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  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 23.8k
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

    3. Stroke Discussion

      For all other types of stroke and childhood stroke

    4. Carers Support

      Discussion for carers of an SAH or stroke survivor.

    5. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

    6. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

    7. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

    8. Your Story

      Please feel free to add your experience ... It gives a lot of comfort to new members. 

  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

    3. Driving After SAH

      Sharing experiences of getting back to driving and useful suggestions and tips. 

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  • Posts

    • Hi, I too I had horrible pain in my buttock, down my legs into my heels. However, mine was a week or 2 after the SAH. Additionally, I had tingling in the feet and at the back of my neck.  I pleaded for physical therapy. It was a great help.   It is now almost 2 years later after my NASAH and the onset of that pain comes when I'm tired or didn't eat well. However, it is no where near as painful. I then begin to do some of the stretches and activities taught to me during physical and occupational therapy. It can be frustrating at times. I learned that the body is doing its best to heal. Take care.     
    • Win, you are never more than a thought away, still can't believe it is 2 years since you gained your Heavenly wings. Miss you so much lovely lady. Sending love & hugs to you in heaven. Michelle. Xx😘😘🙏💔
    • That is great news glad things are going better for you..   take care, stay-safe.
    • Sarah that's great news  thank you for updating us,  i do hope tweaking the drugs helps you. So good to know you now feel supported and hopeful again.   Take care and keep in touch. Love Tina xx
    • As everyone was so nice earlier in the year when I was really struggling I thought I'd update a bit as I saw my neurologist yesterday.   A face to face appointment (even with masks) was so much better and easier than the ones I've had to have over the phone and I felt I had much more of his attention and we could work through everything that happened as I tried the new meds, and how my head is now. My sky rocketing heart rate & BP when I tried the drug swap in Jan is a cause for concern as it is likely the original SAH was caused by vasoconstriction & a BP spike.    He thinks that the SAH has left me with chronic migraine which do need managing, especially as I'm limited in what pain killers I can take and how often.   Rather than trying another new drug we're going to tweak what I'm currently taking to see if we can reduce both the frequency of bad headaches and hopefully get rid of the constant tight band feeling that I've had since 2017.   He's also recommended trying vitamin B2 supplements as there's been some encouraging research into taking this as a headache prophylactic.   I think the best thing about the appointment was that he outlined next steps if this doesn't work, so that I don't get despondent or try to cope on treatment that isn't working. After the phone appointment in November I did think I was at the end of options and when it all went so wrong and then not even returning to how I was in November I was pretty depressed but I do feel both supported and hopeful again now.   As ever thank you all for the kind words & support.
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