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Hello!

By registering with us, you'll be able to view our forums in full as well as discuss, share and private message other members of Behind The Gray. Why not join us now?

Forums

  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. Subarachnoid Haemorrhage Discussion

      23,047
      posts

    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

      5,226
      posts

    3. Subarachnoid Haemorrhage Polls

      This forum allows members to post a question on Subarachnoid Haemorrhage matters which should also include a Poll. All newly started Polls will be subject to Admin and Moderators approval before they appear on this forum.

      277
      posts

    4. Stroke Discussion

      For all other types of stroke and childhood stroke

      677
      posts

    5. Carers Support

      Discussion for carers of an SAH or stroke survivor.

      3,378
      posts

    6. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

      1,260
      posts

    7. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

      1,122
      posts

    8. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

      70
      posts

  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

      1,368
      posts

    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

      10,603
      posts

    3. Driving After SAH

      Sharing experiences of getting back to driving and useful suggestions and tips. 

      320
      posts

  • Who's Online (See full list)

  • Member Statistics

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  • Today's Birthdays

    1. Andi
      Andi
      (50 years old)

  • Posts

    • Colleen
      Scalp discomfort 9 months on

      By Colleen · Posted

      Hi Yun,   No trivial questions when it comes to brain surgery after effects. I also had clipping. The incision ran down my right side hairline. Don't want to be too graphic but scalp was pulled back and skull bone removed to get to where they needed to go. The skull pieces were repaired with "bondo", and these areas ache when the weather changes or I'm tired or stressed. As for the scalp, it was explained to me that as all the disturbed nerves heal, it would feel tingly or itchy or like something was crawling .  That took a very good while to go away.  Even now, 10+ years later, sometimes I get a sensation of numbness, usually associated with fatigue, stress or too much caffeine.  But nothing like the early days. It does get better, slowly but surely.    Colleen
    • Yun
      Scalp discomfort 9 months on

      By Yun · Posted

      Thanks for the great tips. Good to know it does get better eventually. I just thought 9 months is an awful long time. Not in the world of sah and brain surgery, I am slowly learning. Kind of funny, my neurosurgeon actually got a bit mad at me a week after for not realising how big deal this is. I was attempting humor and he was very Dutch. But later I was able to joke with him a bit in follow ups. 
    • Karen
      Scalp discomfort 9 months on

      By Karen · Posted

      Hi Yun, I didn't have clipping, but head and scalp were tender and my hair was starting to go thin .... Brushing the hair, especially in the morning or after washing wasn't good .... I found this detangler brush a huge help and I still use one .... it's called a Tangle Teezer and the following link will give you some ideas as to what it looks like, but you can pick these up now from any supermarket or drug store. https://www.tangleteezer.com/
    • Louise
      Scalp discomfort 9 months on

      By Louise · Posted

      I had this eventually it eased, I used a shampoo for sensitive scalp, (cant get the one I used to use now) but now use Head & shoulders sensitive scalp its ok..    
    • Swishy
      RCVS discussion

      By Swishy · Posted

      Hi Casey,   Good to hear from you.  Sorry for what happened to you, must have been terrifying...   When all was said and done and I returned to Mass General for my first follow up with Neuro I was so blindsided.    I mentioned to the doctor that I was especially fearful as I had now had 2 strokes...and he said not really (me???) he told me then about the vasospasm and that it was really all part of the same stroke...I had to go home and go on the computer and look it up...took me weeks to be able to do it.   If they were expecting vasospams for me no one mentioned it when they sent me home from the SAH.  My initial follow up appointment was set for a month...but as I said I was back in the ER way before that..   Such a complex event(s)....   Stay well.. Jean
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