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Hi All

 

It's great to have found this site which has so much helpful information  I had quite a few unanswered questions since leaving hospital which have been addressed by reading people's experiencess.  Thank you to all who have took the time to post them. 

 

I experienced a perimesencephalic subarachnoid heamorrhage 3 weeks ago whilst cycling to work, initial symptoms were a rapid on-set headache and  neck pain that became worse as the day went on with vomiting.  A CT scan within A&E detected a bleed the following day so i was subsequently admitted and had an angiogram 2 days later and commenced a 3 weeks course of  Nemodipine.  Previous to the bleed I was fit and active 43 year old, cycled most days, non smoker, eat healthily etc. 

 

Since leaving hospital ive had a few minor health problems; acute pain in my glutes and lower right leg which has now resolved; severe throat infection; Tinitus in my left ear and mild pain radiating down from the top of my head in to my left ear.  My main concern at present is that food taste's strange and have a permant salty taste in the back of my throat which initially began as a foul bitter taste.  From what I can gather a few people have experienced this which may improve in time? My sense of smell has also been affected.  In context to what other people have endured I feel lucky not to have experienced any major physical impairment.

 

My hopes for the future are to get back to cycling asap as I have a mountain biking holiday planned abroad in November which was booked last year. If this is safe and whether I'll be fit enough is questionable?  So far I've been on a 8km walk and a gentle 20 min swim which wasn't particularly challenging.  On discharge from hospital medics advised waiting 4 to 5 weeks before recommencing strenuous exercise. They also provided me with a 6 week sick note but the thought of going back to work in a coup,e of weeks feels a bit premature so may need to get that extended by my GP

 

I wish everyone well on their road to recovery.  

 

 

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Hi Ben,

 

Welcome to BTG as we call it, 

So sorry to hear that you suffered SAH, you will find a wealth of information here and we are all a big friendly bunch of people, it is also a nice feeling to know you are not alone after such an event.

 

We are not allowed to give medical advice as non of us are qualified to do so, we can however share with you information about our own experiences.

 

It is still early days for recovery wise that is, try not to push yourself to hard, make sure you get plenty of rest and stay well hydrated, staying well hydrated really can help with the headaches, 

 

There are a few members who are runners and into keeping fit, I'm sure they will come along and share their own experiences with you, although we always say make sure you take advice from the people who are treating you before doing any exercise.

 

The recovery road can be a bit bumpy at times, fatigue is one of the side effects, listen to your body and your brain and if you are tired, try to rest, as both your body and your brain have suffered this trauma and they both need time to recover.

 

Anyway try to be kind to yourself, I wish you continued improvement as you go along with your recovery journey.

 

You can also pop into the Green Room where there is lots of daily banter, you have come to a great place for help and support and you will make a lot of friends as you go along,  look forward to hearing more from you.

Love

Michelle xx 

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All what Michelle has put Ben and hope you feel a bit better soon ..Slowly does it and keep well watered/drink plenty of water  xxx

 

Scary stuff but when you can talk to others about good days and bad days it is getting it off chest ..

 

I have come on here all doom and gloom and left smiling .  Do not get too stressed as that is bad for us,  so sing, do anything to keep yourself happy.

 

Good luck on recovery and remember it is early days so listen to your body  xxxx

 

Take care of you !! 

Win

 

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Hi Ben

 

warm welcome to the site, glad that you found us.

 

don't worry they will extend your sick line its still very early days for you, take things easy rest lots and keep hydrated, slow and easy does it.

 

take care

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Hi Ben,

So glad you found us.  You will be the one who knows if you are ready to go back to work.  Having a bleed is so different for each of us, we all have a different time line.  I went back to work before my Dr. thought I should, turns out he was right but after a couple of iffy months I was okay and still working.  I am quite a bit older than you 66, 64 when I had my bleed.  

Even though you feel lucky for not having any major impairments when there are things not working the same as they did before in our bodies it is worrisome.  You are early in your recovery, our brains are an amazing organ and will keep healing.  

I wish you well as you continue to recover and get back to your bike :)

Jean

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I was a similar age to you when I had my bleed (I was 39).

 

My advice would be:

- Drink lots and lots of water

- Have a lie down or nap, even for just 1/2 hr, every evening - does wonders to just give your brain a little rest for a while.

 

I had a whole year of this and still do it when stress levels are high

- Take it easy with work. I had 3 months off and then 3 months building back up to full time.

 

I'd recommend either Fridays off to give you a long weekend or Wednesdays. Wednesdays I found particularly helpful so that I was only working 2 days at a time

- Build up your own confidence regarding exercise. Whilst I can't prove it, I'm sure strenuous in the days leading up to my bleed had some effect. But that's my own thoughts.

 

I built up slowly, maybe only managing 5 mins walking at first (I was afraid to go out of sight of the house). I have found swimming to be an excellent, low impact exercise. I've recently gone on my bike for the first time, managing ~18 miles. Wonderful to have that freedom again (with a helmet of course!!).

 

I wish you all the best in your recovery.

Andrea

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