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By registering with us, you'll be able to view our forums in full as well as discuss, share and private message other members of Behind The Gray. Why not join us now?

Forums

  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 22,865
      posts
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

      4,923
      posts
    3. Subarachnoid Haemorrhage Polls

      This forum allows members to post a question on Subarachnoid Haemorrhage matters which should also include a Poll. All newly started Polls will be subject to Admin and Moderators approval before they appear on this forum.

      276
      posts
    4. Stroke Discussion

      For all other types of stroke and childhood stroke

      677
      posts
    5. Carers Support

      Discussion for carers of an SAH or stroke survivor.

      3,360
      posts
    6. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

      1,255
      posts
    7. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

      990
      posts
    8. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

      70
      posts
  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

      1,334
      posts
    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

      10,455
      posts
    3. Driving After SAH

      Sharing experiences of getting back to driving and useful suggestions and tips. 

      271
      posts
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  • Posts

    • Thanks Clare and Sami. That is really good to know that you had substantial recovery after this stage. I know it does not mean I or anyone else will recover at the same time but hopefully means I still have a lot of recovery to go and therefore a lot of improvement.    Sami I am glad you specifically mention your headaches and anxiety improved. I actually read some of your earlier posts after your reply. You mentioned waking every day with the feeling in the pit of your stomach and the head pain, sounds like that has gone for you.  Hopefully they will for me too.  It also made me stumble across some other posts which mention some of the weird head stuff I have which again is reassuring not be the first to not know what the hell is happening in my head!   Clare I too am phasing back to work and at the moment it takes all my energy to do that.  I do like my job but I think I will find out over the next 6 months as I do more if it is realistic for me. Luckily I was part time anyway so I hope so, I really like it but I will put my health first. I am glad you found what worked for you.   This is such a great site, thankfully I found it early on in my recovery and I think it makes a real difference when there is so little knowledge out there about SAH's unless you are talking to specialists.   I rest quite a lot still and will make sure I drink plenty.     
    • Hello, I'm new. Had 2 NASAH a month ago. No neuro signs but just left with headaches, fatigue, depression and major anxiety.  I was in hospital 5 days then sent home with no follow-up, no advice, no prognosis. They just said the neurologists would contact my GP when they had studied scans.  My GP called me a few days ago and read thr letter he had received. They are almost certain the bleeds were caused by a condition called Amyloid Angiopathy. I looked it up and it is a degenerative progressive brain condition for which there is no treatment.  That was communicated to me in a four minute phone call. Needless to say I am devastated and terrified. I've Googled it far too much and there is a Facebook Group for it but that's even worse that reading Dr Google.  Has anyone else been informed that this could be cause if their NASAH. 
    • Hi Charlie   I echo what  Skippy says everyone is different. At five months I was mid phasing back to work and struggling with the hours I had to do. By a year I realised I was never going to be able to my old job so changed and reduced my hours. Since then I have changed jobs again due to stress and I can now - at 3 and half years out feel I am settling.   I still get days when my head feels like cotton wool and am usually floored by Fridays but it's mainly a matter of coming to terms with the new normal and what is best for you. Unfortunately the isn't a one size fits all so it's seeing what works for you and you will make mistakes and feel the consequences.   Just try and be kind to yourself and take it slow. And when you do realise that you have done too much take that on board and adjust how you do things in the future.   You'll get there eventually, we all do it just takes time and patience.   Good luck and keep us posted on your recovery.   Clare xx
    • Hey Charlie   One thing I learned very early on was not to set my stock by everyone else's stall i.e. just because your friend's baby was walking by one doesn't mean that yours is better or worse if they started before or after one.   At five and half months I was a complete wreck. I had headaches every day, couldn't be left alone as I was too anxious and was having counselling.  I hit the 1 year mark and it was as if a switch had been flicked.  I stopped needed sleep during the day, I had more energy, the headaches had all but gone etc.  We are all different and will recover at different rates.   Key here is to listen to your body and make sure you stay hydrated.  12 years on and I work full time (37 hours a week) in a busy school office with half an hour break.  Don't get me wrong, I come home some days with a headache or shattered but no where near as bad as I was 10 years ago say.  I still notice improvements now and for me its because I'm keeping my brain active.     At your stage is recovery I couldn't read a book because I'd forget where I got to the day before, so I started reading magazines and doing crosswords and word searches - it keeps the brain ticking but you're not exerting yourself physically.     Do little things that work best for you - if you need to sleep, then sleep; if you want to walk, then walk.  Baby steps can lead to huge leaps, you are in control of this, it's just figuring out the best "this" for you.
    • I found Jill Bolte Taylors book good and at the same time she bought humour into it.   My Stroke of insight is about Jill who had a stroke and I saw her on Oprah's show and she could laugh about it.  Like one day we will. It gave me hope as here is a woman and she cannot remember her Mum G G  and her Mum cuddled her as it  was all she could do and Jill says "So this is a G G,  I like G G's"   (my words)    
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