Thanks for the welcome guys, I feel as if it is hard to say what I need to at times, bear with me!
The pains I get are short ones ranging from dull aches lasting a second or two to loner more intense pains that last a little longer. The worst is a piercing pain which sounds high pitched, that leaves me a little wiped out for a short time. Thankfully that one comes very rarely.
A rare one is like a cool feeling that spreads across my brain, that one leave me numb for a few minutes, I don't know what it is or how it occurs, like all of the pains unpredictability rules.
Almost all of the pain is left side frontal cortex region, but very occasionally I get a pain on the other side, the GP says scans show small expansion on the right a well.
The trouble with positivity is that in 2014 I received a letter from a senior neurological consultant - asked for a second opinion by my then consultant - that basically states 'there is no treatment we can offer you'.
I try not to let it stop me from working, and living and laughing. But I feel confused as to how I get to walk around and be outwardly healthy looking when so many are not to lucky, I know many on here will not be able to enjoy life the same and that makes me feel sad and perhaps not as worthy as some.
I have a lot of reading to do on this great site, I hope I can find some answers, or be of value to someone else.
Ian