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  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 23.9k
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

    3. Stroke Discussion

      For all other types of stroke and childhood stroke

    4. Carers Support

      Discussion for carers of an SAH or stroke survivor.

    5. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

    6. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

    7. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

    8. Your Story

      Please feel free to add your experience ... It gives a lot of comfort to new members. 

  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

    3. Driving After SAH

      Sharing experiences of getting back to driving and useful suggestions and tips. 

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  • Posts

    • Good on you. Sorry to hear that it doesn't help.
    • Swimming helps alot with my headaches. I love water, so I find it relaxes me. Other than that I go to the gym and walk my dogs. Nothing has ever helped my headaches.
    • Ok, I have been to my G.P and she is going to talk to my brain consultant and gynaecologist to check again if I still am not able to take H.R.T.   She was explaining that H R.T is evolving alot, so I have everything crossed. She said tablet form is a big no-no with me but with look at other avenues.   I've explained that I don't have much of a life at the moment and just want to get a bit of happiness and energy back. Fingers crossed she comes back to me with good news 🤞🏻
    • I am 11 yrs post PMSAH (nearly to the day) and I wanted to share my story - primarily because this site brought me the only comfort I could find in the weeks and months  following my hemorrhage, and I hope it may help others.    At the age of 49 and preparing for work one morning I had the typical 'thunderclap' headache followed by extreme pain in my head, stiff neck, very high BP, and severe nausea.   Thankfully, my sister was home & called EMS who promptly took me to hospital where a CT scan diagnosed a brain bleed. Due to the size of the bleed, the surgeon believed I had an aneurysm which they planned to coil.   A hole was drilled in my head during surgery to alleviate swelling and an aneurysm was not found. I was told a blood vessel burst - hence the large bleed.  The drain remained for 5 days followed by a second angiogram. In sum, I was remained in neuro ICU for 10 days.    I had a fairly uncomplicated recovery (though lost 20+ lbs in the aftermath) and was back to work in 90 days. I know how incredibly lucky I was.   My headaches persisted for 2 years post-bleed, and I had two angiograms during that time (for persistent pain) as well as a lumbar puncture 2 mos post bleed which indicated a high RBC count remained in the CSF (hence the ongoing pain).    Friends and family were supportive, but this site was my savior. The stories, questions, and information helped me feel not-so-alone. I will be forever grateful for this community.    Though I had a rough year emotionally post-recovery, I am happy to report two+ years following my 'event' I realized my dream of running a half marathon, at the end of which I broke down in tears of gratitude, as everything I did following my bleed (flying, working out, etc) had me a nervous wreck.    The fear of another bleed has never entirely left me (I was told by doctors there was no explanation for the cause of the bleed), but as time went on, I have become less fearful.  In a nutshell, I would like to (belatedly) say thank you to this community, and to wish all of you blessings and as quick a recovery as is possible.  All my best, Suzanne   
    • I was taking an HRT when my SAH happened.  Now at that time the cause for my SAH was not found, and those caring for me searched every avenue.    I asked if taking the HRT could have caused it and they said no.  I was on premarin for probably 9 years when my stroke happened.    I did a short time later stop taking it as I had been trying to wean down off it prior to  having my stroke.   An added note to this I have found in the last several months that I have several family members that had brain bleeds, so perhaps it runs in my family.     I do hear you when you say you are struggling, it was a very difficult time for me and the HRT brought relief.  Good luck with your Dr. visit.  
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