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  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 23,023
      posts
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

      5,199
      posts
    3. Subarachnoid Haemorrhage Polls

      This forum allows members to post a question on Subarachnoid Haemorrhage matters which should also include a Poll. All newly started Polls will be subject to Admin and Moderators approval before they appear on this forum.

      277
      posts
    4. Stroke Discussion

      For all other types of stroke and childhood stroke

      674
      posts
    5. Carers Support

      Discussion for carers of an SAH or stroke survivor.

      3,374
      posts
    6. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

      1,260
      posts
    7. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

      1,122
      posts
    8. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

      70
      posts
  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

      1,368
      posts
    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

      10,600
      posts
    3. Driving After SAH

      Sharing experiences of getting back to driving and useful suggestions and tips. 

      320
      posts
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      AndyH
      (48 years old)
  • Posts

    • I know what you meant about Edinburgh festival Tattoo/Fringe I'm from Edinburgh & also know Dumfries too we nearly moved to Moffatt 12years ago didn't long story...   Ah Daff bless you..
    • I have  2 words when we are getting over this nasty thing that Docs do not put into practise and it is Human Spirit xxx   I think if you can do a little bit (She says sitting in chair) to help yourself and not be deterred by what you have been told you will never do again.   Walk,  Always be as was (Hydrocephalus head) Not the same person, put her in home.  All said by OT's who did sweet nothing for me.     Didn't wonder why I couldn't do things just gave up on me.  Didn't look what was stopping me doing normal things good job I remember a poem my Sister taught me when she looked after the elderly and she sang to them.    The poem was  "Crabbit Old Woman"  I cried when she read it to me and every time I read it I think of OT's treating me like that woman makes me angry so remember the Human Spirit "  is what gets us through the  horrid time xxx All be positive as I will one day walk the whole of Sainsburys  what an aim in life  !! ha xxxxx    
    • V.mama. have a word with your Dr. Ask if they can check for migraine issues, these often go hand in hand with a brain injury, these can be treated or monitored using blood tests/medication...   Consider making a diary of activities rests, meals, sleep patterns and drinks too. You may find a pattern of stressful situations and then you can adjust the times to suit...
    • Daffodil. I too have Hydrocephalus and a shunt, diabetic, Epilepsy, high/low blood pressure, diabetic highs and lows, now a possible heart condition to boot!   The stress gives me headaches, like you too I use Aromatherapy too, I actually qualified as a very young fit man. I had a business in this field.   I currently have 87 different essential oils in my collection.. several great base oils, 3 different burners/misters.   One mister in my bedroom uses, Lavender, Sandalwood, Ylang Ylang and tea tree oils. All combined help keep my head and body very relaxed and now quite pain free.   In the last month I've only used 8 Paracetamol. Normally I have it on repeat prescription at a high dose, but no more, now only 500mg as needed.   Over drinking in a short period can cause pain believe it or not! It's called Hyponatremia. You can also get intoxicated by drinking to fast too.  This can cause pain... little and often...
    • SarahLS  a word you should take onboard is acceptance. It's an important word for you. Your old life is now different from the one you now live. Once you accept you are different your mind starts to respond to your new way of life. It took me nearly 8 years to do this.. but boy what a new life I have now....   A new word can be restart. Take a few aspects of how you lived before and try to adjust them to how you are now. I myself was caught in this trap for a very long time. Over the past 18 months my life has blossomed to something that I thought couldn't happen again.   Reading some of my posts, I share how I do things each day. I used to drive a lot! 15 times the normal average minimum. (10,000 miles)       Swishy  you say you struggle with changing in a dressing room! Adapt, how? Why not use a camping chair that folds up into not a lot of space? Cost is nominal too. Easy to carry, you can also ask for one to use, shops are required to provide one! Although not many people know this...   Second option is a walking stick chair see here  https://www.co-opmobility.co.uk/mobility-aids/walking-sticks/walking-stick-seats/   For you my word is determination. Look and improvise. There are many solutions to the many problems that are sent to test us. Just ask and sometimes someone has solved the problem themselves... just a thought here...    Mike     
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