bay

Hello all,

Thought I would post this really to get advice and see if anyone else suffers like this x x

A week ago I became really dizzy and needed to lie down, felt so dizzy I felt sick x x started to cry (which I know does not help) saying why me why cant I just move on from all this x x My sah was 4 years ago x x x

Now a week later I still feel rubbish x I have been to doctors and he said it is some sort of ear infection and it can effect alot of the body he called it something beginning with L x x I have headaches and pains in my eyes x x back ache all down my spine and around my neck x x it feel like my head wants to explode and I just dont know what to do I sleep and I still feel dizzy I have been feeling like this for a week and also when I stand up feel like I am going to fall or black out x x x I keep thinking what if it is this or that x so someone tell me how every ache or pain I have do I think I am having a sah or there is some complications x x I really want another baby but really dont feel strong enough when I feel ill now x x x I want to go to work and come home and be a mum x x normal life x

Does anyone else ever feel like sah rules each day ? x x

This happened 3 weeks ago also causing me to have time off work again x

Also a question for the ladys what do u feel like when it is the time of month x x

Sorry to rant just dont know who to talk to x x

lots love

donna

xxxxx

hi donna,im 2 yrs in now,and iget to a stage where i think im okay then iget the headaches,then the dizzys and feeling sick that i have to go lie down but this as just been lately,the last few months but ive had my 2yr scan and everything was ok andv they were happy with how everything is and they are quiet happy to discharge but if i do have problems in the near future, touch wood,i would be seen straight away,but i can see where your coming from,when you get symptoms like this you fear the worst at all times like you said sah rules and i think it will always rule because its always there. as for time of the month,im at my worst just before and when coming off especially feeling sick and headaches. another thing donna for your monthlys keep a diary of every month when you get these symptoms and keep doing this,then you get these symptoms you can look back and say yes i had this last month,i go on a website called cyclespage its free but you can put everything on there its a calender and you can note everything down its quite straight forward,you might find that your periods are contributing to these symptoms.hope this helps.take care bay xx

Hi there everyone,been 20 mths now since cerebral aneurysms [bled both coiled]the last 2 months ive had this sort of pressure on chest at the top near collar bone,not an heavy pressure like someones got there hand there,then pain off the shoulder for a split second then it goes,feeling really tired where could fall asleep standing up and feeling sick,this is really getting me down,i didnt want go the docs cause i have issues with them,but ended up going,hes sent me for a chest xray yesterday and sending me for an ecg on wednesday,the thing is if i have angina would they pick this up on a ecg,i just feel so low today,i feel as though i want go a an e to check my heart out,i thought i was getting over the brink of everything and this happens.ive got an appointment with my consultant on tuesday should i mention all this with him,this appointment was made before all this was going on. These are my symptoms : Light pressure top of chest,feeling sick,dizzy,neck pain,headaches,tired,pain off and on down arm please message me back.bay

hi everyone again ,forgot i wrote this post lol,but went to see consultant and he had a look at the back of the eyes after explaining everything ,he said there was no pressure there and that i would be having a mri in may this year,my ecg was normal and my chest xray came back normal as well.so alls i can do now is wait for mri,i just thought it would be getting easier now but i seem to be getting more neck pain ,jaw pain i think its tmj but hey what do we know,i hate going to the docs as i was going there for 3 years with headaches ,dizzyness and i kept stating that it was the symptoms and that it wasnt in my head,in theory i felt normal apart from the symptoms then i get rushed to hospital wih 2 aneurysms and thats why i dont like going the docs.thanks everyone bay

i am just wondering how to deal with the strange and seemingly thoughtless comments that others come out with?

I try not to be irritated or disappointed in front of the person but then go away and fume about it to myself later. I'm sure there must be a better way? A memorable one was 'oh, you're lucky i wish i could get 6 months off work' and the one that irritates me the most is also possibly the most common one - 'well my brain doesn't work properly either so i wouldn't worry yourself'.

I realise that people don't know what to say and probably don't know a lot about brain injury, i certainly didn't until now, despite the fact that it appears i am the 3rd person in the family to have (and first to survive) a sah.

I keep telling myself that these littles niggles really aren't important in any way and that people are just trying to be nice. Have you all had experience of this? What do you say when some well-meaning colleague tells you how 'lucky' you are?

Dawn x

hi dawn,yes i get this, one was from my sister saying ;oh i wished i could stay at home,this was a year after it happened,i just turned round and said ,i would rather go work and be normal than stay at home,i could of seriously smacked her straight in the mouth,then her other half always ses,when i say im bored ,he turns around and ses go get a job then,and i could smack him aswel,people seem to think when they dont see bandages that were alright,but this isnt true,im 20 months in and im still getting headaches,aching,creaking ,cracking you name it still getting it.i was actually talking to someone who is 4 yrs in ,he said it does get better ,but he to as headaches and mood swings,i did emphasise in that because my moods are really bad, aswel as my anger,the thing we cant always say want we want,well i do but i havent got many friends now lol and i mean not many. Take care bay

Hi there everyone,been 20 mths now since cerebral aneurysms [bled both coiled]the last 2 months ive had this sort of pressure on chest at the top near collar bone,not an heavy pressure like someones got there hand there,then pain off the shoulder for a split second then it goes,feeling really tired where could fall asleep standing up and feeling sick,this is really getting me down,i didnt want go the docs cause i have issues with them,but ended up going,hes sent me for a chest xray yesterday and sending me for an ecg on wednesday,the thing is if i have angina would they pick this up on a ecg,i just feel so low today,i feel as though i want go a an e to check my heart out,i thought i was getting over the brink of everything and this happens.ive got an appointment with my consultant on tuesday should i mention all this with him,this appointment was made before all this was going on. These are my symptoms : Light pressure top of chest,feeling sick,dizzy,neck pain,headaches,tired,pain off and on down arm please message me back.bay

hi kel,thats weird,my annies were middle forehead and right side and the pain is on its left.my mri are all up to date,ive been feeling like this for a wk nearly,i hate goin the docs,if it gets worse i think its a trip to the a an e. x

Hi everyone,its been a while since been on here ,its now 19 months since having ruptured annies,having good days and bad ,sometimes i seem to think the bad days out weigh the good at the moment,my concentrations as well as memory,feeling sick most of the time,but my question is the past week ive been feeling sick ,headaches at the back and forehead,eyes aching,and im getting this weird sensation like my vein in my arm and hand feels tight and on top of foot,as anyone else felt this.im all up to date with mri and cts,everything is ok.please help me,ALSO IM GETTING ALOT OF CRACKING NOISES IN MY NECK

Hey there

I'm nearly five years in and have had two MRIs in that whole time (apart from the one when I had my op). I was discharged 18 months after my SAH. All I have been told by my GP is that if I start to feel unwell and feel its SAH related to go straight to A&E and they will have to take it seriously because of my history.

hi skippy,thanks for reassuring me,i have had about 4 mris 2 angios,and had a few cts,its just scary to know that your on yer own now,and having the headaches all the time really gets me down,but like you say if anything doesnt seem right to go to a&e,which i went a few months back because of headaches and they sent me for ct straight away.im glad im on here,its so reassuring. thanks everyone x

Hi All,

My concentration is getting worse, anyone else suffered like this. Thought i had improved a lot now 15 months on since SAH, ive had to go on sick again only been back since february this year.

hi lemonade,yes ,its been 14 months for me ,and just lately my concentration has gotten worse to the stage where i think im going to pass out if i concentrate to long,it knocks me sick,and the tiredness seems to be alot worse as well, i feel as though i could go a sleep on the spot it maybe that ive been on hols and soon as we got back started decorating ,i just havent stopped in the past few months. bay

:frown:hi everyone,not been on for a while ,i went to see consultant in oct 2010 and he said about the brain damage at frontal lobe and that i would have a angio b4 12 months are up,but i hadnt heard anything from hospital and my 12 months was may 2011,but in the mean time i went the a and e 2 months ago with really bad headaches which freaked me out so they took my bloods and sent me for a ct scan and everything came back ok,they also sent me for a mri scan a few weeks later which came back fine.but this wasnt under my consultant. the other day i phoned the consultant and spoke to his secretary and she looked at my notes as i explained about having this angio,she told me that i had been discharged and there was no other follow up,that everything was intact and that there would not be anymore bleed from these aneurysms.my question is, i thought every 12 months you suppose to have a check up to see if everythings okay,and that if the coils settle down that you may need more ,but do these usually settle down in the first 12 months and thats why they keep an eye on you more.plese help as im getting really anxious about this. bay:confused:

hi everyone,has anyone heard of this vibro machine ,where you go on it for 10 mins a day and its like a hour long workout,you just stand on it, i brought one went on it yesterday it was okay because i did ask could you feel it threw your head ,i know that sounds stupid but i just had visions of my coils falling out,has anyone been on one and how do they feel or can we use them. i did feel it in my head but i think its because i was thinking of it. anybody have any answers please. bay

Hi Bay, I'm no doctor either, but I am a medical secretary in a hospital (or was until my SAH!). I would be reassured that the CT is clear as are the bloods. I would make an appointment to see the GP to discuss things. Anxiety can make our bodies do strange things, and you are very very early on in your recovery, I seem to remember. I was in hospital for 6 weeks due to dizziness, sickness etc. Apart from that, I was really not very "disabled" by my SAH, apart from cognitive issues, but still, I needed a lot of sleep and bed rest. As soon as I had visitors or did some light physio I was exhausted and sick, so it could just be that you need to rest more than you think.

My OT (at the outpatient rehab place) suggested meditation, and I do that with the help of a meditation podcast downloaded from iTunes. Maybe you could try it?

Take care and try not to worry.

Edited to add: I checked your SAH date - was it last year, is that right? I'm 13 months post-op and I STILL get exhausted, dizzy, sicky if I do too much. I hope you can discuss it with an understanding GP. x

hi jaykay,i just thoughtb i was getting better then this happens,but it doesnt surprise me this anxiety, cus i have been worrying this past week but thought i was coping well. i just hate this feeling of passing out what is that about,now that really scares me. thanks

i totally no what you mean and i also no how you feel about going back to the doctors i hate it but did u have the tingling when you where there or is this new im not a doctor or anything but tingling is not good. If some doctor had there way id still be sitting at home with not no ing anything if you dont want to go back even ring your GP/NHS direct you cant ignore it

donna

hi donna, yes i had it when i was there, i told the doctor, b4 the ct and bloods she did all these tests, the balance,reflexes, everything, but bloods still come back okay,im beginning to think this is anxiety,im taking pain killers and they seem to be giving me more of an headache ,anyone else feel like this. bay x

hi donna, they did all the tests,and everything was ok,they did the ct then the bloods,from infections to kidney functions,i think im to embarrassed to go back to the docs after having everything done.

the thing is i thought i was doing brill,thought i was getting back to normal and then this has happened its really knocked my confidence, for the past few days ive been lying in bed and i havent done this for a long time,i just feel as though i could cry but i cant if you know what i mean.

Tingling in your arms and legs is NOT ok go back and get seen again

Take Care donna

hi donna, they did all the tests,and everything was ok,they did the ct then the bloods,from infections to kidney functions,i think im to embarrassed to go back to the docs after having everything done.

hi everyone, here again,went the hospital yesterday with this headaches,i just didnt feel like myself so i phoned the ward i was on b4 and they said to go to the a accident and emergency, they did a ct scan ,took bloods everything came back fine, the thing is im back home now ,but i have this tingling in my legs and arms, feeling sick and i feel as though im going to pass out really freaking me out , i know everythings ok in my head but what is this its really scaring me.i dont know if its anxiety or what ,please reply x

Hi Bay,

SNAP I have had a REALLY bad period this month and the thought of fainting is my biggest fear it even leads to massive panic attacks x x and like yourself this month I nearly phoned for a paramedic but I just thought I cant phone them everytime I feel weak and feel faint so agaion like you I just went to sleep to wake up feeling 10 times worse x x

I am only 31 and want another baby (which aqlso worries me how I will feel) x x I dont want to go on the pill or anything like that because I am trying to loose weight and I know I will just put even more weight on if I did x x

some months I feel fine but some are like a nightmare and like others takes over at least a week of my life x x x

I am moving doctors soon and going to talk to them with regards my periods so will let you know what they say x x

keep smiling

donna

hi donna, been docs yesterday about these headaches, there still bad, he did a test on me and said its nothing to do with annies, he seems to think its pmt and that i should keep a diary and note everything down about mood swings ,headaches, aching and then see if theres a pattern , im in bed now, just hoping this headache will shift. thanks everyone aswel,it really perks me up when i come on here,cus no one else understands. xx

I had a tubal ligation in 86. I do not have the coil, but several years ago my GYN suggested it - so I think it's safe regardless of sterilization. Funny you should mention feeling as though you may pass out. This is what happened to me several days ago - but this time I did pass out! Since the SAH, all previous pre-menstrual problems have worsened, including the feelings you get just before you faint. My neurologist told me as soon as those feelings start to come on, sit down immediately and put your head between your knees OR lay flat on your back. Coming home from the hospital after the SAH, I didn't have a period for 3 months. I was hoping the SAH had thrown me into full blown menapause!!! NOT Had my hormones checked about 6 mo. afterward - all fine. So still with the hot flashes, night sweats, cramps, and emotional drama! Here's to being a woman

thanks winter,nice to know others are going threw this as well, i think its just reassurance we need more than anything, i think im going to come back as a man its easier lol

Hi Bay,

I'm the same and can write off about 10 days out of each month and dread it! .... My periods stopped for about 3 months after the SAH and then came back with a vengeance....extremely heavy as well. (was found to be iron deficient, which wasn't helping) The fatigue kicks in, dizzy spells, headache and just feeling generally yuk and low! I'm 49 this year and am also wondering whether the menopause is starting to kick in ... Might be worth your while to get yourself checked out with your GP and have a few blood tests done.

Know how you're feeling and I've also wondered about having a hysterectomy! xx

thanks karen,it just feels strange in my head and thye feeling sick that comes in waves,i bet i will be fine by monday.thanks x

thanks everyone for the reassurance, i just thought things were getting better for me ,but like my sister said ;im doing to muc h and that i should calm it down, i think if the pain wasnt in my head, i wouldnt be as bothered, i just feel as though i get to a stage where im going to pass out and that really does frighten me,so in a months time ,i come back on here with the same problem someone please tell me that i was like this last month.lol

Hi All,

I thought I would post this and get feedback and hopefully some information that will help others with questions.

I am coming up to 3 year anni in April and emotions are STILL all over x is this something we come to terms with or something that we have to live with x x

At my 1 Year mark I was at the point that I call cracking up couldnt think straight and just didnt know who I was anymore or who I was going to become x x

I was put on anti-depressents at this point and was changed a number of times to find the right one and also referred for councelling ( which I found did help me alot) mainly come to terms with what had happened x x after about 3 months I felt myself coming back and getting back to work helped x x

2-1/2 years in I was re-referred for post traumatic stress and to help me deal with my anxiety and panic attacks........I am coming to the end of these sessions and I am feeling really nervous but really want to overcome all of this and move forward but I feel something is stopping me (Does anyone ever feel this way)

I feel really lonely again at the moment family are getting with their lives and friends are none existent at the moment I just struggle letting anyone in after loosing all my so called friends after sah x x

I have been having a few bad days lately feeling dizzy which is making me feel really sick which I do believe is dragging me down abit plus antony is at work alot leaving me and jack on our own x x

I hope I am not rambling on x x

On a positive note I do love life and thank god everyday for what I do have x x my family are my world :-D:-D

I just want to know how everyone is getting on in their recovery x x and even though it is sounding like a negative post I must say it does get easier but it is a long hard process x x

love to you all

donna

xxxxx

hi donna,im nearly 10 months in and i have my good days ,but lately a lot of bad ones to,i use to have my niece here everyday cus she was on maternity but shes gone back work,and my daughter goes college 3 days a week ,so im left alone, i keep my self busy so i cant think, im having a lot of headaches just lately and cracking in my head whats that all about, freaks me out. i just feel as though this has happened,everyone as gone back to do there usual things again and were sort of left in a time warp, i go up to the shops and i speak to people from before this happened as though i saw them last week, not thinking it was over 10 months ago, take this one woman i saw last week and i said ;have you still give up smoking then; she said ;****** hell dawn that was months ago, no ive gone back on them ,but its that sort of thing im talking about ,because we dont see people we talk to them as though we saw them last week but in effect it was before this had all happened, its weird. take care bay

:frown:hello ladies,just wanted to know how many of you have a bad time round your periods, every month i dread it ,my headaches are really bad, i feel sick ,cant sleep at night ,usually its the build up to my period i get the headaches but this month its been during my period, the other night it scared me that much that i was going to phone for paramedic then i thought ,im just going go sleep if i dont wake up, i dont wake up,it just got me down that much, my partner said im the same every month, but as you all know ,we forget, i was thinking of going to gp to see about hysterectomy, ive already been sterilised, but cant take this anymore,ive been really good the past few months ,getting out ,painting the fence ,just doing normal things but its just when i come round to my periods, anyone else feel like this. headache, nervousness,feeling sick,eyes aching,neck aching,aching around temples. by the way i had 2 annies 1 which ruptured may 2010 both coiled, had follow up at 6 months everything ok, just waiting for 12 month in about 8 wks. thanks for listening. bay

Bay,

I know exactly what you mean. It is so frustrating.

I have been told that I do not appear to have suffered any specific damage from my SAH and vasospasm however I still suffer episodes of fatigue, and some short-term memory. I am also more inclined to face things head-on now, whereas I might have just grumbled about it before - I think I would rather get it out in the open rather than stressing internally about things.

I know Ern has mentioned many times about the benefits of yoga - perhaps he will see this post and tell you about it. I have only tried it once many years ago, but can imagine it would be a good thing to try now, because of the slow movements, concentration required and the need to increase your core strength for balance.

Have you tried getting some counselling via your GP? I have mentioned before just how beneficial I found counselling. It really helped me to start to come to terms with things.

Kel x

im still waiting for a neurophycholigist to get in touch,my gp wrote to the hospital about 4 weeks ago, im still waiting for a reply.i think il go see what yoga looks like ,because im not to good with concentration , i always get bad headaches.

Hi Bay

Sorry to hear you are not feeling too good. Like Jen said it is always best to have a word with your GP, as it could be over-doing it, or it could be anxiety, but it's always best to get checked over.

Have you had any follow-up as yet since your SAH?

I too had lost a little bit of weight whilst in hospital, and then put loads on within a couple of months after being discharged and 'finding my taste-buds again' I do believe!

I decided to start losing some weight back in March/April time last year and lost half a stone before joining Slimming World mid-June last year and have since lost a further 2 stone with them.

I know you are suffering financially, but if you have a local slimming group you might be able to see if your GP can refer you? You might even be able to get referral for a local gym too? (which could possibly be free for you or at a lower cost) It is worth asking your GP about it.

Good luck

Kel x

hi kel,yes i had my check up in oct just gone ,all my results come back fine ,everything is as it is, apart from brain damage at the front where i had the sah,that cant be fixed,hence concentration and memory issues,but i just get so mad at the fact everything isnt normal before this happened, im shouting at the kids all the time ,me and my partner are always arguing and thats not me ,i think i just get scared it might happen again and i think thats why i shout,because before i use to bottle everything up but now i shout,my partner says ive changed, im like jekle and hyde ,alls i want is to be normal and i hate the way people say i should be lucky to be here, but i want be me aswel, going back to the way i was apart from rushing around after everyone.i love my kids and my partner to bits ,ive been thinking of trying yoga, as anyone tried this.

Hi Bay

I to have gained weight. I was very fit before SAH but now about stone heavier. I have only just started to excercise properly now 8 months on. Mine is mostly my middle and legs so just trying to concentrate on that area. I used to get headaches a few months back if i did to much. So maybe your headaches are because your doing to much.

The heavy head feeling i have definately had not so much on forehead but at the back of my head. It is very scary when any different feeling starts but you must stay calm. I keep making the mistake of panic every time any pain starts. Dont end up like me with anxiety which really takes over.

Traci S xxx

thanks tracy,im also bout nearly 9 months in when i get this feeling in my head i seem to ,sort of rush off and take a deep breath ,because i feel as though im going to collapse on the floor ,i think it is because ive been doing to much , ive been delivering leaflets threw doors the past few days as i cant go back to where i use to work,just to make a bit of money. i feel if it was the same headache all the time i wouldnt be so bad ,but i think every sensation we have in our head is always different and i think thats what scares us, or we do have these sensations but we forget. thanks

hi everyone,its been a while since being here ,im having a lot problems at the mo shifting my weight anyone have any suggestions,i dont eat alot but ive put on a stone and half my clothes no longer fit me its really getting me down ,ive been walking a lot, the weight seems to be round my back and legs,also i was washing up and i had this sort of heavy weight on my head it really freaked me out ,im lying down at the moment to see if it passes and my forehead feels tight ,anyone got any advice.my heads sore to touch,i hate things like this happening to me.