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YorkshireSteve

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YorkshireSteve last won the day on June 4 2014

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About YorkshireSteve

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  1. Absolutely. I also want to add in this topic something that I discovered recently that shook my world. My latest Neurologist was exasperated at my questions so he pulled out the blue book. The Blue book gives advice to doctors on what to do for a particular condition. He flips to post SAH advice and literally, in its entirety, this is what it says.... Post SAH headache, more research needs to be done in this area. That was ALL!
  2. Some of the prescription drugs given can be very strong, this will tune down his concentration, memory, alertness and appetites. Codeine is especially effective for pain but the side effects can be bad for digestion. Morphine based drugs, jeez, I had spells talking to my bed adjuster panel and saw my brother wearing a 7th cavalry costume whist in a wheelchair scooting around the room. gl
  3. I also want to add in this topic something that I discovered recently that shook my world and it pertains to the title of the thread. My latest Neurologist (by far the the rudest health professional I have ever met and due to get the sack from me) was exasperated at my questions so he pulled out the blue book. The Blue book gives advice to doctors on what to do for a particular condition. He flips to post SAH advice and literally, in its entirety this is what it says.... Post SAH headache, more research needs to be done in this area. That was ALL! And they have been pushing pills and stuff on me for years, basically guessing, it was staggering.
  4. Similar, I never used to get headaches ever but started getting little 'knocks' that last 20 seconds or so. I had these for three weeks until the SAH. When they scanned me they said the Aneurysm had destroyed itself and I was all clear. I doubted it and thought there was a weakness in there as I didn't like the explanation they gave me and was expecting it to 'blow' again but it never did. 6 years & 3 months on I am still here. I have seen approx 7 neurologists, at best they are patronising, some are rude and all but one were pill pushers. Find the 'one' and stick to him like a limpet. GL
  5. Tinitus, yup, especially when I am tired. I reckon 8 hours a day. When it 'switches' on sometimes it can be, let's say, unsubtle! The Bells! The Bells! Hunchback of Notre Damme.... lol.
  6. I had a headache for 6 years and 2 months and seen numerous 'specialists'. The drugs doled out by the NHS were outrageous with ridiculous side effects and I even tried acupuncture. I had a particularly bad run last summer starting in June for about 3-4 months then again in December ending in March. A bad runs leave me basically living in a basic sub-human existence, dopey, tired, irritable etc. After the bad run in March I went on a mission to find something, anything to ease this situation, total free thinking exercise before another relapse. Currently my only medication is Botox as a side effect migraine sufferers found it beneficial. I had the odd paracetamol/Ibuprofen but nothing else but At last I am doing better starting from when I started taking CBD via a vape. I think I may have turned a corner, like a fog has been cleared in my mind and my old energy is there too. CBD is the non-hallucinatory / high part of cannabis and is legal in the UK for some medical conditions like MS as It helps the internal cannabinoid receptor system in the brain. I had thought for a while my headache symptoms were false, like people who have lost a leg and get cramps there if you know what I mean. I don't want to promote anything here but look into it folks if like me you have literally tried everything. I thought it can't be that good, so stopped taking it for 36 hours and all the old symptoms came back, constant left temporal headache, headache 'bangs' (like a punch on the bare brain), lethargy, drowsiness. Hope this helps someone, Im happy to message if you want to discuss but am also aware that on the forum we can't promote any solution or medication. I am so revved up I had to share, my little voice is asking "where is the headache fella", and singing Etta James .... At last, My headache has now gone, My days of pain are over, And life is like a song!
  7. I think you have to retrain your memory. The problem with having a permanent headache / mental lethargy / prescription drug haze is that your concentration can be a joke. My wife will be chatting with my and I lose the thread almost immediately as I can't soak it in lol.
  8. OK, update time, thanks for your kind words. I had a headache for 6 years and 2 months and seen numerous 'specialists'. The drugs doled out by the NHS were outrageous with ridiculous side effects and I even tried acupuncture. I had a particularly bad run last summer starting in June for about 3-4 months then again in December ending in March. A bad runs leave me basically living in a basic sub-human existence, dopey, tired, irritable etc. After the bad run in March I went on a mission to find something, anything to ease this situation, total free thinking exercise before another relapse. Currently my only medication is Botox as a side effect migraine sufferers found it beneficial. I had the odd paracetamol/Ibuprofen but nothing else but At last I am doing better starting from when I started taking CBD via a vape. I think I may have turned a corner, like a fog has been cleared in my mind and my old energy is there too. CBD is the non-hallucinatory / high part of cannabis and is legal in the UK for some medical conditions like MS as It helps the internal cannabinoid receptor system in the brain. I had thought for a while my headache symptoms were false, like people who have lost a leg and get cramps there if you know what I mean. I don't want to promote anything here but look into it it folks if like me you have literally tried everything. I thought it can't be that good, so stopped taking it for 36 hours and all the old symptoms came back, constant left temporal headache, headache 'bangs' (like a punch on the bare brain), lethargy, drowsiness. Hope this helps someone, Im happy to message if you want to discuss but am also aware that on the forum we can't promote any solution or medication. I am so revved up I had to share, my little voice is asking "where is the headache fella", and singing Etta James .... At last, My headache has now gone, My days of pain are over, And life is like a song! http://web.behindthegray.net/index.php?/topic/281-recommending-drugsprescription-herbal-or-other/
  9. Sometimes I have a little commentator in my head and because I am in my 40's and I have regular aches and pains it will say.... 'great, that knee is hurting today' etc. On 3rd February 2011 at 2.40pm whilst doing some browsing in shop it said 'OH YES!!!!! ...... THAT'S AWESOME!' A feeling of dread came over me and I knew it was bad, my brain felt like it was been squeezed to the size of a walnut and I had to sit down for a minute. I was going to call out and ask the shop people to call for an ambulance immediately but I didn't. Because I am a 'tough' Yorkshireman I thought, get over yourself, stop being soft. So I decided to leave the shop and go home. After walking about 20 paces my neck began to stiffen up terribly and I was in a proper state, staggering a little and almost blacking out but I got into my car and thought to myself to man up and travel to the doctors. My neck was 95% stiff by the time I managed to move off, this is about 3 minutes after initial attack and by this time I had now decided to drive straight to A&E. I drove for about a mile and got to a junction to turn left and could not look right because my neck was so stiff. By this time I was in a proper state and I thought I was going to die there and then..... and it was only at this point that I went 'soft' and called for help on my mobile. Picture if you will readers - a fellow in his brand new car - not knowing where his hazards are (lol), at a junction, writhing in agony, tears rolling down his cheeks with sweat on his brow and trying to explain his location to a 999 dispatch clerk who could not work out where he was !!!!!! She eventually put me through (seemed an age) to the ambulance people who knew where it was immediately. To be fair she then gets back on the phone and brilliantly helped me through the waiting time until the ambulance arrived. I definitely thought I was a goner at this point and found it amusing and ironic I was going to die and not know the cause, I guessed brain tumour (never heard of SAH before). Because I didn't know where my hazard lights were I opened my car door so people knew I wasn't moving soon and would overtake and so on. Anyway 10 days in hospital, pain was just incredible, I was more animal than man at times. The doctors did the tests, were unsure of the cause of the bleed and said that probably the aneurysm had destroyed itself. This was very upsetting as I assumed because they had not found a cause as such that I could get another bleed anytime..... and guessed I had approx 6 months to live. Because I didn't get a 'cure' such as a coil I was missed out on the outpatient process and was given no info at all. I looked on the internet and found this place and wiki's explanation very good but I was still worried until I went private and searched out all the info I could. I retired through ill health this Saturday, I can walk and talk but I have little mental stamina and have a permanent headache which ratchets up and down for no reason (actually it's because of the Hemes floating around up there). When I get those particularly nasty bolts of pain my little voice says either 'that all you got today?' ........or '<expletives> leave me alone!'. But you know what? - after all that - I feel lucky and my wife family have been absolute rocks. Respect to all the sufferers and even more to the families who support them. Later, Steve
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