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By registering with us, you'll be able to view our forums in full as well as discuss, share and private message other members of Behind The Gray. Why not join us now?

Forums

  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 22,844
      posts
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

      4,875
      posts
    3. Subarachnoid Haemorrhage Polls

      This forum allows members to post a question on Subarachnoid Haemorrhage matters which should also include a Poll. All newly started Polls will be subject to Admin and Moderators approval before they appear on this forum.

      276
      posts
    4. Stroke Discussion

      For all other types of stroke and childhood stroke

      677
      posts
    5. Carers Support

      Discussion for carers of an SAH or stroke survivor.

      3,359
      posts
    6. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

      1,242
      posts
    7. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

      971
      posts
    8. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

      70
      posts
  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

      1,331
      posts
    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

      10,401
      posts
    3. Driving After SAH

      Sharing experiences of getting back to driving and useful suggestions and tips. 

      264
      posts
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  • Posts

    • Thank you for your insight and congratulations on nine years.  I also wish your week goes well...   Best wishes, Jean
    • Congratulations Noah on your nine years post SAH this week ! Thank you for sharing your experiences and hope this week goes well for you.   Take care  Tina xx  
             
    • I thought I was going to die after mine, first the bleed then ventriculitis, followed by UTI and then Sepsis which kills most people !! A year later another op for shunt which awoke me from my dream world. 
      I could have felt sorry for myself but I was so glad to be alive and see my Daughter and husband xx   She/Daughter found this site and I came on here and instead of feeling sad, I spoke about my headaches to others, and found there is a life after a Bleed and all the above.    I know you are feeling uptight as it comes out in posts, I think after a bleed they fix us up and off we go.  We have nobody to pass our worries to.  So a site like this is brilliant for talking out anxieties and whatever upsets you/us.  But we are none of us Doctors and we are here to lend an ear to those who need to talk.     Sorry you got no help at all.  We are, none of us Neurologists,  just people who know what others are going through.  Been there got the drill holes in head and scars inside of us we live with every day !!   Our family went through it also !!     l wish you all the best and hope you can get rid of all that ails you.  But if you need to give vent about it we wont give up if you do not also xxx   Regards WinB143 
    • Agree with Super on this one - you sound like you are doing way too much.  I'm 12 years post SAH and if I was doing all that you're doing, I'd have an almighty headache too.  Most of us I think, have been cast aside once we're physically mended - it took a call to the crisis team from husband to get a doctor to look at me over a weekend and the my GP immediately referred me to a counsellor.   As for the not being able to take painkillers, I really feel for you there - but these could be stress headaches - have you tried a cold pack on the forehead or the back of the neck?  These work wonders for me when the painkillers don't touch the pain.   The counselling - definitely recommend this route - I was all over the place emotionally after my SAH and decided on the counselling route rather than the drug route - cannot tell you how amazing it was to verbally off load my fear, anger and somewhat guilt to someone who was not emotionally attached to me - the ease on the headache front was amazing - literally like a load had been lifted.  Try it, before dismissing it, you might be pleasantly surprised and somewhat relieved.
    • I know I cannot give medical advice. But I have been a primary care doc for Almost  20 years. I see same patients again and again for 12 yrs so I know them very well. It is very different from when people come in from the street to see you once in er or urgent care for one issue. We grow old with the patients and follow them.   As much as you think you don’t need help, I think you do need plenty of help. I know psychiatrist have very limited time in this great system and cannot give you much time. Thats why you see a therapist. If one doesn’t work for you, see another. Also you need to have a calm mind and not over think things. Then all the symptoms get worse.    I would also recommend breathing exercises. It focuses the mind to have one pointedness so it is clearer and you won’t create stories. Also recommend this book called finding peace in a frantic world. Psychologists wrote it. Thats my two cents. Psychologists will not help with headache but they will help with stress causing the headache. Goodluck.
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