This forum allows members to post a question on Subarachnoid Haemorrhage matters which should also include a Poll. All newly started Polls will be subject to Admin and Moderators approval before they appear on this forum.
Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke
Thanks for the great tips. Good to know it does get better eventually. I just thought 9 months is an awful long time. Not in the world of sah and brain surgery, I am slowly learning. Kind of funny, my neurosurgeon actually got a bit mad at me a week after for not realising how big deal this is. I was attempting humor and he was very Dutch. But later I was able to joke with him a bit in follow ups.
Hi Yun, I didn't have clipping, but head and scalp were tender and my hair was starting to go thin .... Brushing the hair, especially in the morning or after washing wasn't good .... I found this detangler brush a huge help and I still use one .... it's called a Tangle Teezer and the following link will give you some ideas as to what it looks like, but you can pick these up now from any supermarket or drug store. https://www.tangleteezer.com/
Good to hear from you. Sorry for what happened to you, must have been terrifying...
When all was said and done and I returned to Mass General for my first follow up with Neuro I was so blindsided.
I mentioned to the doctor that I was especially fearful as I had now had 2 strokes...and he said not really (me???) he told me then about the vasospasm and that it was really all part of the same stroke...I had to go home and go on the computer and look it up...took me weeks to be able to do it.
If they were expecting vasospams for me no one mentioned it when they sent me home from the SAH. My initial follow up appointment was set for a month...but as I said I was back in the ER way before that..
Such a complex event(s)....
Swishy, I had a nasah in 2012. I live in Arkansas and was sent to Little Rock for treatment. I was placed in NSICU for 12 days.
I had a phenomenal team caring for me. I had what they called vasospasm’s on something like the third day if I remember correctly. However, they were expecting this.
I recall seeing the white board on the wall with instructions to not allow my bp to fall below 150. I was told this was to keep the vessels in my head from collapsing.
I remember my nurse telling me “ you may die, but it won’t be your heart that kills you!”.