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Jimble

Epilepsy after Sub Arrach - anyone suffer from seizures

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I'm 6 years after my first bleed - 2 years after my 2nd. But 2 weeks before my 2nd bleed i had a strange attack a rushing sensation. Just being diagnosed (2 years on!!) that these attacks are more than likely a form of seizures. Just wondered if anyone else had any side effects like this after a bleed and how they coped. thanks

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Jimble, I had a siezure while in the emergency room, and another when I was transitioning from iv meds to oral. I was weaned off siezure meds in the first 6 months after release from hospital. No problems since then 

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Hi Jimble, I have had a number of strange sensations but one that does feel like a rushing or wave from my head to the bottom of my spine.   I have been to the doctor about them but don't see my neurologist until Jan and GP just say see him. I thought they were a form of seizure but everything I read said not and will not know until Jan. I am on Gabapentin for the head pain and strange stuff so wonder if that's suppressing things somewhat. 

 

What do yours feel like? 

 

I read previously that you have had two. I don't know how you stay sane. Sorry to hear you are now dealing with this hopefully diagnosis will make life easier. 

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Hi Jimble,

My epilepsy started at 14  puberty years I hoped against hope that they'd one day slow down. 

 

Just got my AED drugs to slow epilepsy down at the age of mid 55's and 9 years approx later I had a SAH and back they came with a vengeance !!

 

I had another seizure, so told my Epilepsy Specialist about it and told him "It was like one I have never had before"  

He decided to put me on more Keppra which I couldn't take,  so he tried me on another AED and been on it since Feb 2018 and not had a seizure since then and not even had the shakes ..Touch wood".  Had another small bleed that caused the bad seizure. 

 

Good luck on getting drugs sorted out, Wishing you all the best with getting them sorted 

Regards

WinB143 alas Win Remember I had them from 14 not when I had SAH, hopefully yours will go who can say  xxxx

 

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