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  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 23.9k
      posts
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

      5.7k
      posts
    3. Stroke Discussion

      For all other types of stroke and childhood stroke

      701
      posts
    4. Carers Support

      Discussion for carers of an SAH or stroke survivor.

      3.5k
      posts
    5. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

      1.3k
      posts
    6. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

      1.5k
      posts
    7. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

      78
      posts
    8. Your Story

      Please feel free to add your experience ... It gives a lot of comfort to new members. 

      11
      posts
  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

      1.4k
      posts
    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

      10.9k
      posts
    3. Driving After SAH

      Sharing experiences of getting back to driving and useful suggestions and tips. 

      442
      posts
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  • Posts

    • Hi Annes a very warm welcome to BTG     So sorry to hear about your brother. At 2 months he is still in the very early stages of recovery. He has had a major trauma to his brain that is trying to repair and also function as normal.  All that you mention i can relate to.   As his sister you know him well and just being there for him will give him great comfort. We are based in the UK, not sure where you are ?  You will find loads of helpful information here on our forum and also posts from others sharing their experiences and how they got through.   Here are some useful links  : https://web.behindthegray.net/index.php?/articles.html/useful-websites/useful-websites-r10/   Wishing your brother well in his recovery. Maybe when he is ready and able, help him join BTG too. We are a friendly bunch     Remember to take good care of you at this very stressful worrying time, bless you xx   Here is a link to ' A Letter From Your Brain'  click on the title, it's really good at explaining how your brothers brain is feeling,        We look forward to hearing more from you and how your brother is doing.   Take care Tina xx
    • So….. My younger brother 58 experienced an SAH 2 months ago. I’m sure you all know how it goes. First you are in shock, then you just try to get through the medical stuff.   Here we are 2 months later. I feel like as a sister I know my brother really well, or knew.  People tell me it is not my obligation to help him. I disagree.  I’m the one who knows what makes him smile.  The things that make him smile are all from 1970 - 1981 (estimate).   I have figured out how he responds to open ended questions, I know what makes him sad ( our mother dying and then him remembering and then forgetting again) and I am keenly aware of changes in his demeanor and or appearance.   He is at a nursing home with “invalids”as he says.  He has no real mental stimulation.  His ability to solve puzzles etc is still there, but his executive function and short term memory is weak .   Instead of this just being a vent, I would like to find resources.  I am willing to help him in any way I can. I need to be careful that I don’t become drained.  I logically know that I have to care for myself but it is difficult to separate from the strong urge to fix things.
    • Hi there   So I am also peri and have done a lot of looking into this. Yes the tablet form appears to be off limits but I was offered and went for the Mirena coil as it is slow release hormone and no contra indicated effects with having had an SAH, I also was offered the gel but I am not using that at present. I have been on this for a year and feel great.   The main thing though for us as we enter this stage of life is look at the vitamin and mineral intake and make sure we are getting enough protein and the right things for us and our bodies as we change but also for our brains which are still healing,   I now take a protein supplement specifically for the menopause but I also work out and looked at my cardio fitness  , so no high impact exercises for me but rather strength training, flexibility, swimming and walking  and genuinely have seen a massive improvement to my overall fatigue levels, mood, skin.   I am 10 years out from my bleed but am still seeing changes and improvements  
    • Hello dear Faith, Thankful your husband is home. Yes, dizzy and sensitive head as far as easily over stimulated by sounds, lights and movements around me were common those first few months after leaving the hospital.   I had to learn how to turn while walking without getting so dizzy. Rest and drinking lots of water daily and not pushing to do too much are important for recovery.   Later  PT, OT, and speech (more for mental deficits) rehabilitation helped me with movement, balance, thought process and relearning some math and comprehension skills.   I had to sleep with a large triangle elevation pillow for over a year. I would have headaches if I slept with my head more flat on a regular pillow. It is sort of a learn as you go recovery.   I found reading posts on BTG helped me so much to learn what to expect and provided encouragement and perspective from others who understand.   Take time for yourself as a caregiver and let others help. Meals provided from our local community of friends, family and place of worship were very helpful to our family. Keep us posted. Blessings, Kathy (in Colorado) 
    • Hi Faith   Yes, I can completely relate.  I was also coiled but my head felt very delicate.  The dizziness was horrendous and just bending down left me feeling like I was going to faint.  Three weeks is very early in his recovery and this, it would seem, is perfectly normal.    Make sure he rests as much as possible, sleeps when his body tells him to and that he drinks at least 2 litres of water throughout the day.  This helps the brain to function - I learned very early on that not drinking enough water and doing too much too soon completely wiped me out for days and the fatigue that hit was like hitting a brick wall.   Please read through the site and take a look at the various posts - you may find that some relate more to your husband than others.  All of our experiences, symptoms and recoveries very greatly, so please don't worry if you read something and think "oh that might happen" or "oh that hasn't happened" - it's the same as every pregnancy is different     Take care and make sure that you are looking after yourself too x
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