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Hello!

By registering with us, you'll be able to view our forums in full as well as discuss, share and private message other members of Behind The Gray. Why not join us now?

Forums

  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 22,955
      posts
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

      5,091
      posts
    3. Subarachnoid Haemorrhage Polls

      This forum allows members to post a question on Subarachnoid Haemorrhage matters which should also include a Poll. All newly started Polls will be subject to Admin and Moderators approval before they appear on this forum.

      276
      posts
    4. Stroke Discussion

      For all other types of stroke and childhood stroke

      674
      posts
    5. Carers Support

      Discussion for carers of an SAH or stroke survivor.

      3,360
      posts
    6. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

      1,257
      posts
    7. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

      1,050
      posts
    8. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

      70
      posts
  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

      1,337
      posts
    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

      10,497
      posts
    3. Driving After SAH

      Sharing experiences of getting back to driving and useful suggestions and tips. 

      308
      posts
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    1. Jojo8
      Jojo8
      (34 years old)
  • Posts

    • Many thanks for everyone's response.  It is simply so difficult to slow down!  I guess it might be true that many SAH patients are type A people. 😉   However, I am struck by a comment from my ophthalmologist this week - you do know you are lucky to be alive, right?!  It came as a timely reminder for me, though I am still easily distracted by apparent and physical recovery.  On the other hand, my head spins from automatically planning for the next day/week/month/year before bed...😓   I recall someone on BTG said the invisible injuries and problems post SAH makes them that much more difficult to explain to others.  How I wished we could all see the bruises and damages inside, if only to remind ourselves that this is an ongoing process!
    • I found it impossible to resume work. I didn't trust anyone. I prefered poverty to the interaction of work. I know I am a bit paranoid, but I sleep well!  
    • Take it staged as others have said as it is early days for you, and you want to be sure you can do job as before.   You might be okay but do what your body tells you to.   I have good days and then a duvet day and I don't even work xx    Wishing you all the best and welcome to BTG    We have all been there so anytime you need a rant or are worried come on here it is my safe place lol xxxx    Good luck Caw xxxx   
    • I’m with Weedra , grumpiness is a great sign for me. In fact my kids are best at saying to me ‘mum are you ok, you’re really grumpy’ , if I hear that I know my fatigue is notched up at Amber levels and I need to rest. If I don’t I’ll push through a red and that’s not pretty, I then have some pretty awful reactions where it’s  like the brain throws a temper tantrum with me....I try not to run a red light anymore, but did early on and was left reeling.    first I think the slower pace you have to adopt, are forced into after our events is not laziness. It’s the best pace you can manage at the time but because we were all travelling at 70 mph through life it’s like suddenly finding yourself sat in roadworks and contra-lane. You have no choice but have to slow. You have to stop when required. It’s all part of going forward. Be kind to yourself right now, the more time you take the better it will be down the road.    Everyday fatigue for me is my normal. I can get a good nights sleep but still wake up tired so know every action each day is a bit of a horse trading game with my energy bank. What can I do, what do I need to drop if I do that, when can I get rest time, the  internal conversation is just my natural state now. And I do loads now compared to post SAH. But I do everything more consciously and with consideration, I don’t rush and I don’t multi task...I am a skilled uni tasker  who has little pauses afterwards.     The best analogy is that of a battery pack. We damaged our charger, it probably can never charge back to its out of the box state, so you need to spend it wisely and know the capacity . the level of energy we can hold is unique to us as individuals. Some people will get back to being able to do everything in time but probably differently. Others won’t , time will tell you that but tiredness in the first twelve months is the brain telling you it needs some pause. You can’t see the bruising, the hurt , the damage...but it’s there. Let it heal .     
    • Actually, thinking about it, I knew something was niggling when I put Age Concern, they have changed their name to Age UK. You are amongst many who are definitely not fit to work but actually found fit to work. If you have to go to Tribunal, most do as the decision is rarely overturned at MR, go in person which gives a more positive result. Everything you send to DWP keep a copy and mark every sheet with your name and National Insurance number. Also, if you ring them make a note of who you speak to as well as date and time.   As this thread has gone off topic, my fault, I will put no more but if I can help you further on this matter just message me. 
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