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  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 23,398
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

    3. Subarachnoid Haemorrhage Polls

      This forum allows members to post a question on Subarachnoid Haemorrhage matters which should also include a Poll. All newly started Polls will be subject to Admin and Moderators approval before they appear on this forum.

    4. Stroke Discussion

      For all other types of stroke and childhood stroke

    5. Carers Support

      Discussion for carers of an SAH or stroke survivor.

    6. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

    7. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

    8. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

    3. Driving After SAH

      Sharing experiences of getting back to driving and useful suggestions and tips. 

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  • Posts

    • Hi TinaW    I found people on here Behind the grey know  what we have been through and how we feel moreso than others.   I got scared and was on here every day but it was my way of talking to people about what has happened to me and is it natural.   Got a good feed back and it helped to give vent to worries I had.  Like crying without any reason and being snappy.   Started to sing happy songs and started to get my laughter back.  Keep chin up and smile or sing as I was out of it for a while.    Woke up when shunt was fitted as I had hydrocephalus and it kept me sleeping.  Still cannot walk that far but doesn't stop me weekend Hubby gets chair and we go out for breakfast  xxxx  Any problems share them  xxxx
    • Hi Tina,   Hey - you came through it!  I'm guessing that you didn't talk much to anyone before you went and this worry just built up unchecked until the bubble burst and all that emotion just came tumbling out.  Always best to talk about these things rather than just letting them build up.  It acts as a relief valve.   Next time, come on here to express your fears before you go, not afterwards.  This sort of stuff is what we're good at, because we've been there.  We know exactly what you have gone through and it is the classic 'what if' worries - and guess what? We always think the worst and there really is no need.   It's not daft or even irrational. It's what our body does to us, and that fear is us telling it back that we haven't forgotten it hurt us and we aren't going to let it happen again. Hence we build up this defensive tension and our reaction at the end is to tell it that 'I told you I wasn't going to let you hurt me!'   Then the relief is palpable.  It's a natural worry and not one to worry about unduly. It's not daft, or stupid, or anything to be embarrassed about. Those who haven't experienced it don't know how it feels and therefore can't empathise with us.  They don't know what they don't know.   It's hard to know how to react without that understanding that only the experience gives you.    Thanks for sharing. It was a considerate thing for you to do and is an important message to others who share those worries.   Now get back to getting on with living your life to the full.   I wish you well.   Macca
    • It has been almost three years now since my SAH, and I feel that I have come quite a long way in my recovery.   Fatigue is still a problem, but it’s slowly getting better, or maybe I am just getting better at adjusting my pace. I have recently been able to exercise more without having to rest up too much afterwards, which has been very helpful.   Yesterday I had my first angiogram in two years, and this has left me so upset and emotional afterwards and I just can’t get back to a positive state of mind. I have had a few angiograms before, so I knew beforehand that it would be a bit uncomfortable, but this time I just panicked.   I was so deeply afraid that something would happen during the angio that my heart was racing even the night before. And when I got to the hospital in the morning, they told me I would have to wait because the doctors had to perform an emergency surgery first. So three more hours of worry. The fear I felt during the angio made me so tense that it felt like it took forever. And this was even though I had had a mild sedative before.   Afterwards I was very lucky to have a nice surgeon, who told me straight away that from what he could see, everything looked fine. He even came to my ward to give me copies of the scans, and explained them to me.   After that, I was so relieved and felt happy for a while.   Today however, everything just hit me at once. The toll on my brain from the wait, the irrational fear and the anxiety before the angio. And also having to rest and not being able to exercise for a week or so because of the risk of bleeding.   It reminds me so much of how I felt at the beginning of my recovery, and I feel confused, angry and a bit sad. And I can’t even explain why, I can honestly say that I haven’t felt this affected mentally for a long time now.   I guess I just wanted to share this with you because even though I have been talking to my husband about this, he can’t really understand why I was afraid in the first place, I am usually a very rational person. So thanks for listening.   /Tina
    • I had my “event” in 2012. For several years after I had occasional stabbing headaches. They seemed to mimic the pain I remembered from vasospasm. They scared the heck out of me as I thought I was having a vasospasm. Funny, I haven’t thought of them until I read this post. I’m not sure when they quit, but it’s been some time since I was visited by one. 
    • I'll be three years post bleed in March and I live with headaches but I've never heard the term "Ice Pick Headache.'     I can ALWAYS feel my head in the location of the original pain.   Sometimes it's not bad thankfully but it escalates and can be severe.  Sigh.    My Internist gave me another MRI which was normal so I realized that I'm probably just going to live with it...     It is sad to read your stories on the one hand and then on the other I realize it's a part of this bleed.   
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