jules75

Gosh,very harrowing to read,so lovely to hear of her good recovery and going back to her job,acting on stage . Mr lovely Patel,my surgeon,my hero.Yet again he's performed wonders bless him. So jealous of her going back to work it's the one thing I long to do.

I really cannot believe a person could treat you so horrible,what a pathetic excuse for a human being.I would never in a million years treat someone like this. Anew member of my flyball club has also had a stroke and she chose to not tell her employers when she started a new job,for exactly the same reason.Sorry I have no advice to give you but try stay strong.

Jules

xxx

Jules - I done the bath thing and flooded my bathroom back in March this year, just before I went back to work! Luckily had lots of clean dry towels on my towel rail to chuck on the floor to mop it all up, and am in a flat but no-one below my bathroom thank goodness!...

Awww bless ya that's quite funny.I hope you don't mind me having a chuckle :oops:.At least it may be a comfort to you that you're not suffering this alone.It'll get better over time,in the meantime....please try and remember that you've turned a tap on :lol:

Jules xxx

Hiya all,just to let you know we've been in the Yorkshire EVENING (this time) Post....we've had media Co's chasing us already to help us go forward and we've had Look North,our local News programme approach us. James would like to take it steady so we get across exactly what we want as far as raising the awarness of Stroke's in younger people,we want to organise a fund raiser to start with but have no idea,at the moment,what to do.So if any of you guy's have any idea's what sort of thing we can do,post your thought's to me and we'll get the ball rolling

Here's our feature,excuse the cheesy picture http://www.yorkshireeveningpost.co.uk/news/Wedding-dream-of-Leeds-stroke.6610812.jp

Jules xxx

Hi John,gosh it must be frustrating,I'm fortunate that my short term as well as long hasn't been effected, the only thing that I slip up on is when I ask Mum what she's planning for tea then I'll ask the same thing later and I know as soon as I've opened my gob I've already asked her. She laughs and I say "I've asked you that already".I've always been rubbish with people's names but tell me a dog's name and I'll always remember,I used to/still do train dogs for the sport of flyball. In fact I have a better memory than my James.he's rubbish as are a few others I know. I sippose I'm saying don't be too hard on yourself you have a good excuse many others don't . I think it's inbred in humans to begin with so having this to deal with makes it so much harder anyway...lol. I have a few friend's from my stroke group who suffer major forgetfulness like running a bath, forgetting they've done it and flooding the bathroom,going out and forgetting to lock the door.They also suffer the same with not recognising people or more so forgetting their names. Don't worry too much about it,just learn to deal with it,don't get frustrated with yourself cause it'll just make you feel worse.You'll be doing something one day and the name will just pop into your head.

Thanks guy's to you all.We've just had Yorkshire EVENING Post come too,pretty much a similar interview but James managed to plug his 'Strokes can happen at any age',slogan.He managed to plug his Julie's Update website I managed to plug BTG here's hoping they mention it. The lady who interviewed us said her Editor is keen to make the awareness so that's a good bonus we've got the Post behind us.It's going to be front page in our local newspaper,Pudsey Times too,this is out a week on Saturday in the Post so i'll put the link up here again.Hopefully this will start the ball rolling on our campaign.Next stop local T.V if we can get a story on Calender or Look North News then we'll go national with our campaign .James is VERY passionate about this,listening to him talk to the reporter.

Great pic Julie & a lovely piece in the paper too, good for you both for highlighting this

Thanks Gill,glad you think it's ok.

xxx

:lol: Yes Sarah that's our plan and my personal goal is This Morning...lol. Well anything to help raise the awareness can only be a good thing can't it ? lol. This is the link of our appearance,excuse the picture of us well me...

http://www.yorkshirepost.co.uk/health/Strokes-can-strike-at-any.6601068.jp

Ju xxx

Julie

Sounds good! Well done James! (He is fab, where can I find a James I wonder??... )

I hope they get the message across well and do a good write up of your story, and condense it in the right way, as it is a long journey you (and your family) have been on.

If possible can you scan in a copy of the article and provide a link on here? for those of us who may not be able to get hold of a copy...

Kel x

What a brill idea,James will do that.I have no idea where to get one of him,I can try clone him for you but your not having mine.:lol:

Don't you worry if they do a pant's job my James will be straight over there lol. He certainly doesn't stand for nonsense hee hee.

xxx

Hiya a big warm welcome fron me I missed your post until now,I'm a newbie to the site too.I can't believe what you've gone through,It's so scary isn't ? Anyway a big welcome from me.

Jules xxx

A couple of weeks ago my James organised for the Yorkshire Post to visit us and do an article on what I had suffered and what he/family and friends had also gone through.He wants to make people much more aware off Haemorrhage/Stroke and that a Stroke doesn't take age into account.He want's the illness to receive much more press coverage and get rid of the stigma that the older age group are the ones that suffer a stroke.He always says Haemorrhage/Stroke is not seen as a glamorous illness like Cancer so fails to get the attention. He's not being disrespectful when he say's this at all,it's just something that really makes him very mad after going through what we all have and the lack of support we got t.My Physio told me last week that the Stroke Association gets 4 nillion a year in funding.I thought that was a good thing until she said Breast Cancer got 40 million a year in funding. Oh and he want's to plug 'Julie's Update' lol.We've got Yorkshire Evening Post coming to interview us on Thursday too.I thought they were part of the same set up with the article interview but I'm very wrong....Two seperate entities,it appears lol.So if you can get the Paper,look out for us and excuse the cheesy pictures

A big warm welcome from me,Tina. I'm very new on here too,I already feel I've been here a while as everybody is so welcoming.You will have massive support here from people that understand what you've been/going through. I'm very impressed you are back driving and are working.They're both major goals for me.I can deffo understand the fatigue side I used to suffer so badly but I'm getting there now,like it's been said,it just takes time.

Jules xxx

Karen, yeh, it is a small world!!

Julie, I read another 2 chapters of your story (very) late last night and you should tell James that he has written it better than any "best seller". Just a shame you have all had to go through what you have over the past two years - but despite all, there was some humour in his blogs which was nice:-D Hope your dogs, (Brooke and Murphy?) are still keeping an eye on you;-)

"I'm a celebrity", yes remember watching hours of it whilst in there - it did help pass the time quite well, although I thought it quite an expensive form of entertainment - I always seemed to be topping the damn thing up!!

Think I have about 4 more chapters to read - so look forward to that.

Bye for now,

Sarah

Gosh you've been busy It is an addictive read though,bless him he's written it all so well. To have taken time to write these chapters after an exhausting visit to the hospital. My Brookie and Big Moo Man, as we call him lo,l are still utterley fabulous. Brookie is sat by my feet now as I type.We were at a flyball tournament yesterday and they both won their division's, racing.Fab little doggies,they have really helped with my recovery,especially little Brooke. For all those who have never heard of flyball have a look at YouTube,it's easier than me explaining lol :lol:

Mr Patel at Hallamshire..... Yeah , me too! He is not just a great neuroligist, but a lovely person too. He has really helped me, referring me to an amazing neuropsycologist when I was at my wits end, 2 years after he saved my life. I am over 4 years since my SAH and life is good now, thanks to Mr Patel.

Love Nita xx

WOW that's brilliant Nita and so nice to know he was great to you too and you hold him in the same regards as me,wonderful man.I wonder how long he's been there. All of us Patel folk should get together and send him something to let him know we all met up on this forum and how much we all think of him hee hee

Hi Jo and a huge welcome, I am a very new member too and I must say everyone has been so welcoming and it really is good to be with people who can relate to me and understand.You sound like you've been through it. You do sound strong and positive,I'll never forget what a nurse told me which was Positive,Mental,Attitude,that really does work well it has for me anyway . I hope you continue your recovery well and look forward to chatting with you.

Jules xxx

Gosh Sarah that's so amazing isn't it that we've both been in at similar times ?. It's a shame we didn't get the oportunity to meet through all of our jouney's.Who'd of thought that we would meet on this forum having so much in common and being in the same hospital/building at the same time. Thankyou Karen and everyone who have warmly welcomed me to BTG. This really is a wonderful place and comforts me that I can chat to you all who understand the illness (or inconvienience as I call it.Lol.

Hi Jules,

Yes, those lifts, lol. I have been back a few times since then and they don't change - still takes a long time for one to arrive, then it's usually full and then when you do get in one, you have that nice droaning voice:roll:

I have been trying to recall my time in there, but am struggling to even picture who was in the bed next to me and that's despite me being quite "with it" during the 12 days I was in.

Don't know about you, but I still see Mr Patel on a fairly regular basis and am eternally grateful to him and his team for sorting me out.

Anyway it's nice to have met you on here at least:-D

Sarah

WOW Mr Patel,the most wonderful man in the world as far as far as I'm concerned,he's sooo lovely.I hold a huge regard for him in what he's done for me and the way he was with my family.I'm due to see him in the next month or so as he wants to see how I'm doing after I was admitted a year ago,being so ill on the tablets I was prescribed after my op.

Oh yes, the always busy lifts especially when you were in a wheelchair.My poor family always took ages to get one at visiting times because they were so busy. I was watching I'm a Celebrity on a portable the night I'd had my op.I was fully aware of my sourounding's but remember absouloutley no-one in the beds.Maybe you were in a different Bay to me.It's so nice to be able to talk to someone who I can relate to on my journey in hospital.I've just told Mum about you and she was gobsmacked Oh and I got a lovely kiss on my forehead and a cuddle from Mr P, bless him.

xxx

A very warm welcome Jules,

I started reading James' account of your amazing journey earlier this evening, but found I couldn't stop reading it. He has written it so well - I have not quite finished reading it all, but I became a little emotional and covered in goose bumps at chapters 30/31 because I too was on

N1/2 in the Hallamshire hospital, Sheffield on those same days, having had my brain operation on the 18th November, 2008, the day before you had yours. I realise that your situation was far more complex than my own, but to think we were on the same ward at the same time is quite amazing.

I will read the rest of your story soon,but in the meantime I wish you well in your continued recovery.

Sarah

Hiya Sarah that's just amazing that we were both in there at the same time, going through the same thing and have now met up on this brill forum.I wish we had got a chance to speak, in that yuck time of November 2008. I was in the same wards and remember clearly those awful lifts with the droaning voice,thinking about that just makes me shudder. x

Thank you so much everybody for the warmest of welcomes . I know I have found the right place to come when I need to talk to someone. xxx

|Thank you all for the lovely welcomes I'll be a regular visitor on here now I know where you are .Oh yes,be warned,the chapters add up to loads lol but yes it does make me appreciate what the family and I have been through. I for one tend to forget how bad Iwas in the early days,so it's great to be able to look back on the blog's.Thank you so much for writting and keeping them all, James xxx Yes I and my family have really gone through the mill over these past two years.I'm sure you all have too,I'm looking forward to chatting with you all and this is a great forum/website.

Hi,

I'm Julie and I live in Leeds and suffered a SAH in 2008.

As with everyone's story mine isn't exactly straight forward either. I suffered the stroke 3 weeks before my wedding in 2008 and ended up in Doncaster Hospital initially and within a few hours was transferred to Sheffield Hallamshire where they operated on me and inserted a shunt to relieve the pressure that the escaped blood was causing.

Eventually I was discharged and returned home in September. The doctors then found an AVM (Arteriovenous Malformation) which is a tangle of blood vessels in my brain along with an Aneurysm which was positioned next to the AVM.

I've had my Aneurysm clipped and the AVM has been zapped with the Gamma Knife at Sheffield Hallamshire hospital. I just have to wait for a few more months before they look to see if the AVM has closed down.

The SAH has left me with a weakness down the left hand side including a blind spot in my left eye.

My fiancé James started to write emails to friends when everything happened in order to inform them all of my progress. He's just uploaded all his chapters to www.juliesupdate.com. I can't tell you how many ridiculous things have happened throughout the last few years, I'm just so pleased that James kept a diary as I can look back and appreciate how far I've come

Jules xxx