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  1. Subarachnoid Haemorrhage/Stroke Discussion

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    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

    3. Stroke Discussion

      For all other types of stroke and childhood stroke

    4. Carers Support

      Discussion for carers of an SAH or stroke survivor.

    5. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

    6. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

    7. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

    3. Driving After SAH

      Sharing experiences of getting back to driving and useful suggestions and tips. 

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    1. Sholco1
      (43 years old)
  • Posts

    • Hi that's the reason I took it for a couple of weeks as it was just to see if it worked to help diagnose me hope things improve for you soon xxx
    • Thanks Jess, I think it is a problem without solution, sad to say.  For all the things out there dealing with inflammation is a tricky thing, especially for anyone with history of bleeding.  I keep searching hoping to find an answer but... I am sorry you also have pain.  the prednisone is only a very short term solution, I think more of a confirmation that my pain is from  an inflammatory process... So ice is good still, I do get a lot of relief from it.. Prednisone will be tapered off in a couple of days. xx Jean  
    • Hi I would love to be able to tell you what medication is and isn't safe and works best however it would be really dangerous to try as I am advised not to take ibuprofen but others do different drugs interact with others in ways that can be really harmful    They wanted me to take prednisone but I was advised against it so am in agony but you have been prescribed it so I really would go and see you dr and speak to them as I wouldn't want to give out this kind of advice and be responsible for naking a person really ill    Hope you find something and the pain eases soon xxx
    • Hello, I am 4 years post SAH and vasospasm.  Right now I am working to become more comfortable from chronic back and neck pain.  I have just learned it is causing nerve pain which up until now I have been blaming on my SAH.  I think I blame everything on it truthfully. It is also causing numbness down my leg. It seems to be chronic inflammation, did not suspect this.   So I have been seeing a Neuro who has diagnosed me with a pinched nerve in my neck, part of the problem but also has started me on a short course of Prendisone.  Well the Prendisone has made quite a difference.  I realize it is not a long term answer as it will cause a lot of side effects.  Up until now since my SAH I have only used Tylenol, which I think is not very effective, and lots and lots of ice to quiet my back and neck. I almost never bother with Tylenol.   Any thoughts, or info on post SAH safe meds, vitamins anything that helps with chronic inflammation.   thanks for any suggestions or thoughts I will continue with my Neuro but I fear I might be dead ended and the pain will return with the end of the prendisone... Jean  
    • Thank you Daffodil, that has been a great comfort.  It must be very different as I only need to stay in for one night!  I hope your check up went okay.  I know how you feel about the scans although it’s good they are being so thorough and monitoring. 
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