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  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 23.9k
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

    3. Stroke Discussion

      For all other types of stroke and childhood stroke

    4. Carers Support

      Discussion for carers of an SAH or stroke survivor.

    5. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

    6. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

    7. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

    8. Your Story

      Please feel free to add your experience ... It gives a lot of comfort to new members. 

  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

    3. Driving After SAH

      Sharing experiences of getting back to driving and useful suggestions and tips. 

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    • Kaz

      Kaz 10

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      nw42 10

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  • Posts

    • Thank you for the replies and information.  I messaged my GP and he has no objection to a 2nd opinion and submitted the request to the insurance company.  If they approve then I will go to a different neurologist to get their plan on treatment.  Gary 
    • Hi Gary   To be honest, we can't really advise you on the best course of action for you.   I had my SAH in August 2006 and it wasn't until August 2007 that my headaches abated and I stopped needing to sleep during the day.  The more I stressed about not being where I wanted to be in my recovery, the worse the headaches became.  Once I realised that this might be the "new me" and accepted that I may no longer to be able to do the things I did before, the easier it all became.   16 years later, I'm working full time again, but I can't do the high intensity training / workouts that I used to do as they cause banging headaches that last for days after.   I think Super's advice is sound - you need to contact your GP, see if there is a specialist nurse and most definitely consider the costs of going private.
    • Have you seen your GP and if so, what was their verdict? Does the hospital where you were treated have a specialist nurse who you could contact to voice your concerns? They should be your first port of call. Would your GP refer you back to neurology? At the end of the day the symptoms you are presenting may be nothing at all to do with your SAH but coincidental, who knows.   I have never had a private consultation about my SAH but if all else has failed for you then a private consultation could give you peace of mind. Please bear in mind that a private consultation could lead to investigations being done that may have to be paid for unless the consultant is prepared to refer you back to the NHS. 
    • I am considering getting a 2nd opinion for my SAH from May 2022 as I am still suffering from severe headaches, lightheadness, nausea and heavy ringing in my ears.   I know there is no silver bullet to fix my issues and you have to let it run its course but I am getting at my limit for tolerance.   Any thoughts on sufferers who have done this and is it worth the cost and time/efforts or do I suck it up and put on my big boy pants and muddle through.   thanks Gary
    • Happy 19th Anni-versary Super Mario,  so sorry that you have had such a sad year with losing your wonderful husband.   Hopefully this year will bring new adventures and some wonderful travelling for you. You are an inspiration to us all and I personally would like to thank you for all of the support you have given me over the last 8 years.   Looking forward to hearing all about your new adventures. Take care Love & hugs Michelle. Xxx
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