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Yorkshire Steve


YorkshireSteve
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Sometimes I have a little commentator in my head and because I am in my 40's and I have regular aches and pains it will say.... 'great, that knee is hurting today' etc.

On 3rd February 2011 at 2.40pm whilst doing some browsing in shop it said 'OH YES!!!!! ...... THAT'S AWESOME!'

A feeling of dread came over me and I knew it was bad, my brain felt like it was been squeezed to the size of a walnut and I had to sit down for a minute. I was going to call out and ask the shop people to call for an ambulance immediately but I didn't. Because I am a 'tough' Yorkshireman I thought, get over yourself, stop being soft. So I decided to leave the shop and go home.

After walking about 20 paces my neck began to stiffen up terribly and I was in a proper state, staggering a little and almost blacking out but I got into my car and thought to myself to man up and travel to the doctors.

My neck was 95% stiff by the time I managed to move off, this is about 3 minutes after initial attack and by this time I had now decided to drive straight to A&E.

I drove for about a mile and got to a junction to turn left and could not look right because my neck was so stiff.

By this time I was in a proper state and I thought I was going to die there and then..... and it was only at this point that I went 'soft' and called for help on my mobile. Picture if you will readers - a fellow in his brand new car - not knowing where his hazards are (lol), at a junction, writhing in agony, tears rolling down his cheeks with sweat on his brow and trying to explain his location to a 999 dispatch clerk who could not work out where he was !!!!!!

She eventually put me through (seemed an age) to the ambulance people who knew where it was immediately. To be fair she then gets back on the phone and brilliantly helped me through the waiting time until the ambulance arrived. I definitely thought I was a goner at this point and found it amusing and ironic I was going to die and not know the cause, I guessed brain tumour (never heard of SAH before). Because I didn't know where my hazard lights were I opened my car door so people knew I wasn't moving soon and would overtake and so on.

Anyway 10 days in hospital, pain was just incredible, I was more animal than man at times. The doctors did the tests, were unsure of the cause of the bleed and said that probably the aneurysm had destroyed itself. This was very upsetting as I assumed because they had not found a cause as such that I could get another bleed anytime..... and guessed I had approx 6 months to live. Because I didn't get a 'cure' such as a coil I was missed out on the outpatient process and was given no info at all. I looked on the internet and found this place and wiki's explanation very good but I was still worried until I went private and searched out all the info I could.

I retired through ill health this Saturday, I can walk and talk but I have little mental stamina and have a permanent headache which ratchets up and down for no reason (actually it's because of the Hemes floating around up there).

When I get those particularly nasty bolts of pain my little voice says either 'that all you got today?' ........or '<expletives> leave me alone!'.

But you know what? - after all that - I feel lucky and my wife family have been absolute rocks.

Respect to all the sufferers and even more to the families who support them.

Later,

Steve

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Hi Steve,

           It is good to read your story, I am of very similar age and have almost the same story to tell suffering with the same headaches and mental difficulties. I suffered an aneurysm bursting in Jan 2011, spent 2 weeks in hospital in agony and after a few months off work I returned and have since struggled to be effective in my work.

I am currently on sick leave and have been since March 2014, I have an appointment to have injections into my neck to try and help with the headaches but I really don't see anything that will help with the fatigue and mental difficulties that I am suffering from.

My employers are USA based and I get the idea that they would like to be rid of me so that they can fill my position. Who can blame them, after all they are in business and need to generate income!

I am always told that we (Survivors without physical difficulties) are a small minority and no research is conducted to establish medical and mental conditions after SAH.

My next step is to see if my private insurance cover will cover my absence and replace my income but I am for some reason not very confident..

 

Take care

Simon

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hi steve

 

my SAH WAS ON THE 30th/31st October 2013.

 

  I first thought that if I could get to bed after going to the  the bathroom, which was why i was up and a good thing to,  and  somehow sleep the headake and queezyness off it would be ok in the morning.. If i haden't fell over the cat when my left leg went numb and the noise waking my son up,  I might have died in my sleep. 

 

It's frightening how we sometimes try to quote yourself 

"Because I am a 'tough' ( insert reason here ) Yorkshireman I thought, get over yourself, stop being soft "  un quote..

 

we live in a small village in north lanarkshire.  so some directions were needed.  when the ambulance arrived the driver said " I didn't even know this place existed "

 

I'm dissapointed the hospital didn't give you any follow up information. Thank goodness for the internett.

 

quote:  " I can walk and talk but I have little mental stamina and have a permanent headache which ratchets up and down for no reason (actually it's because of the Hemes floating around up there)." un-quote. I am beginning to think a permnant headake is part of the 'recovery'  ( I will admit having to look up Hemes )

 

Hi Steve.

 

quote:  "I am always told that we (Survivors without physical difficulties) are a small minority and no research is conducted to establish medical and mental conditions after SAH." un-quote.

 

I agree with you there,  It's trying to explain to peolpe who haven't a clue what we are going through.   In my case it's the DWP.

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OK, update time, thanks for your kind words.

 

 

I had a headache for 6 years and 2 months and seen numerous 'specialists'. The drugs doled out by the NHS were outrageous with ridiculous side effects and I even tried acupuncture.

 

I had a particularly bad run last summer starting in June for about 3-4 months then again in December ending in March. A bad runs leave me basically living in a basic sub-human existence, dopey, tired, irritable etc.

 

After the bad run in March I went on a mission to find something, anything to ease this situation, total free thinking exercise before another relapse.

 

Currently my only medication is Botox as a side effect migraine sufferers found it beneficial. I had the odd paracetamol/Ibuprofen but nothing else but At last I am doing better starting from when I started taking CBD via a vape. 

 

 I think I may have turned a corner, like a fog has been cleared in my mind and my old energy is there too.

 

CBD is the non-hallucinatory / high part of cannabis and is legal in the UK for some medical conditions like MS as It helps the internal cannabinoid receptor system in the brain. I had thought for a while my headache symptoms were false, like people who have lost a leg and get cramps there if you know what I mean.

 

I don't want to promote anything here but look into it it folks if like me you have literally tried everything. 

 

I thought it can't be that good, so stopped taking it for 36 hours and all the old symptoms came back, constant left temporal headache, headache 'bangs' (like a punch on the bare brain), lethargy, drowsiness.

 

Hope this helps someone, Im happy to message if you want to discuss but am also aware that on the forum we can't promote any solution or medication. 

 

I am so revved up I had to share, my little voice is asking "where is the headache fella", and singing Etta James ....

 

At last, 
My headache has now gone,

My days of pain are over,
And life is like a song!

 

 http://web.behindthegray.net/index.php?/topic/281-recommending-drugsprescription-herbal-or-other/

 

Edited by Daffodil
Edited 12 minutes ago by Daffodil Some content edited and removed in line with BTG guidance
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