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My Darling Linda


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It's great to hear that fantastic news Paul, I'm so pleased for you both.

I hope Lin enjoys looking through all her new clothes!

Much love and big hugs to you both.

Take care,

SarahLou Xx

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Paul   So glad you liked the hamper - Karen really wanted to do something special for you and we were all for it.  You've continually offered so much support to others on here despite your d

Paul, it was sent with much love from BTG, for all that you do for Lin and for all of the support that you give to others on BTG .... and thank you for being you. x

my dearest friends   after yet another hard day with lin which I will go into later because when I got back to the flat there was a fairly large box outside the door addressed to me  

  • 5 weeks later...

hi everyone

 

im back lin has settled well and is looking a lot brighter lin saw the neurologist last Thursday and had her top up of Botox which has relaxed her arm quite a lot.

 

the consultant is recommending that the flat be put back in to improve lins balance and to help her lift and hold her head up and for the shunt to be readjusted as it seems that it is over draining and she is also of the opinion that lins immune system has failed so lin is being referred to an immunologist to top up her system which will enable lin to fight any infection so a lot to take in

 

and a little bit of a worry but if it helps lin then im happy  bye for now xx paul   

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  • 1 year later...

It's wonderful to be able to tell you all, that Linda is finally going to rehab!   :) 

 

When Linda was in hospital having the second plate removed due to infection, the Neurosurgeon would not release her until she was seen by a Professor Neurologist and he got quite a lot of positive reaction from Linda and then asked for a smart assessment to be carried out.

 

It's taken Paul 8 years to get Lin's medical team to see what he has seen in Linda .... he's shocked, but extremely happy that Lin's finally getting the treatment that she deserves. I believe that she will be at the rehab centre for approximately 4 months.

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Seen Paul help others on here including my Sarah alias Bessie when I was out of it.

 

Glad all seems to be going forward for Paul and Linda xx

Good luck you two and keep going forward

 

Best Wishes

 

Winb143 xx xx

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  • 1 month later...

Hi everyone

 

I'm so sorry for the long delay in updating you all one reason has been legal and the other has been that lin has gone through the mill yet again.

 

In November last year lin had another plate inserted but it went sour within four days the plate or the instruments they used during surgery were infected with a bacteria that grows on sterile instruments leaving poor lin with yet another infection which was a very bad infection and a life threatening bug.

 

The surgeon removed it in January but the infection took a lot longer to clear up resulting in a prolonged stay at two hospitals due to lack of specialised beds. however during the stay lin was seen by a neurologist who gave lin a work out and he referred lin for rehab as young Karen informed you.

 

Lin is in rehab  and has been for nearly three months they are using neuro stimulants to wake lins brain up and things are moving along slowly and apart from sticking her tongue out when asked making me dumb struck I had never thought of asking lin to stick her tongue out  it really floored me.

 

Until Friday last week when I was sitting with her and saw her right arm lift off the bed by two inch's I thought I was seeing things until today when lin did it again when the phyiso was in the room the phyiso asked her to lift her arm up lin complied bringing her right arm up level with her shoulder.

 

Lin did this four times it had me jumping up and down like an idiot lol because lin had never ever moved that arm in eight years it has always been rigid and stiff so another shock and proof something is working apart from her brain or the fact that lin is beginning to reconnect her limbs.

 

Also lin was asked if she wanted a cuddle the phyiso's sat her on the side of the bed and I went between her legs and put my arms around her lin lifted her right arm onto my shoulder and boy did she get vocal pulling me into her lin did the same three weeks ago without the arm movement .

 

To me sometimes I cant get the right words out and find it difficult to express how I feel I but I have learnt to cry with happiness because of something I had been praying for and after such a long time receive a loving cuddle from someone who means so much to me and asking her to move her right arm to hold my hand which lin did with no help from me   magic !!!!!!!!

 

I will try and update more often please forgive me for the long delay  hugs and cuddles from lin and me xxxx   

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That's just amazing and so wonderful Paul - you have every reason to be emotional - who could blame you!

 

It would be great if you are able to update us - we're all rooting for you both. :)

 

Love, Sarah

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Ahh Paul, this is such amazing news, I can not put into words how pleased I am. I'm crying as I type this.

God bless you both, you're in my thoughts and prayers.

 

Take care, much love and hugs to you both.

 

SarahLou Xx

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Such good news and sounds like excellent progress- such fighting spirit and sure your support, love and dedication has been a tremendous help.

 

Fingers and toes crossed that this is the turning point.

 

Regards

 

Sharon x

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bless you all

 

and thank you for all the support you have given lin and me  it has kept me sane and the support has lifted me so many times I cant thank you enough.

 

today was another good day lins hand moved to mine when I rested it on her lap it meant a lot and made my hackles stand up not felt like that for years.

 

im tired so just a short note tonight hugs and cuddles from lin and me xxx Sami its always nice to know we can cheer you up a bit and thank you hugs and cuddles xxxx Paul

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  • 2 weeks later...

hi everyone

 

well another brilliant day today, lin has done things which have shocked and surprised me the phyiso's and o/t gave lin a workout lin acted on requests to lift her right arm and move it to touch her hand in increasing lengths away from the body,

 

even bring her hand across her body and opening her hand to take the o/t's hand and squeezing it closed when lin had her hand  even I got asked to sit alongside lin and cuddle her lin moved her head slightly towards me got very vocal and when asked if she wanted a kiss lin went into overdrive and as I lent forwards to give her a kiss lin moved her head towards my face and puckered up for the kiss lin was even able to sit straight without anyone supporting her. Magic

 

another smashing day which I cant express fully but just to say it made me a very happy bunny and also a very tearful puppy with happiness and the knowledge that lin is doing what she can to requests im just hoping that one day lin will do movements on her own with out prompting .

 

we have got out into the garden and the look on her face as the sun and breeze hit her was magical lin did like the sun the phyiso's and o/t want me to be more involved in stimulating lin above what I have been doing since the start and are working to get extra funding to get lin more phyiso and stimulation when we go back .

 

they are checking that the drug she is on will be carried on when we leave or until the plate is replaced but that is up to the surgeon so we are back to waiting but in all honesty I think the more lin is able to do the more reason for the plate to go back in because lin really comes on when its in place .

 

that's all for now all out love hugs and cuddles to you all from lin and me

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