new info added quite a lot over the years!) they've always been very helpful, no issues at all.

Please look them up online, might be an idea for you to look further into.

Take care,

SarahLou Xx

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I live 1700 miles away from my family so the only sane way to visit is to fly. The first trips I took after the SAH were nerve wracking, plus I worried about being away from my brilliant health care team if something happened. It has become much better with time and repeated trips, but there's still that little bit of trepidation. I think carrying the medical info is a good idea. I do carry a letter that says the clips in my brain are titanium (can still do MRI).

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Hi there

 

I felt like that too many years ago.

 

Firstly you can get a card from Headway I have it in my purse it's just like a bank card same size.

 

Secondly I also have an SOS chain when you unscrew it, it has all my information in it, for me both thing made going out just that little bit easier...

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Hi Andrea,

 

I also wear a medical alert bracelet which details my heart condition, SAH and hydrocephalus. I also have a medical card in my purse with more details on it including my specialist's information and the fact I have an untreated aneurysm and shunt.

 

I don't think it is overkill at all - I know it makes my husband more comfortable about me going out and about and is also reassuring for me as well. Unfortunately you never know what might happen and if something does and you are unable to communicate it will be useful for people to have that information.

 

Gemma

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Hi

I had a SAH (3 aneurysms) at the end of August 2015. I am petrified of going out too far alone, and so, just 10 minutes ago, looked at information on MedicAlert bracelets! It is SO reassuring to know that I am not the only one with these type of concerns!

Claudette

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When I came home from hospital I thought it was necessary to wear a (velcro) bracelet which carries basic ID and medical info on it. I also brought a bright pink one for my daughter (just turned 6) to wear when we go out together. I think it is not just reassuring but also common sense (Ebay sells many different types, Amazon to, many of which are also waterproof.

 

Chin up, you're not alone. Completely understand and empathise. Try to put your mind into the future, make plans, live your life (take it easy all the same !), let the past be the past.

Big hug,

Sammy Anne

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  • 1 month later...

For many years I've worn a Medic Alert bracelet, had all my SAH information added when I had that 5 yrs ago.

It gives me great peace of mind knowing that all my medical details are there should they be needed.

You also get a wallet card containing further information on any conditions, ICE numbers, GP details, hospital numbers etc.

SarahLou Xx

 

I do too, and when I'm home I wear a medical alert necklace that I can press and alert emergency care if needed.  

 

Susan :)

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