melbury Posted September 18, 2009 Share Posted September 18, 2009 That sounds very positive, so fingers crossed. All the best to you both. Mel x Quote Link to comment Share on other sites More sharing options...
Skippy Posted September 19, 2009 Share Posted September 19, 2009 Hey Phil Stay positive - at the very least this sounds like they're taking it seriously by wanting to make sure Sharon is assessed properly rather than briefly. Keep us updated on how it goes. Quote Link to comment Share on other sites More sharing options...
phil13 Posted September 20, 2009 Author Share Posted September 20, 2009 Hey PhilStay positive - at the very least this sounds like they're taking it seriously by wanting to make sure Sharon is assessed properly rather than briefly. Keep us updated on how it goes. It certainly does, and Sharon's starting to make a right racket so I think she may be gearing up for it! We'll see what happens. Thanks so much and take care, Phil x Quote Link to comment Share on other sites More sharing options...
paul99 Posted September 20, 2009 Share Posted September 20, 2009 good luck sharon and phil god speed sound silly but hopefully launching sharon into the brighter future Quote Link to comment Share on other sites More sharing options...
phil13 Posted September 20, 2009 Author Share Posted September 20, 2009 good luck sharon and phil god speed sound silly but hopefully launching sharon into the brighter future Thanks Paul, let's hope she does her stuff, bless her. Love to you and Lin, Phil x Quote Link to comment Share on other sites More sharing options...
phil13 Posted September 26, 2009 Author Share Posted September 26, 2009 Hi Everyone, Sharon was admitted to Walkergate last Wednesday - I travelled up with her and went through the admin with the clinical team leader Barry, and Sharon started straight away with 'help me', bless her. However, things weren't so smooth on her first day, as they changed her feed and when they went to move her at my request, the nurses laid her horizontal which greatly distressed her and she ended up throwing up. I came away that evening very depressed. Anyway the next day I told the nurses that laying Sharon horizontal was quite dangerous as she could choke and was probably responsible for her throwing up, so they are going to keep an eye on her and ensure that it doesn't happen again. She appears to have settles in now though and seems quite happy. I hate the place, not the staff they are great; it's clinical and depressing and a different world to the home which was homely and very comfortable for Sharon. But it's Sharon's interests and well being which are the important factor here so I'll just get on with it. I'll keep you posted. Take care, Phil x Quote Link to comment Share on other sites More sharing options...
Karen Posted September 26, 2009 Share Posted September 26, 2009 Bless you Phil ..... must be an upheaval for you both. Glad that Sharon is now settled and hope that things start to look brighter. xx Quote Link to comment Share on other sites More sharing options...
Janet Posted September 26, 2009 Share Posted September 26, 2009 Hi Phil Really hope that everything goes well for Sharon. I imagine that the first few days would have been very unsettling for both of you. I truly hope and pray that the next few weeks are good to you both. Quote Link to comment Share on other sites More sharing options...
paul99 Posted September 26, 2009 Share Posted September 26, 2009 good luck sharon and you phil its funny how you can take a dislike to a place but as you have said its for sharon so fingers crossed wishing you and sharon and the children well hugs and cuddles to you all Quote Link to comment Share on other sites More sharing options...
phil13 Posted October 25, 2009 Author Share Posted October 25, 2009 Hi Everyone, Sharon hasn't said much over the past couple of weeks, mainly because she's absolutely shattered off the physio and SMART assessments. One main progression though, which I found out yesterday, is she is now beginning to support her head when she is in the chair. She has also attempted to say something while she's been in it which has never happened before. It's a different atmosphere this time though as the team are very much working with us. We had a meeting at the beginning of last week where I told them about Sharon being pretty much non responsive in her chair. They were very grateful of this feedback and have taken steps to ensure that they assess her in the best conditions. She's still scheduled to arrive back at the nursing home on the 18th November, however, the nurse said that it certainly wouldn't be the end of any further treatment which is very encouraging. At the beginning, I was very concerned because Sharon appeared to be very unhappy so I asked her if she was happy here, to which she replied 'I am', so she must be feeling the benefits of being here. I'll speak to you all soon. Take care, Phil Quote Link to comment Share on other sites More sharing options...
rod123 Posted October 25, 2009 Share Posted October 25, 2009 Hi Phil, hope everthing works out for you both have been reading your posts with interest, and things sound positive for you now,hope things continue to improve and Best wishes to you both Rod Quote Link to comment Share on other sites More sharing options...
Tina Posted October 25, 2009 Share Posted October 25, 2009 Hi Phil So pleased for you both...as Rod has said sounds very positive Fantastic! Take care, love Tina xx Quote Link to comment Share on other sites More sharing options...
Karen Posted October 25, 2009 Share Posted October 25, 2009 Hi Phil, Glad that things seem a lot brighter for you and Sharon ..... sounds as though she's working hard and she has a great guy to come home to, which must be driving her on ... Wishing you both, the very best..... xx Quote Link to comment Share on other sites More sharing options...
Skippy Posted October 29, 2009 Share Posted October 29, 2009 Hey Phil Hope that Sharon continues to improve and she carries on getting the proper treatment and support that she deserves. Sending you both big hugs Quote Link to comment Share on other sites More sharing options...
phil13 Posted November 14, 2009 Author Share Posted November 14, 2009 Hi Everybody, Sharon's due back at the home next Wednesday and I, personally, can't wait. She's been bringing up bits of her feed ever since they changed it when she arrived; why they changed it I don't know! I don't think she has been very happy here at all as she's been very tired which has affected her ability to respond so I don't know whether they have got much out of her. She threw up a whole feed the other day and ended up with a temperature and a very sore throat. I asked her what was wrong, and she croaked 'Where were you?' which nearly brought tears to my eyes. I'm wondering whether she thinks she's arrived in a mental asylum as some guy, obviously with some kind of brain injury, intermittently screams which echoes down the corridors. It's been three weeks since she's said anything and it's only now after I mentioned to her that she'll be going back to Falstone Manor that she's started to speak again. I'll be glad when she's back in the comfy secure environment of the home. The SMART results are on Monday and quite frankly I couldn't really care less for this meeting as it's my sweetheart's welfare that's my main concern here - I said to them in the beginning that they'd be lucky if they get anything out of her but we'll see. I don't want to paint a negative picture here as the therapy she's received will certainly benefit her, but her happiness is paramount above everything. I'll speak to you all soon. Phil Quote Link to comment Share on other sites More sharing options...
Louise Posted November 14, 2009 Share Posted November 14, 2009 Hi there Have you been telling Sharon when you visit why she's there, how long she's there for & why she's there.......constantly reminding her why...... When I went into the rehab hospital I hated it thought there was ducks running around, yeh I know stupid, tuned out what I thought was a duck was infact Emely. Ronnie explained why I was there, and why others were too, more or less on every visit - helped tho.....realized he hadnt abandoned me,.... take care Quote Link to comment Share on other sites More sharing options...
paul99 Posted November 14, 2009 Share Posted November 14, 2009 hi phil nice to hear from you again and im so sorry sharons had a rough time of it i really am i understand where you are coming from i think i would feel the same if lin was sharon i just hope something good comes out of it which will help sharon its a pity they messed around with the feed and hopefully shron will be happier back at the home and will keep on surprising you with words and signs which boost you up my heart goes to you and sharon with massive hugs and cuddles to you both Quote Link to comment Share on other sites More sharing options...
phil13 Posted December 7, 2009 Author Share Posted December 7, 2009 Hi Everyone, It's been a while, I've been so busy at work. Sharon has been back at the home for just over two weeks now and she's sleeping rather a lot which I sense is to do with being worn out from the therapy and assessment at Walkergate. It'll be interesting to see if the therapy will benefit her in the future, but at the moment I'm a bit bit flat from her being so active in the past few months to now sleeping most of the time. The assessment was very helpful, and one of the assessors is going to come out to the home to speak to the nurses about how to deal with Sharon and avoid 'over stimulation'. They didn't get much out of her which I suspected from the beginning. They suggested giving Sharon 'zolpidem', a sleeping pill, which was in the media a few years ago when it was awakening some long term vegetive patients. However, all it did with Sharon was put her in a foul mood, and didn't even send her to sleep! They are generally sceptical about this drug which, contrary to media repoirts, only works in certain cases, and I think Sharon is a bit further forward than minimal response. Anyway, we'll see how she gets on after she's had her sleep. Speak to you soon. Phil Quote Link to comment Share on other sites More sharing options...
rod123 Posted December 7, 2009 Share Posted December 7, 2009 Hi Phil, glad to hear you have Sharon home, Merrill my wife slept a lot when she came home, still does at time and i found i had a whole new set of worries once i got her home, at times i felt that i would never cope but you do don't you, can also be very lonely when they are in bed all the time, but things get better, really hope thing start better for you Good luck Rod Quote Link to comment Share on other sites More sharing options...
paul99 Posted December 7, 2009 Share Posted December 7, 2009 hi phil i know what you mean lins sleeping a lot now and i didn't realize how much is pulling me down a few days of activity then days of sleep it hurts not knowing what to do if anything im pleased they have come up with a plan i really hope Sharon recovers a bit more and begins to talk to you more once she has recovered a bit i know lin didn't like being transported to and from it really hurts her lin was being considered for zolpidim but then he changed his mind have done a lt of reading over that there is a hospital in i think surrey or Sussex thats been trying it out with mixed results so im not sure either i just hope Sharon comes back soon and surprises you nicely phil my thoughts are with you please take care love to you both and the family Quote Link to comment Share on other sites More sharing options...
phil13 Posted December 8, 2009 Author Share Posted December 8, 2009 Thanks Rod & Paul, It is a bit disheartening when there's a lot of activity and things are so positive, and then all of a sudden she's sleeping a lot. But Sharon is twitching a lot in her face and her eyes darting about which is a lot of neuron activity so I tell myself to be patient. She had a facial spasm the other week which is very bewildering for her and quite distressing to watch but the plus side is it's nerve activity and the more the better. She's beginning to get, what would appear to be more purposeful with her hand movements - she grabbed hold of the hoist last week and wiped some water off her face when she was in the bath so the nurses tell me. I know I'm being careful here as it may be just flexion, but it is something to keep an eye on as she moved her hand up to my hand which was on her face last night. Small improvements perhaps, but it looks like progress. Anyway, I'm off to see her now and taking my marking with me; it's that time of year unfortunately. Speak to you soon and thanks again, Phil Quote Link to comment Share on other sites More sharing options...
phil13 Posted December 12, 2009 Author Share Posted December 12, 2009 Hi Everyone, Sharon has had a bit of an ordeal the past couple of days. She was admitted to the AE at Sunderland on Tuesday night because she had thrown up brown fluid twice, which they thought might be blood. I arrived at the hospital at 11.00pm and sat with her until the doctor came in at 2.30am. After taking a blood sample and listening to her heart he said he couldn't find anything wrong with her so she was sent back to the home - 5.15am in the morning we arrived. I managed to sleep on and off for about an hour before the ambulance came - my head was resting next to hers as I held her hand, and it was so lovely to be next to her after so long. She twice called out 'Oh baby' with a croak, bless her. The next morning I got into work and then Minimol phoned me saying Sharon had vomitted again and was going back up to the AE. When I arrived at the hospital, my sweetheart was bringing up mouthfuls of brown fluid and pushing very hard against what appeared to be constipation - she did this nonstop for three quarters of an hour, bless her. But they said that they still couldn't find anything wrong and if she vomitted again and it had granules to bring her back in. A colleague at work mentioned that her mother had suffered from extreme constipation and the symptoms were identical - the fluid is a mix of stomach acid and waste that's risen up from a blocked bowel. We arrived back at the home in the afternoon, and I told Minimol what I had heard, so we both spoke to Sharon's GP who said that if she didn't vomit that night, he'd come and see her the next day. My baby was so knackered when I left and I felt so sorry for her. She didn't bring anything up and the GP saw her and has doubled her anti-constipation medication for the next month. She appears to be OK now but is very tired which is to be expected. I'll keep you posted. Phil Quote Link to comment Share on other sites More sharing options...
paul99 Posted December 12, 2009 Share Posted December 12, 2009 oh hell phil i have heard of constipation showing the way sharon has i just wish they will sort it out Sharon dons't need this sort of thing happening to her but the nicest thing is her comment to you whilst in hospital i think that makes up for some of it just take care phil love to you both Quote Link to comment Share on other sites More sharing options...
rod123 Posted December 14, 2009 Share Posted December 14, 2009 Hi Phil sorry to hear about the ordeal you've both been through hope they sort it for you soon Best of luck Rod Quote Link to comment Share on other sites More sharing options...
phil13 Posted January 10, 2010 Author Share Posted January 10, 2010 Hi Everyone and a belated Happy New Year to you all! Sharon has resumed her activities bless her and smiles when I go in to see her and when I talk to her. She is saying words and phrases again, and when I mentioned Edward, her son last week, she immediately responded saying his name. However, she was saying his name with confusion, as in I think she was trying to remember who he is, bless her. But it was an immediate response which is great. I hope you are all coping with the snow - isn't this how winter used to be? Speak to you soon, Phil Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.