Jump to content
Search In
  • More options...
Find results that contain...
Find results in...

Hello!

By registering with us, you'll be able to view our forums in full as well as discuss, share and private message other members of Behind The Gray. Why not join us now?

Forums

  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 22,884
      posts
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

      4,989
      posts
    3. Subarachnoid Haemorrhage Polls

      This forum allows members to post a question on Subarachnoid Haemorrhage matters which should also include a Poll. All newly started Polls will be subject to Admin and Moderators approval before they appear on this forum.

      276
      posts
    4. Stroke Discussion

      For all other types of stroke and childhood stroke

      677
      posts
    5. Carers Support

      Discussion for carers of an SAH or stroke survivor.

      3,360
      posts
    6. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

      1,257
      posts
    7. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

      1,014
      posts
    8. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

      70
      posts
  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

      1,337
      posts
    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

      10,485
      posts
    3. Driving After SAH

      Sharing experiences of getting back to driving and useful suggestions and tips. 

      288
      posts
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      3,092
    • Most Online
      1,578

    Newest Member
    RuthB
    Joined
  • Today's Birthdays

    No users celebrating today
  • Posts

    • Yay!! Keep calling every day and I reckon you'll have your licence back before the end of this week or end of next at the latest. They have all they need Ally. It can't take much reviewing can it?!!   They called me at work at to tell me that they were giving me my licence back. They said that they would sort out the licence later that afternoon but I was not able to drive until the licence records had been changed. I took the afternoon off (well I was keen to drive!) and sat by the phone waiting for that call.   At 16.36 the phone rang and an angel at DVLA told me my licence was reinstated. 'Fantastic! Thank you so much', was my response. "Er, the licence will not be valid until midnight tonight....."   Silence, whilst I took that particular bit of news in!    I got up at 06.00 (it was a Saturday morning so this, in itself, was quite a thing!) and my former chauffeur/wife happily filmed me driving away for a rather long drive which involved A roads, B roads and motorways and a little bit of 'spirited but safe' overtaking.  ?  Bliss!   Keep us informed!   JM
    • Hi Vicky, here is the link:      https://web.behindthegray.net/forum/23-driving-after-sah/
    • Hello Ruth … and also a warm welcome to BTG.  While we do not give medical advice, there is so much helpful information  within this site for you to consider.   Knowing that you are not alone is a tremendous encouragement in itself. To help you in your quest for information.. please key `perimesencephalic` in the search box at the top right hand corner of the Home Page and you will find many threads of interest.   You mention returning to work in your busy employment.  This is always a challenge for everyone. It is so important that you stay within the realms of what your brain and body allow.  No doubt you have found out the consequences of pushing yourself too soon and too hard. How are you finding work at this point ?   Always rest well and keep yourself hydrated by drinking plenty water.   Others will share their experiences with you … and please continue to share any doubts and concerns you have with your recovery.   I hope you have good support from your family, friends and work colleagues.  The road to recovery is different for everyone and those around you do not always appreciate the seriousness of what has happened to you.     Subs    
    • Hi Ruth   Welcome to BTG, glad you found us, sorry it wasn't earlier in your recovery. I too had a NASAH with an EVD but it wasn't perimesencephalic mine followed more of an aneurysmal pattern which was why they were convinced it was due to an aneurysm.   I have recovered well without any major issues, I just have a terrible memory and am always tired. Physically I am fit and exercise regularly. I was running when I had my bleed and have managed to get back to that, I have completed the Great South Run twice since it happened something I am really proud of. Odd but running makes me feel less fatigued - it clears my brain     I think fatigue is often an ongoing issue. The Nurse Specialist at the unit I was treated said it can be a lasting legacy and just something you learn to live with. Have you tried to make some adjustments since your sah as that is key in recovery I think?   I hope others post here, there are many NASAH members who will have stories to tell. I know Chris from across the pond is one and he like me is  a runner     Clare xx  
    • Hello everyone, I am so happy to have found this place!! I have felt totally alone with this for the last year and a half, and put a lot of pressure on myself to just get back to normal.   I had my perimesencephalic subarachnoid haemorrhage in May 2017, and then developed hydrocephalus, so had an IVD in for 8 days. I was in hospital for a total of 11 days, and went back to full time, energetic work in the September. Now I can see it was way too early, but all I could find at the time online about this type of haemorrhage was that the prognosis was really good. I didn't see any stories from other people.   Now I would love to talk to other people who have had the same thing - to hear their story and about how they recovered; to compare and contrast basically.   Have you had a perimesencephalic subarachnoid too, ideally someone who also had the IVD?   Please let me know, I would so appreciate to hear how the journey has been for you.   Thank you,   Ruth
×