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deanneg

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  • Content Count

    5
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About deanneg

  • Rank
    Newbie
  • Birthday 15/03/1962

Contact Methods

  • MSN
    deannegirton@gmail.com

Profile Information

  • Gender
    Female
  • Location
    Louisville, KY
  • Interests
    gardening, swimming, stretching, walking (the dog), skin care, crafts, floral arranging, church

Recent Profile Visitors

374 profile views
  1. I was just wondering how many have debilitating, 24/7 head pain following their SAH that prevents them from working and enjoying their life? I had my SAH 11/23/14 and since then, not a day has gone by that I have not had head pain. Every little sound, every door slam, every loud voice, every lawn mower, every weed eater, other loud noise, etc. No pain medication helps. No seizure medication helps. Yet, if I go off of them, it's even worse. I am currently awaiting disability and don't know what I will do if I am turned down. When I talk to family and friends, they say, "you sound good, you look good, you act normal, etc." When I bend down to pick something up, the pain is excruciating. My neurologist says I am not a candidate for botox injections because I do not suffer from migraines -- I have permanent pain, 24/7. Of course, it is much worse on overcast days and when it is raining, but even on sunny days, it is bad. My only relief seems to be to walk the dog. I know, it sounds strange, but it takes my mind off of it.
  2. I am just wondering, now that I am 2 1/2 years post SAH, and still suffering from dizziness/vertigo, and constant head/neck pain and pressure (I have other medical conditions), if anyone else has this. Although my medications list "dizziness" as a side effect, I have forgotten to take my noon dose of Gabapentin (Neurontin) Zanaflex and Topiramate on many occasions and noticed that my dizziness/vertigo yet worsens within 2 hours of a missed dose. Does anyone else feel constant head pressure and dizziness, despite medications? Even taking Vicoprofen (7.5 hydrocodone/200 mg. Ibuprofen) does not take the head pain/pressure totally away). I have to pretty much knock myself out with meds to sleep at night, taking Klonopin and Zanaflex. The pain at "dose" time, 5:30 a.m., awakes me. Has anyone been approved for Social Security Disability following SAH? I cannot perform any kind of work with this constant head pain. I was a paralegal for 35 years, which requires a lot of sitting. I had my appeal hearing yesterday and the occupational expert stated I could do work such as assembling small parts or being a mail sorter, although I also suffer from bi-later carpel tunnel syndrome (constant, throbbing hand/forearm pain). The constant head pain is agonizing, and I do not know how they think I could be standing to be a mail sorter when I have arthritis in my feet/ankles. I have had injections in them also. My attorney did raise the point -- would any employer want to take the risk of me being there on all of the medications I take? I am literally miserable and enjoy very few things in life that I used to do. Friends have all backed away from me, I guess because I can no longer do things I used to do and I am no longer as fun to be around. So, I do things alone like walk my dog, despite my foot pain, as that is about all I can do to not think about the pain. True, I do sit at this computer and type, but my hands are in horrible pain that keeps me awake at night. I wear hand braces on both hands to sleep but often take them off in frustration because the Velcro tangles in the sheets when I toss and turn. Your input is greatly appreciated !
  3. I am just wondering, now that I am 2 1/2 years post SAH, and still suffering from dizziness/vertigo, and constant head/neck pain and pressure (I have other medical conditions), if anyone else has this. Although my medications list "dizziness" as a side effect, I have forgotten to take my noon dose of Gabapentin (Neurontin) and Topiramate on many occasions and noticed that my dizziness/vertigo yet worsens within hours of a missed dose. Does anyone else feel constant head pressure and dizziness, despite medications? Even taking Vicroprofen (7.5 hydrocodone/200 mg. Ibuprofen) does not take the head pain/pressure away). I have to pretty much knock myself out with meds to sleep at night, taking Klonopin and Zanaflex. The pain at "dose" time, 5:30 a.m., awakes me Has anyone been approved for Social Security Disability following SAH? I cannot perform any kind of work with this constant head pain. I was a paralegal for 35 years. Thanks for your input.
  4. Hi, this is my first post since sharing my story back in April.. I had my SAH 11/23/14 and have had permanent head pain ever since (not just occasional migraines or headaches like everybody seems to think, but 24/7 head pain). So, I am STILL awaiting disability and have no income, which is quite stressful, as I am sure you can imagine. My SAH occurred just 7 months after my husband passed, which happened to be Easter Sunday of 2014. I am certain it was due to the stress of losing him and of the added financial stress it put on me. I didn't really have high blood pressure before that time and, in fact, my SAH occurred within an hour of working out. So now, I suffer from extreme anxiety as they are currently attempting to repossess my car, I am in danger of losing my home, and I am unable to pay my bills and am just barely keeping my utilities paid. As I write this post, I am "tapping" off of my next door neighbor's (good friend's) internet, with their permission, as mine has been cut off. I am hoping the anxiety attacks lessen as I am approved for disability and my financial stress lessens.
  5. I had just finished what I felt was the best workout, for being in my 50's anyway. I have a home gym and got a bit carried away. I did about an hour of cardio (eliptical 30 minutes and recumbent bike 30 minutes) because I got hooked on a good movie that was playing on my 37" flat screen. Then I did my hour of weights on my Bowflex, and sets of reps in between on my AbCycle. Feeling quite refreshed, I drank a big glass of water and headed to CVS to buy, of all things, toilet paper. Just after checking out and heading to the car, I felt this sharp pain in the back of my head. I'm not one to get migraines or even headaches, so I knew right away something was wrong. I kept trying to tell myself I must have turned my head the wrong way while bending down or something like that. Having worked out since I was 16, you just have these aches and pains after. I put my tp in the trunk and got in the car as it worsened. I was 3 miles from home. I prayed, "God, please help me make it home." The road home is hillly and winding. I made it home and thought if I just sat on my bed a minute and took deep breaths, this would pass. I finally gave in and went to my neighbor next door and asked her to drive me to the hospital. Luckily, it is only 3 miles away. I went straight to ER and you know how it's hard to convince them that you are really an emergency when you're conscious and not bleeding? They seemed to know and got me right back to CT scan which showed blood in my brain. The rest is kind of a blur. My daughter showed up, having just come from the airport after celebrating an early Thanksgiving with my parents in Minnesota. She had to celebrate early due to having to defend her thesis that week, as well as take her license exam for her. She slept in the hospital every night in my room with me. She has not yet forgiven me for what happened, blaming it on the fact that I drink. Six days after I was in the hospital, I had some kind of "episode" where I got out of bed, ripped out my PIC line and said I was going home. They put it in my chart as "acute alcohol withdrawal delirium." When I spoke to my family physician later, who has known me for 20 years, she said that was impossible as any withdrawal would have occurred within 24 hours of having no alcohol/consumption of whatever the drug was to be going through any withdrawal of that type. I had the entry removed from my chart (after much effort) because I did not want it to appear that I was an alcoholic, because I am not. After all, how can someone who follows a healthy diet, works out 3-5 times per week (1-1 1/2 hours) and drinks 3 times per week be considered an alcoholic?? The nurses told me they quickly put that tag on anyone who admits to drinking anything. The meds they have me on now make me feel drunk all of the time. They are Neurontin (600 mg 4 times per day), Losartin for blood pressure, Atarax and Cymbalta (60 mg). None of it takes away my head pain completely. When I read stories of people going back to work, I am amazed. I also have pain in my left leg, right at the site where they ran the catheter to my brain for the angiogram. I had two of them. One on the day I was admitted and one on the day I was discharged. I found out that femoral nerve neropathy was a rare but known complication of the angiogram procedure but no lawyers will take it as a medical malpractice case. When I went back for my follow-up with my neurosurgeon, all he was concerned about was scheduling me for yet a third angiogram, because of the large amount of blood that was in my brain, and I said no due to the pain in my leg and the fear that they would do further damage to my vein if they ran the catheter another time. I had heard that some people end up with paralysis in their leg from this. Plus, I had had numerous MRIs and CT scans, with and without contrast, after leaving the hospital and felt that if there was still a problem, it would have been found through these procedures. I was in Intensive Care for 12 days and on the regular floor for 2 days. I went 12 days without a shower. It was horrible ! I could not understand why I was in the hospital so long. They said because the drugs they were administering could not be given at home. I had a PIC line with 8 bags hanging from it. They could not get my salt level to where it should be. It is called cerebral salt wasting. When I went home, I was taking 6 grams of salt a day.
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