I was just wondering how many have debilitating, 24/7 head pain following their SAH that prevents them from working and enjoying their life? I had my SAH 11/23/14 and since then, not a day has gone by that I have not had head pain. Every little sound, every door slam, every loud voice, every lawn mower, every weed eater, other loud noise, etc. No pain medication helps. No seizure medication helps. Yet, if I go off of them, it's even worse.
I am currently awaiting disability and don't know what I will do if I am turned down. When I talk to family and friends, they say, "you sound good, you look good, you act normal, etc." When I bend down to pick something up, the pain is excruciating. My neurologist says I am not a candidate for botox injections because I do not suffer from migraines -- I have permanent pain, 24/7.
Of course, it is much worse on overcast days and when it is raining, but even on sunny days, it is bad. My only relief seems to be to walk the dog. I know, it sounds strange, but it takes my mind off of it.