Louise Posted August 21, 2009 Share Posted August 21, 2009 Hi Besie not much more I can add that others havent said.... I have a shunt in my brain and a tube too that helps the shunt along sometimes, I produce too many vitamns so my shunt/tube is always working..... take care Louise.xx Quote Link to comment Share on other sites More sharing options...
perrycornish Posted August 21, 2009 Share Posted August 21, 2009 Hi again I too have a shunt and I don't even notice it, except when I wash my hair and feel the bump in my head ! Quote Link to comment Share on other sites More sharing options...
bessie Posted August 24, 2009 Author Share Posted August 24, 2009 (edited) Thank you for the info about shunts. Shes had her temporary drain removed and the doctor hasn't mentioned anything else about a permenant shunt so will see what happens. The worrying thing now, is that although her ventriculitis infection has cleared up, she now has a fever and high temperature and the doctor doesn't know why? He said all her tests are coming back as clear and they even tested for an embolism but thats not it. Has anyone ever heard of a patient getting fever and high temperature 27 days after an SAH? Edited to add: her breathing is also very shallow and she is on low level oxygen through a mask. Edited August 24, 2009 by bessie Quote Link to comment Share on other sites More sharing options...
paul99 Posted August 24, 2009 Share Posted August 24, 2009 have answered your pm sarah try not to worry p-lease Quote Link to comment Share on other sites More sharing options...
bessie Posted August 25, 2009 Author Share Posted August 25, 2009 Thanks paul have replied to you. I have just phoned the HDU this morning to see how my Mum was throughout the night and if she is still on the oxygen. The nurse who answered said she is having a nebulizer at the moment. When I asked what this was she replied, to prevent panic attacks? Anyone ever heard of this? Quote Link to comment Share on other sites More sharing options...
paul99 Posted August 25, 2009 Share Posted August 25, 2009 sarah it is to open the airways so mum can get more oxygen into her lungs lin has it once every couple of days is a good thing it also helps get any mucus up from the chest try not to worry and i know how hard that is take care Quote Link to comment Share on other sites More sharing options...
Guest ElaineW Posted August 25, 2009 Share Posted August 25, 2009 Hi there - hang in there - what is happening to your mum sounds like the norm to me, I can relate to almost all of it when my mum was going through the same but I agree it is really hard to deal with. My mum didn't have a shunt but she did have problems with the drain at times and had a nebuliser. Elaine Quote Link to comment Share on other sites More sharing options...
Janet Posted August 25, 2009 Share Posted August 25, 2009 Hi Bessie Don't worry about the Nebulizer all it does it helps to open the airways. If your Mum is having bad panic attacks they can constrict the airways so this is why thay are giving her the nebulizer. Quote Link to comment Share on other sites More sharing options...
perrycornish Posted August 25, 2009 Share Posted August 25, 2009 Hi Bessie, It does seem scary doesn't it when you see all the tubes etc Especially if you are not certain what they are for or have not seen them before. Try not to worry too much, although you would of course be a very surprising person if you didn't worry at all! Thinking of you Quote Link to comment Share on other sites More sharing options...
tennissmithy Posted August 25, 2009 Share Posted August 25, 2009 Hi Bessie, Just wanted to let you know that I had a high fever and high temperature over 2 weeks after my SAH. They tested and tested and couldn't fnd the reason for it, in the end when they discharged me they still had no answers but thought i was better off n my own home. A mystery still 2 1/2 years on.... Stay positive Laura xx Quote Link to comment Share on other sites More sharing options...
bessie Posted August 26, 2009 Author Share Posted August 26, 2009 Thank you for the reasurring posts. Mums been in HDU for about 4 days now and we have been told has had a fever and high temperature for about 7 days. She has now developed a rash across her stomach which has spread. The doctors don't know what this is? She doesn't actually have a lumber drain (my mistake) but has had 2 lumber punctures to drain off fluid and they have been tested and are normal. She is having a third lumber puncture today. Her ventriculitis infection is now clear, chest xrays are normal, bloods are normal and she had an eeg or ecg yesterday but we are waiting to hear back about that. She can hardly speak and we cannot understand what she says. Her tongue looks blistered but at least the cuts and scabs around her mouth have cleared up (thanks to liquid paraffin). Its as if she cannot move her jaw very much? She is still being fed and given fluids through a tube as she cannot eat or swallow properly. It helps to write it down, thank goodness I found this site Quote Link to comment Share on other sites More sharing options...
paul99 Posted August 26, 2009 Share Posted August 26, 2009 sounds like mum has an allergic reaction take care sarah Quote Link to comment Share on other sites More sharing options...
bessie Posted August 26, 2009 Author Share Posted August 26, 2009 Thats what the nurse looking after her that day said, but she wasn't sure. Quote Link to comment Share on other sites More sharing options...
paul99 Posted August 26, 2009 Share Posted August 26, 2009 i hope they pick up on it for you sarah if not mention it when you go in again hugs and cuddles Quote Link to comment Share on other sites More sharing options...
bessie Posted August 27, 2009 Author Share Posted August 27, 2009 The fever, high temp and rash are due to an allergic reaction to the antibiotics they were giving her for the ventriculitis infection. Thank goodness the ventriculitis is showing as clear and they have stopped giving her the antibiotics. She was a little brighter yesterday and is asking for food and water. I understood what she was saying alot more. I pray that she is (at long last) on the road to a complication free recovery. Fingers crossed. Quote Link to comment Share on other sites More sharing options...
caz Posted August 27, 2009 Share Posted August 27, 2009 wonderful to hear your news bessie.long may the improvement continue with mum lots of lve and best wishes carolx Quote Link to comment Share on other sites More sharing options...
Louise Posted August 27, 2009 Share Posted August 27, 2009 Great news.. Quote Link to comment Share on other sites More sharing options...
paul99 Posted August 27, 2009 Share Posted August 27, 2009 great news sarah you may still have some rollercoaster rides but we are with you and mum chin up girl hugs and cuddles Quote Link to comment Share on other sites More sharing options...
Janet Posted August 27, 2009 Share Posted August 27, 2009 Great news hope your mum keeps on improving now. Quote Link to comment Share on other sites More sharing options...
melbury Posted August 27, 2009 Share Posted August 27, 2009 That is really good news, you must be feeling so relieved. All the best, Mel x Quote Link to comment Share on other sites More sharing options...
perrycornish Posted August 27, 2009 Share Posted August 27, 2009 So pleased for you and my fingers are tightly crossed! Quote Link to comment Share on other sites More sharing options...
Tina Posted August 28, 2009 Share Posted August 28, 2009 Wonderful...wonderful news!!!! :-D Take care Love Tina xx Quote Link to comment Share on other sites More sharing options...
Guest ElaineW Posted August 30, 2009 Share Posted August 30, 2009 Onwards and upwards - another corner turned. Elaine x Quote Link to comment Share on other sites More sharing options...
bessie Posted August 31, 2009 Author Share Posted August 31, 2009 Hello, Having first thought the ventriculitis infection had cleared we are now told that she is still on vancomycin antibiotics as the last lot of tests showed a slight trace of infection. She was previously on gentamicin. She is on piriton for her allergic reaction but is still not allowed to eat or drink anything. Its still a worrying time and its not knowing the outcome day after day. She wants to come home and its breaking my heart seeing her laying there and I can do nothing (medical anyway) to help her. Quote Link to comment Share on other sites More sharing options...
perrycornish Posted August 31, 2009 Share Posted August 31, 2009 Bessie my dear, don't ever think you can do nothing! OK as you say you can't actually cure her but this I can promise, what you give her the love and the being there for her are invaluable and no-one else can do that except you.....you are vital:-D Quote Link to comment Share on other sites More sharing options...
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