Super Mario Posted October 28, 2016 Share Posted October 28, 2016 Luke, if your mum's preference is coffee try to get her to have the decaffeinated which will be better for her. To be cruel to be kind try not to have anything like crisps or chocolate in the house. Bread, although not ideal in vast quantities, is the better option. If it is her sense of taste that has gone awry and causing her to only want certain things normal may return in time. As to her weight, as time passes and she improves that problem may well resolve itself. 1 Quote Link to comment Share on other sites More sharing options...
luke Posted October 28, 2016 Author Share Posted October 28, 2016 I do think that her taste has changed a bit. She seems more into certain foods. Also, I have noticed she says foods are often salty when they taste normal to me. Well the chocolate is down to the last bag, so I won't get any more after this. May be treat her once a week or something if she asks. Quote Link to comment Share on other sites More sharing options...
Winb143 Posted October 28, 2016 Share Posted October 28, 2016 Hi Luke, I missed my 40th Anniversary due to SAH and I remember my hubby got a big box of chocs. Well the weight I put on was nobody's business ! After my SAH I developed a craving for sweet things and I knew I was over eating, but I was like a kid in a sweet shop and after I was told what happened to me the more I ate. Think it is a comfort thing but I am not happy with my size, always been plump but this is ridiculous !! my aim is to be a 16 !! When people told me no more, I knew they were helping me but I used to sulk . After I had my shunt put in I decided to do something about it. Still I diet and come off it same day. I cannot walk that far so that doesn't help Do you hire yourself out as my Daughter isn't as good a cleaner as you sound. Anyway hope all goes well with Mum and meal. Love Win xxxxxxx Shhh hide this up in case my Daughter see's it lol xxx 3 Quote Link to comment Share on other sites More sharing options...
luke Posted October 28, 2016 Author Share Posted October 28, 2016 3 hours ago, Winb143 said: Do you hire yourself out as my Daughter isn't as good a cleaner as you sound. Anyway hope all goes well with Mum and meal. Love Win xxxxxxx Shhh hide this up in case my Daughter see's it lol xxx Hahaha I wouldn't say good. Time stops when I have to clean! 4 Quote Link to comment Share on other sites More sharing options...
Karen Posted October 28, 2016 Share Posted October 28, 2016 Luke, I used to have a sweet tooth before the SAH ... afterwards, I couldn't stand anything sweet, so I'm the opposite of your Mum. Even toothpaste made me gag and it would set my teeth on edge. Then I tried the more natural toothpastes with bicarbonate of soda that were salty and that did the same! It's still on a learning curve, even this many years on ... it's trial and error to be honest. I know of a few members who've had their "taste" senses altered after the SAH, so I can only presume that it's a bit of damage to the brain. I also know of someone who completely lost their sense of taste and another who said that everything, apart from mashed potato tasted of sewerage! However, I now feel (and I'm 11 years on) that my sweet tooth has partially returned and I'm learning to enjoy the odd bar of chocolate and slice of cake, but I can also say no to it ... it depends on how my energy levels are now ... but the short term craving of chocolate isn't always good when your energy is low .... The odd square/s of plain/dark chocolate is probably the better option ... it helps to improve your mood ... you will have to look it up! Have you tried your Mum with something like Flapjack? It has oats in it and the sweetness that she perhaps craves, but it releases energy slowly, rather than having energy spikes with refined sugar.... it's lovely! x 5 Quote Link to comment Share on other sites More sharing options...
Louise Posted October 28, 2016 Share Posted October 28, 2016 With Karen there, I lost my sweet tooth with the SAH - but will eat chocolate but don't crave it so one good thing came from my SAH I guess. Its also good as a booster especially if your out in the early days when we came out of the supermarket I always got a small bag of buttons just enough in that pack to give me the boost I needed... 2 Quote Link to comment Share on other sites More sharing options...
luke Posted October 31, 2016 Author Share Posted October 31, 2016 On 28/10/2016 at 14:26, Karen said: Have you tried your Mum with something like Flapjack? It has oats in it and the sweetness that she perhaps craves, but it releases energy slowly, rather than having energy spikes with refined sugar.... it's lovely! x She is pretty much on a see food diet at the moment. If an advert comes on the TV she wants it! So if I mention flapjack I'm sure she will be up for trying it! 4 Quote Link to comment Share on other sites More sharing options...
Winb143 Posted October 31, 2016 Share Posted October 31, 2016 Put some fresh fruit on them for her Luke xxxxx and cream on mine with chocolate lol xxx Keep smiling Win xxxx Quote Link to comment Share on other sites More sharing options...
luke Posted November 5, 2016 Author Share Posted November 5, 2016 Mum underwent a third coiling operation yesterday evening. They found that the aneurysm had grown rapidly after an angiogram on Thursday. The surgeon was not confident she could even go home for a few weeks. I'm happy they have moved quickly this time, but this coiling won't be a permanent solution. She has a rare type they called a giant aneurysm which keeps on growing irrespective of the coiling. It is in a place that makes other operations more difficult. The surgeon is going to go out & reach out to the community of neurosurgeons for advice as its such a rare case, with the idea she comes back in for another operation in a few months time. At the same time my Dad's heart isn't doing too well. He says it feels like heart failure again & when he says that you know it's not good as he never complains. He is undergoing an angiogram on the 23rd which will clarify the problem. 1 Quote Link to comment Share on other sites More sharing options...
Skippy Posted November 5, 2016 Share Posted November 5, 2016 Luke, really feel for you - you're definitely going through the mill as much as your parents are. Hopefully there'll be someone to help your Mum's condition and they can sort it and I have everything crossed that your Dad's angiogram shows everything is OK. It's a hard time for you all but try to get Dad to relax as much as he can when he can. 4 Quote Link to comment Share on other sites More sharing options...
kempse Posted November 5, 2016 Share Posted November 5, 2016 Luke, I'm sorry to read you are going through so much with your parents' health at the moment. Im glad yesterdays coiling is now done and I'm sure her neurosurgeon reaching out to others in this field will help. There are some amazingly knowledgeable and skillful neurosurgeons out there, so I'm sure they will be able help in this situation and give their best advice. Likewise, for your Dad, the heart specialists are brilliant too. I'm still in awe of what they did with my husband's heart last year - I wish him well with his angiogram on 23rd. Best wishes, Sarah 4 Quote Link to comment Share on other sites More sharing options...
Macca Posted November 5, 2016 Share Posted November 5, 2016 Hi Luke, I really hope things work out ok for you and your family. You really seem to be going through a tough time. Fingers and toes crossed for you. Try and stay as positive as you can. Your parents couldn't wish for better support than what you are currently giving and I am sure they are immensely proud of you. If you need to let off steam then come on here, we're all here when you want us. Macca 4 Quote Link to comment Share on other sites More sharing options...
Winb143 Posted November 5, 2016 Share Posted November 5, 2016 Hi Luke, Keep strong for Mum and now Dad xx Make sure you rest up also and no stress (easier said) for any of you xx When times get rough come on here and let it out, I hope all goes well with Mum and Dad. Speak soon and wishing you All Well xx Win xx 3 Quote Link to comment Share on other sites More sharing options...
Tina Posted November 5, 2016 Share Posted November 5, 2016 Hi Luke Sending loads of positive vibes your way and hope things work out well for your Mum and Dad. You are such a wonderful supportive Son, take care of yourself too. Thought are with you and as the others have said we are always here for you. Take care Tina xx 4 Quote Link to comment Share on other sites More sharing options...
subzero Posted November 5, 2016 Share Posted November 5, 2016 Hello Luke....so sorry to hear your news about your mum. You can be assured that she will receive the best attention and staying in hospital does mean prompt attention should she require it. Also hoping your dad is ok during this very stressful time for all of you. Take care and make sure you look after yourself over the next few weeks. Rest well, eat well and talk about your feelings with friends and here on BTG Subs 3 Quote Link to comment Share on other sites More sharing options...
Sharlua Posted November 6, 2016 Share Posted November 6, 2016 Sorry to hear this Luke, an awful lot to cope with! Sending thoughts and lots of hope that Dad and Mum get better health soon, hoping they do find some expertise out there. Take care Sharon x 2 Quote Link to comment Share on other sites More sharing options...
luke Posted November 12, 2016 Author Share Posted November 12, 2016 Thanks guys for all the kind words. I think what I now need to do is really plan how the future is going to work for us. My Mum & Dad don't really have the energy to do much anymore, so I'm going to need to step up for my family & take on pretty much everything. I know I can do it. I'm just going to stay positive everything turns out alright, It always does in the end. 1 Quote Link to comment Share on other sites More sharing options...
Winb143 Posted November 12, 2016 Share Posted November 12, 2016 Good job your Parents have you Luke xx I have lost some weight by just having a square of dark chocolate, and I know this sounds silly but I buy the real dark choc as I don't like it so much. I have a choc mousse with one strawberry in it and it stops my craving (mini pots). Hope Mum is feeling better and wishing you all Well xx Win x Quote Link to comment Share on other sites More sharing options...
Skippy Posted November 12, 2016 Share Posted November 12, 2016 Bless you Luke. Hard time for you hun, but we're all here for you and support in anyway we can xx Quote Link to comment Share on other sites More sharing options...
Karen Posted November 12, 2016 Share Posted November 12, 2016 Hi Luke, So sorry to hear your news .... I'm just hoping that you've contacted Social Services/or you've been offered the additional help that you need? x Quote Link to comment Share on other sites More sharing options...
Louise Posted November 17, 2016 Share Posted November 17, 2016 Hey Luke Hope all's going ok, and yes I hope you've contacted Social Services & or., Please don't take on everything although that is noble you'll burn out and be no used to anyone sorry I'm blunt but have seen it with my family... wishing you all well. Quote Link to comment Share on other sites More sharing options...
LauraNW Posted January 24, 2017 Share Posted January 24, 2017 Hi Luke, A little late to the conversation but I just wanted to say that it sounds that you are doing so well for your Mum and Dad. My Dad had a Grade 5 with hydrocephalus, vasospasm and confabulation back in May 2015. Like you, I saw my Dad every day for the first 7 months of recovery, so I thought it might help to just share a few of the things I experienced. The confabulation became increasingly better over time, for Dad it was exacerbated because he was struggling to control his sodium levels post SAH, so that may be something to get checked out. You're doing the right thing with the chalk board and small tasks, it made me smile reading that part as I remember all the prompts that we would go through! Dad's energy levels slowly extended over time and now he is back to 6-7 mile walks and generally only very occasional bouts of 'sudden' tiredness. Once he got in to writing the diary he found it very useful, reading back over what he did the day before and seeing what was planned for the next day too; again he uses it very little now. And the final thing is eating, Dad has always been a very healthy eater with home grown veggies etc, but after coming out of hospital (about 5 months after SAH) he ate 'junky' food all the time, almost half a loaf of bread with jam most days!! That too evened out over time, and whilst he has a sweeter tooth than he used to his appetite for fruit and veg has returned. They say carbs are brain food, so it may just be your Mum's body taking the driving seat - I certainly think this was the case for Dad. Although having said that, if you're in the UK the website My Protein has a LOAD of low fat, low sugar, high protein dessert things, I eat them and they really are quite passable! And the actual final, final thing is - look after yourself too. I know me and my Mum did all of it on our own, and I will always be glad that we did, but take time to go to the cinema or out for a cake/coffee or whatever it is that makes you feel like you. I really do wish you and your family the best Luke, if you have any questions please just reply on here or send me a message! 1 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.