Jump to content
Search In
  • More options...
Find results that contain...
Find results in...


By registering with us, you'll be able to view our forums in full as well as discuss, share and private message other members of Behind The Gray. Why not join us now?
  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 23,364
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

    3. Subarachnoid Haemorrhage Polls

      This forum allows members to post a question on Subarachnoid Haemorrhage matters which should also include a Poll. All newly started Polls will be subject to Admin and Moderators approval before they appear on this forum.

    4. Stroke Discussion

      For all other types of stroke and childhood stroke

    5. Carers Support

      Discussion for carers of an SAH or stroke survivor.

    6. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

    7. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

    8. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

    3. Driving After SAH

      Sharing experiences of getting back to driving and useful suggestions and tips. 

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
  • Today's Birthdays

    No users celebrating today
  • Posts

    • My mum had SAH, it's been 5 weeks tomorrow & she is still in the ICU. In 2 days she was able to talk & 3 days she can eat already but lately she has this ups & down. She was supposed to have a surgery to put a valve so the liquid in her head can drain but the other day she had an infection in the part where the tube to drain the liquid in her head & yesterday with blood. She had a CT scan & after I gave her dinner which seems like she's ok though she just ate little. The doctor told me I have to prepare (which means the worst) They move her to other which is not sharing anymore is like more isolated. Is this really seriously like a life-threatening again? She need to take antibiotics that will last 2-3 weeks.  Is there anyone who had experienced this?  Any thoughts. Thank you.🙏🙏🙏🙌🙌🙌
    • Hi Ami, Like Daffs I also had Hydrocephalus, but I was in cuckooland as it was keeping me there.  I remember nothing apart from cooking a curry then shouting "help me"  as I passed out.   I remember nothing until shunt was put in and I slept most of the time.   Went from Kings College to local hospital, were  my Family were told I'd never be the same and to put me in a home. Cheek !!   Hubby took me home and a year on from bleed I had a shunt put in and it took me a while to sit up alone or even hold myself up.  All this I am told by my wonderful hubby and daughter.  Hubby was going to say no to op but it got me better and now we argue and moan like we did before the bleed.  So I know I am better  ha !! Keep a watch on it and forgetfulness ie short term memory loss is part of the beast.  But if worried please see a Doc as nothing like peace of mind  ...   Good luck My Bleed was 2009 and shunt was fitted in 2010  Still trying to walk more. !!! Be Well Ami xxxxx   
    • Ami, I will tread carefully here because I don’t want to get in the realm of offering medical advice but I had quite a few leaks of CSF from my burrhole when I had a EVD placed post bleed, I had the tube in for over 3weeks so it happened a fair few times..... I pulled a few tubes out apparently....and also afterwards when it was healing , which possible caused the metallic taste and can only say that if this was a CSF leak you would probably know about it instantly.   A sudden drop in CSF pressure( loss of fluid)  is almost  always  accompanied by awful sickness, vision issues, balance, aversion to light, and having to be motionless and lying down or at least that is my experience anyway. I experienced this after lumber punctures which I had numerous times before Shunt placing to Try and kick start my ventricles ...it didn’t work. Anyway the more fluid you lose the worse the effects  are.    If you are worried do push to get checked out, any loss of CSF would require absolute rest but importantly not normal to leak for no reason. I hope that your symptoms are maybe just the impact of the bleed itself and that you doing a bit more. 
    • Still I stink, was told it was due to my SAH/Bleed , Comfort stinks clean bedding smells my hair stinks and water is foul.   Love a coffee from a shop and can eat out okay love food, I feel like I have had a shower in dirty stale water,  Now use babies shampoo and very mild kids detergents.  Still get laughed at by hubby who says I have an ism as in  phantosmia.  I go "can you smell that Al," he goes "smell what  your ism?"    He is a kind soul but if you hear of woman hitting hubby over head with her shoe..It is me  ha ha  ..It is a problem though arghhhh!!   Can always eat well though !! Just smells have changed  perfume stinks  etc etc  been demoted to cheap perfume or body sprays  light ones  xxxx  
    • Sarah, So pleased you have been given better news than you were expecting, I think I would have taken that very same option,   Asking the question about it being on previous scans is a good idea, as you say if it has shown up on those and it hasn't given you any symptoms then as you say it's less likely to bother you in future.   Hopefully you can relax a little now and get back to living your life with a little less stress. Love & hugs Michelle xx 
  • Create New...