Hi all I thought I'd give an update as I'm getting quite frustrated. I had the video consultation with the surgeon in Cardiff which I felt went well with agreement that I would be progressed now that things are opening up again. He said that I should go in just the once, no pre op appointment etc and could expect a call over the next week regarding dates.   After waiting two weeks I send him an apologetic email (I didn't want to keep bothering him) asking when I could expect this call as nothing had happened. He sent me a really long email back saying he hadn't said that at all, that I would have to go for an outpatients appointment to be measured for the catheter and that I had clearly got it wrong and that he hadn't said that I would be going in fairly soon. I even made him repeat on the call that I could expect to go in over the next 4-6 weeks. We're now 4 weeks later.    He made me feel really stupid, like I'd got it totally wrong. I wrote stuff down during the call so I knew I hadn't but the dismissive manner made me feel like I was again left hanging.    He did reassure me though that if anything happened they were fully able to deal with the fallout! Well that was reassuring - not.   So, now I'm back to square one. I considered phoning PAL's but haven't. I can't quite bring myself to speak to the GP, I feel now that no one really cares about this and I just have to live with it.    Is anyone else experiencing this sort of thing?    Thanks Lynne 

Hi there   Keep well hydrated, give your Doctor a call (I know you said you cant visit with Covid19) but call and speak to someone about it they're doing more phone consoltations anyway..   Echo voice I get this when my ears are full for me since the SAH I produce too much ear wax and it builds up...   Take care, stay-safe.    

Good morning, Jess!  THANK YOU!  I am so happy for you and your family.  Thank you for sharing this; my daughter is still looking forward to starting her family (and hoping I'll be around to be the grandmother), so this is very encouraging for both of us - and, again, I am SO happy for you!  Best wishes to all of you.  alexis

You need to check with your Dr still though just to be sure xxx   That family photo I had both children after my sah the one is now 16 the other 12 so you can still live a normal life xxx

Thank you for this info, Jess.  Since you've been dealing with it for 18 years, that helps relieve some of my anxiety.  Thanks to your advice and that of another poster, I'm going to step up water drinking, rest more, and focus on blessings!  Thanks for sharing your thoughts and the family photo - VERY encouraging.  Best of luck to you all!