prudence

Hi karen thank you so much,foryour reply,Itsl lovely to talk to some one who understands how bad we feel at times,(and how difficult it is to carry on and try to be normal as we were before the sah,)Iseem to get so afraid ITS GOING to happen again,IFELTso much better In the start,was much better with the dog to take it off and go for a walk,(but Itstoo late to get another still got my cat,but IM Getting there,IJUST WANTEDto saythank you,Iwill phone you,as you said, keep well karen ,catch you Later lots love pruexxx

hi Karen

Hello Prue and lovely to hear from you again! ...

I still get the odd "worrying" headache .... like Tina, I take one Paracetamol and one Ibuprofen and the mix of the two, seems to work better for me than taking Paracetamol on it's own. If it gets really bad, then I keep one of those freezer ice/gel packs handy and wrap it in a tea towel and also stick that on my head or where the pain is.... it seems to help....as does a kip!

Hope that you're feeling better soon Prue ... if you feel that your headache is out of the ordinary, then keep bugging the GP and they should hopefully refer you on to your local hospital to see someone that specialises in brain injury.

Lots of love, xx

Hi karen so lovely to hear from you,as you know I have not been on for ages,had a rough patch,Iseem to go down hill after my dog ,had a lunber puncture(could not find any thing wrong)(they could not see behond my coiling )then the headaces started ,they have been bad,which really worried me,its been a job to remember(what to do on the Internet)driving then was a problem but now I amback to driving,and now trying to pick myself up again,(so if i make some mistakes fogive me,)at least Iknow many others suffer them as well,hope you are going on o k ,speak to you soon,lotsof love pruexxx

hi luisa I still do get slight double vision(like you looking up to the a hight and down) I had my patch onfor 7 weeks,(too help with balance,)It certainly does get better as time goes on IM now at 20months,(stress of where the sah wasI know doesnt help as you dont know what is going on,(all of it is so scary) 8 months like you ,(was quite early days) and I was feeling just like you ,desperate ,but rest assured as time goes on ,you will feel much more confident, and accept ,my vision now ismuch Improved,and as time goes on you really will feel better,I STILL GET headaches but do get good days,I wish you well love prue contact me any time if i can help I will

hi tina lovely to hear from you again hope you are going on ok,After the sah most seem to suffer something.(trying to get used to the computer again as i have not been on it and i have almost forgot what to do(i was the same to go back to driving) catch you later thanks again.love prue.

Hi janet thank you so much for your reply(yours is exactly in the same place as mine,) it is all so scary.I have not been sent to any consultant,(I did have a lumber punture) but it did not show anything,(the scary part is you cant see what is happening) was given amatriptolene (BUT WAS TO SCARED TO TAKE IT)so only take paracetomol.so nice to hear from you thaks again. love prue.

hi to all of you,have not been on line for some time,hope you all are recovering well,had my sah 20 months ago,and am doing quite well,back to driving and most normal things one does,the worst thing is that i suffer from a lot of headaches,round the back of the head and over the top,my doctor says that it is in the skull which is seperate from the brain,and it could be coming from my neck ,which is bad ,but that does not stop me worrying,any comments from you good people my regards to michille and karen, and to you all prue

can anyone let me know how they got on with holiday insurance many thanks keep well everyone

how dreadfull,Iwent to the hospital with a terrific headache, and was sent home with paracetimol,(and told Ihad ear infection 4 dayslater In so much pain,(called the out of hours doctor)scan and operated on2days later.(by then my eye had closed on the left.) prue.

I have just sent an e mail as well,just hope this will help other people.

hi Terry my name is prue I had my sah 25 9 2008 and can relate to all you say,(me to was a lot better coping ,then than I AM NOW,) and I am only 9 weeks into all of It,to day I to tried to help with decorations,could just not get Interested,(normally I would love it )I think I would dare to think,(what I would have been like If I had not had the help of this site.everybody has been wonderfull,) and all the support you could possibly,(wish for) others have Improved ,so IM sure we will.(given time ) lots love prue

hi tina I saw my consultant IN october she asked If I had any children, I have 1 son ,49, she said if he wished he could be checked ,I also had a sister who died 3 years ago, age 72 I did not even know what an sah was, (but it was on her death cert.) and I did not know what It meant[( untill Ihad mine ) 3 years later, and when mine started Iwent to the local hospital ,(with a severe headache , they told me I had an ear Infection and sent me home,) gave me 2 paracetimols next day I was worse saw another doctor she said ear plus urine Infection,by sunday (no surgery ) so went to another hospital (out of hours doctor) sent straight for a scan and sent to the neuro surgical unit (in all6 days later was operated on) sah, so I consider how lucky Iwas ,as that was 9 weeks ago to day.( and still did not realise then that my sister had died from that )so some dont worry about it, but I Ihonestly dont know who to believe. I just think how really lucky Iwas (after all the 6 days that I was not dead,) love pruexxx =Tina]Hi Lilnan

My Doctor says it is not hereditary and not to worry about my kids, no test needed......try not to worry ...easy to say i know....good luck xx

Love Tina xx

hi dee just read your post, you must have had your sah about, (the same time as mine ) sept 30 2008. as time goes on , I seem to suffer even more fatigue (than I had in the beginning)And loads more scary pains head wise, but all I keep saying to myself is its to be expected, I suppose,(at the stage we are at )Ihate it all,I was always full of energy before all this, certainly pulls us down. will catch you again lots of love prue

Iknow it's only been about two months since my SAH but l realy do suffer badly from fatigue if I go into town for a couple of hours then thats it for a couple of days.

love Dee W..

hi I had my sah 16 days before my 70th birthday,(so spoilt all our party, that had been organised,)I was to poorly to have it,and as yet still to poorly,had sah25th sept2008 nearly 9 weeks ago,(what a shame)Ihave a long way to go to be well enough, to have a party yet, still struggling, pruex

hi michille sinusitis I have always suffered from for years (ear nose and throat ) problems I wonder if there is a connection (Interesting you all should ask) a week before my sah ,I had a grommit and a tube ,taken out of my ear,makes you think? could it be connected. as I am always nasal, ? love pruex

HI Laura,

Just had a thought, have you asked anyone about sinus trouble as well, i had sinusitus 3 times in 2007 wondered if it may be a link?.

Love luck and laughter

Michelle C

xxxxxxxxxxxxxxxxx

hi caroline thanks thanks for your reply, have just had a hearing test and waited 6 weeks to get my hearing aid (it was a digital hearing aid ) when i got home wondered why I could not hear with it, stuck it for a week changed the battery as i thought it was no good stuck it in my ear (It nearly blew my head off )nothing on it to ajust the hearing phoned them up they said not been ajusted right so have to wait untill 8th of dec to get it altered so i am not doing so well ,Imust go now to get some dinner catch you later ,

Hi Pru

Yes I have had some deafness and Tinnitius in my right ear since my SAH, have been for a hearing test am waiting to see consultant. Its very annoying but perhaps a small price to pay!

Hope yours improves soon

caroline

hi tina what a pest this all is, I have had 3 really bad days (dont know quite what to do with myself Iwonder if some of it is antibiotics playing me up as well)still I really must try and fight over the top of it, catch you later, love prue,x

Hi Prue

Yes i also got deafness and ear infection, but my ear was blocked from my surgery, when they suctioned it out....it did all settle. I hope all improves for you soon, as i know how uncomfortable and confusing it can be with the dizzyness.

Take care

Love Tina xx

hi evelyn what a carry on, all these awfull symptoms , it is so scary,(I suppose i did not notice some that i am now getting as I had such bad double vision to cope with , and the dizzyiness,well must soldier, on i have a long way to go,as its only 8 weeks since sah. catch you again love prue x

HI PRUE

I HAVE HAD TROUBLE HEARING SINCE SAH AND IT HAS BEEN 3 YEARS, AND AS FOR FEELING MILES AWAY I GET THAT FEELING UPON OCCASION ASWELL.

LOVE AND HUGS EVELYN

thanks elaine for your reply i to can hear my voice , i really find it quite annoying especially with all the other symptoms . thank you again ..........love prue x

Hi Prue - I can't say that my mum has had deafness but she often says that she can hear her voice echoing back on her which is rather unpleasant and wierd. . Hope the others will be able to help you more.

Elaine

has anybody ,had problems with There ears after a sah(like deafness) I do have an ear Infection at present,but does that cause any deafness,I had a couple of bad days again,and (Iam on antibiotics)but really felt pretty rough to day,(much more dizzyiness) head feels as if I am miles away and not really here,Iam only 8 weeks since sah(but this seems a new one)could this be early symptons that others had at my stage,8 weeks thanks for any help, .......love prue

hi derek ,Iam also avery recent new member ,had my sah 25 9 08 ,and everybody has helped me so much,(you will never be alone with this site )best wishes to you look forward to hearing from you again .regards prue .

hi karen have been to the doctors to day ,i have been xtra dizzy, and earache, only to find out I have an ear INFECTION,that was all I NEEDED,(so put on Antibiotics for 7 days)so that is all I need ,on top of everything else to cope with,so that should keep me quiet,(so it will be another early night for me )hope you are ok, ......love pruexxx

congratulations on getting your licence back I HOPE I GET MINE BACK IN 6 MONTHS how long where you before you felt fit to drive ,i suppose you had to wAIT UNTILL all the dizzyiness had gone (but who tells you ,YOU can now drive ? ) is it your doctor or consultant (i havent got a clue,)anyway good luck love prue xx

Hi

Glad to hear you are ok, I too am 6 months post SAH and just got my driving licence back today! wonderful feeling.

Caroline

hi nurianna, I AM A NEW one ,had my sah 25th of sept 2008,so i am only 2 months on ,(you certianly had a rough time,)my eye did close,and terribly dizzy(still am dizzy,and still some double vision ) and like all the rest bad heads ,(Ionly hope I do as well as you at 6 months)you seem to be doing, really well,(great) I HAVE FOUND IT REALLY HARD as i cant do the things i used to do, (but maybe some of it will come back soon,)anyway keep up the good work,........I forgot to tell you ,I to have a bad arm, ive had cortisone injections they thought mine was torn ,but i had a scan,and result showed Inflammation,(mine has been so painfull i cant sleepat night for pain )cortisone did not work,It started all of a sudden,(i did have a fall but it did not start right away)love prue xx

hi michelle thanks for your e mail (I DO TRY AND LISTEN TO MY BODY) but I really am a shocker ,I will not give in and i really am my worst enemy I can never sleep in the day,which is so stupid really and wonder why I AM SO tired . yes my little dog has recovered well, and now is sure it is me,with the patch off he was not sure about the patch on my eye,(he really has been a super dog, and loves everybody) he is now14 and a half , (so he is getting old too) ( like his mum ha ha )well I BETTER go and do some work so i will catch you again ...........love pruexxx[