Margaret

Thank you both for your responses. I'm very grateful. I had a small undetectable bleed. I have gotten checked out by my pcp. I have been ruled out for a lot of things. I am going to go see an integrative dr next. Nobody knows why I have these symptoms. Some are new...ie...raynauds. Some have been present since injury i.e...cognitive. I will continue my quest for answers. I took a break b/c I got tired of the lack of answers. The exercise intolerance is enough to drive my quest. Thanks again for responding. 

Thanks for your response. My injury was 3.5 years ago. My work has been quite understanding even though the focus is on cardiac surgical patients. I went back very slowly over a year and made it to part time but never felt well. Over time, I have decreased to per diem and work once or twice per week. I do get discouraged because I love my career. honestly though, I just don't feel well. I worry there's something more wrong with me than the event. I have made incredible advances and I acknowledge that work. I am in my early forties and realize I have a lot of work ahead of me. I know these struggles are what it's all about. 

I have been following this site on and off since the injury. Posted just once, I believe. I had my event in November 2014 and I feel like my symptoms have changed over time. My life is busy with a beautiful child and husband. I have an intense career- which I love but feel I can't do FT due to my health symptoms. These are my complaints: fatigue, headache, new food sensitivities, irritability, anxiety and an inability to exercise hard. My question is really in regards to the last problem. I can't exert in exercise. When I do I am feel very sick and dizzy.

Does anyone else have this problem after being out so long? I also just really never feel well over all. I sound like a downer but honestly, I am not. I have learned so much from this incident and I am grateful for that life education. Still, I'd like to simply feel ok once in a while. At any rate, any help would be appreciated. Thank you

I am glad to read that it's not just me but sad for all of us that suffer from the insomnia. My dr put me on ativan- the smallest amount prescribed and it does work. I have never taken any medication for anxiety or depression. I am petrified of how the brain can become used to meds. I started work and am out for 2 more weeks again while I battle some vertigo at neuro rehab. I need the ativan to sleep now and probably will need it when I return to work.

That means a month on the med every night? That truly scares me. But I have to sleep. I have to wake at 6.30 and take care of my child or wake and go take care of my patients at the hospital. Is this normal? Should I just keep taking it? I am only 3 months out and this is Definitely the hardest time for me thus far. I know in my heart it will get better but I need to sleep for that to happen.

Elizabeth47 I feel as if our lives are running in parallel. I suffered from a peri mesencephalic hemorrhage in nov 2014 with unknown etiology . I also had a lot of stress before that was out of the ordinary. My work got exceedingly busy and just added to it. I am now starting back to work part time but I wonder how I am going to finish each day. I am exhausted and I have vertigo. I am a perfusionist- your husband will know what that is and my job is also very demanding. I am looking to maybe reduce some more but need to keep hrs to maintain insurance.

I also have a 4 year old that I am desperately trying to keep up with. It's really tough right now but I dont want to give up my job. I love what I do and I am good at it. I am so sympathetic to your story and I hope he feels better soon. I understand the struggles and it's really frustrating. I was a superwoman before. Life has forced us to slow down and maybe pay attention before we missed it entirely. I am not appreciative of this gift right now, though. I am currently just frustrated at my limitations.