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  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 24k
      posts
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

      5.9k
      posts
    3. Stroke Discussion

      For all other types of stroke and childhood stroke

      708
      posts
    4. Carers Support

      Discussion for carers of an SAH or stroke survivor.

      3.5k
      posts
    5. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

      1.3k
      posts
    6. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

      1.6k
      posts
    7. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

      78
      posts
    8. Your Story

      Please feel free to add your experience ... It gives a lot of comfort to new members. 

      17
      posts
  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

      1.4k
      posts
    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

      11k
      posts
    3. Driving After SAH

      Sharing experiences of getting back to driving and useful suggestions and tips. 

      452
      posts
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  • Posts

    • Hi Charza   Totally sympathise with the jerking awake.  Mine was caused by the meds I was put on for the pain.  It might not be the same for you, but it's worth asking your GP - I was put on Tramadol and it didn't agree with me at all, so the GP took me off it.  Don't stop meds prescribed by your GP without their say so, but definitely speak to them.
    • Hi there Anne,  thank you so much for taking time to reply. I hadn't heard of Same You, so that is a really helpful resource, thank you again. It has been 3 months since the NASAH for me and sleep issues since end of Dec. Have a GP appt Monday so will see how I get on. I was in hospital for 2 weeks, but got no info on anything when I left. Take Care too xx
    • Hi Charza    I am sorry to read about your experience. I had a NASAH on Christmas Day 2022 with no specific cause. I'm doing fairly well physically but the emotional / mental side is tough as I am also in the depths of menopause. I haven't experienced the jerking you speak of, how horrible for you and sleep deprivation is awful.   I can't see when you experienced your bleed but I am going to assume it was fairly recent. Whenever it was, please speak to your doctor as there must be something they can do to help, even if it is temporary assistance with sleep medication - not wine!    Same You is an excellent charity - there might be something on there to help you with, here is a link.    https://www.sameyou.org/resources   I am sure you have heard it before, but be kind to yourself and treat yourself with love and care.    Best wishes, Anne x   
    • Hi there CSmith, you'll find lots of really helpful stuff here as you go through the next part of your recovery. I've found that the best way is to look at all the posts regardless of whether they seem to apply to my situation or not, and just roam freely - I've found some amazingly helpful stuff here. You will see that nobody will offer you specific advice, but without exception they will support you.   It seems like your incident was a few years ago now and that you're coping with the new you, but I've found that it never really goes away completely and small things trigger a bit of a fear response from me and my imagination can go into overdrive.   Like you, I didn't want my family to worry when I was having some discomfort or struggles with fatigue and didn't want to trouble my GP with it all as it seemed a bit weak, but once I got myself over this and owned up, I found my GP helped immensely, the stress lifted.  I start to feel better fairly quickly now I've learned to delegate some of the management of my tiredness to my family and I've found that de-stressing helps me cope better than before and the pains, while still there, don't seem as threatening and don't last as long.   I'm sure you will find a solution that helps you personally, but do get medical advice and share with your family if you are able to.  
    • I’m in the UK and had a Brain Hemorrhage when I was 18 years old, I was only in hospital for a week and came out fine. Or as fine as you can be. I had trouble adjusting afterwards as I was constantly on tablets for roughly a year I think.   I don’t seem to be able to remember much at all. I get fatigued pretty quickly and over the last couple of days I’ve been getting small piercing pains behind my left eye where I had the anuerysm, I don’t know if this is just my brain overthinking everything as this happens 11 years ago on February 7th   If anyone has felt the same pain or has any advice I would be very grateful, I don’t want to mention it to my family as they worry as soon as I say anything about it or any headaches which I suppose is understandable
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