I had a NASAH in March 2021 and am also based very near Leeds! I don't know if you've been in touch with Second Chance Headway in Wakefield?
There is a wait as with all things at the moment, but they are a charity specialising in all kinds of brain injury/trauma and have helped me beyond belief, both emotionally/psychologically and physically.
They've helped me get referrals to neurophysio for dizziness and to neuropsychology for anxiety and panic, all through the NHS.
We did pay to see a neurologist last June but to be honest he discharged me even though my problems have not gone away and I have regular 'episodes' that leave me bed bound and unable to function for days.
Through Headway I now have an NHS referral to another neurologist for a second opinion. I really feel your frustration when you have setbacks and feel as though you're going backwards - I've had that quite a bit and it's upsetting.
It's also slightly reassuring to read on here that people whose bleeds were years ago still do experience problems now - it makes me feel this is at least normal and that I don't necessarily need to panic. I'm slowly learning to manage my expectations.
Calling UK NASAH people
in Non-Aneurysm SAH or Perimesencephalic SAH
Posted
Hi Carolyn
I had a NASAH in March 2021 and am also based very near Leeds! I don't know if you've been in touch with Second Chance Headway in Wakefield?
There is a wait as with all things at the moment, but they are a charity specialising in all kinds of brain injury/trauma and have helped me beyond belief, both emotionally/psychologically and physically.
They've helped me get referrals to neurophysio for dizziness and to neuropsychology for anxiety and panic, all through the NHS.
We did pay to see a neurologist last June but to be honest he discharged me even though my problems have not gone away and I have regular 'episodes' that leave me bed bound and unable to function for days.
Through Headway I now have an NHS referral to another neurologist for a second opinion. I really feel your frustration when you have setbacks and feel as though you're going backwards - I've had that quite a bit and it's upsetting.
It's also slightly reassuring to read on here that people whose bleeds were years ago still do experience problems now - it makes me feel this is at least normal and that I don't necessarily need to panic. I'm slowly learning to manage my expectations.
Take care
Helen