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Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke
Thanks for the responses and the support. To give more context about my particular SAH here are the finer details:
As a result of COVID-19, I found myself working from home while my two school aged sons were at home trying to home school (7 year old and 10 year old). I was wrapping up a teleconference for work, when suddenly my neck became very stiff and it felt like I got hit in the back of the head with a hammer. I lost my hearing momentarily. I made it about 4 steps and fell to my knee. I then realized I was in serious trouble. As a result of l being on a teleconference, I had locked the door that led to my basement where I was, in an effort to keep me sons from disturbing my call. I realized no one was going to know what was going on, and I needed help.
I made it to the flight of stairs and crawled up 15 stairs and unlocked the door, and saw my wife and two sons standing there. I never once thought about calling for help on my telephone from downstairs. When I saw my sons faces, I knew I couldn’t let them see me like this, so I told my wife to call the ambulance and I crawled up another flight of steps to my bedroom. By this time, I was soaked in sweat and and in a ton of pain.
The paramedics arrived and quickly took me to the hospital, despite all my vitals being relatively normal. Once I was in the Emergency Room they quickly did a CT scan and saw the blood on my brain. Because of the immense pain, they gave me morphine through an IV, but it did not offer any relief.
The decision was made to transfer me to another hospital that specializes in brain trauma/strokes. Once I arrived at the new hospital, I was placed in Intensive Care for the next 9 days.
As a side note, that I later found out, I was the only non-COVID-19 patient on that entire floor and in ICU. However, I was blessed to make it out of my 9 day stay without getting COVID.
The neurosurgeon advised me that I would normally stay in the hospital a bit longer, but he wanted me to go home before I caught COVID. My pain had to be controlled with Fentanyl while in the hospital, since the morphine did nothing for the pain. After 5 days, I was able to control pain through non-IV meds (no more Fentanyl).
I did experience mild vasospasims on days 5 through 8, but again they were controlled through medication. After, all the testing, my final diagnosis was a NASAH. I am very fortunate on all accounts! From being able to get help, to not getting COVID, to having a NASAH that didn’t require coiling or a clip.
I would say that the most frustrating aspect on my road to recovery is that once I have a few good days and think I am all better, I have a really rough day (bad headaches). It looks like from other’s experience, this is a fairly common struggle.
I will also add, that in these very unusual and challenging times. COVID has definitely thrown a curveball to anyone that has recently gone through any type of SAH. From no family being able to visit in the hospital, to virtual doctor appointments and everything in between. I am just very blessed to have found this site and hopefully my experiences can provide some reassurance to someone that may have just experienced a SAH during these unique times.
I am blessed in so many ways and do have a whole new appreciate for life! Tomorrow is definitely not promised, so make the most of today!
Thanks for all your support!
A very warm welcome to BTG.
You will find a wealth of helpful information and caring support here.
Feel free to also join in the daily banter in the Green Room.
We look forward to hearing more from you.
Vincent is right that you should keep your hopes up for an improvement in your husbands vision. When you mentioned Hemianopia I remembered that the govt website has a lot of information that can help with understanding the accepted levels of eyesight that are necessary to have a driving licence. Here's a link....
It may be that you have already found this but it is the go to place for information and I think it would be fair to say that Hemianopia (being 'blindness over half the field of vision) is one of those visual defects which might preclude him from getting his licence back. This does not mean that his vision wont improve but it is worth bearing in mind that the DVLA's starting position is that Hemianopia is not acceptable.
With a little searching you will find (I think on the quadrantanopia thread here) attachments to my comments that show the esterman test results I had at Specsavers and with a consultant opthalmologist at my local hospital. The results show the areas where I had no vision and these were described as homonymous quadrantanopia. If you have quadrantanopia where the centre of vision seems reasonable then I think this is one condition where they will consider the 'exceptional circumstance' rules, of which I wrote earlier.
A little research will help manage expectations and perhaps give you some comfort that things can move forward but if he has only half his vision then I think some improvement is required before moving forward. I hope the second test goes well next month. Keep us informed!
Welcome to BTG - yes, everything you describe is very common after SAH and, for some, does get better with time.
Let us know more about yourself and the circumstances of your SAH - it's not just that we're nosy it helps us get an overall picture of you and your recovery - and helps newbies when they join to relate their circumstances and recovery.
I just found BTG. What a great chat room! Thank you everyone for sharing your experiences! I had my SAH on April 21, 2020 (4 days before my 42nd birthday).
I am experiencing many of the same symptoms that are discussed here. Headaches, neck pain (occasionally), cloudy short-term memory, dizziness & head pain when bending over.
I do notice great benefit from staying hydrated and taking frequent walks. My head definitely tells me when I have over done it! Ah, stress definitively revs up the headaches. I am really trying to focus on managing stress!
I still have very intense headaches several times a week, nausea, and of course anxiousness that I could be having another SAH every time I have a head pain.
Very glad to have found BTG, and the opportunity to talk with people that actually understand the SAH recovery challenges.
All my best to each of you!