Jump to content

frmertd

Members
  • Posts

    91
  • Joined

  • Last visited

Reputation

145 Excellent

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. I am about 3 yrs out and really get that "exhaustion" thing too. I really need to nap each day. It is tough to fit in with work, etc. My exwife didn't understand why I was sleeping. My new girlfriend understands fortunately. Your brain gets into a fog. I have started to do the following. First, the brain only uses simple sugars for energy, nothing else. It wont use carbs or fat. So what I do is the following: I never ever drink any soda at all. Then, on a day I am doing a long work thing, I bring a 2 liter of mountain dew. It is loaded with sugar and caffeine. Also, because I never drink it until a work day it has more of an effect. I work around 3 days a week. I had a day a month ago when I was driving a long distance (4 hrs) and I literally stopped and bought a hotel room for a nap. It felt ridiculous paying 60 bucks just for a nap, but I knew if I kept driving , I would wreck. The brain sometimes gets in a fog. Oh well. Thanks for your story and I hope you feel better.
  2. I hope all is going well with you. Sounds like you had a large one and a rough ride.
  3. It's interesting you mention driving. Having done some research on this, it commonly happens in exercise, driving a car, sometimes sex. The few other people I've met who had it happen were all driving cars, weird.
  4. Thanks for all your input. That covid story really sounds difficult. Your Covid experience must have been just a terrible,terrible experience. And it makes you think how many people are going through that right now?? It's interesting you mention covid because when this "China Plague" (as Trump calls it, lol) , when this virus thing started, one of the first things that went thru my head was "dont go back to ICU!!" I've been very cautious to not catch it and it's out of my desire to not relive that experience again. The week on ICU when I had my initial bleed was the worst experience ever. No thank you, not again. I remember when I was going thru all this (2 yrs ago), some people made the point that if you break your arm, you have a cast on. But when you have a significant brain injury, you appear outwardly normal. I also remember someone telling me "if your marriage is not the best before this, it will be over afterwards. " And they correctly predicted that one!!
  5. I read something in another post about family members in denial and it really hit a chord with me. I had part of my family completely and 100% unable to understand and accept anything that happened to me. They just found it better to ignore and put it out of their minds. It was very frustrating for me. I would like to say I felt abandoned, but I WAS abandoned. Another part of the family had an experienced retired nurse who explained everything. But the other half just gave me the "emperor has no clothes" attitude. Long story short, the marriage ended 6 months later and I'm probably the better for it. I'm not hear to complain, just wanted to hear if anyone else got abandoned too.
  6. I do too. I remember exactly how it felt, exactly. Funny thing, I used to be addicted to smoking (God I hate cigarettes!!!). I tried everything to quit. I was vaping when this happened in my car. I then was in hospital 10 days and quit all smoking in the hospital. Every single time , I walk thru someone's cigarette smoke , or consider smoking, the whole aneurism event comes right back to me . No way will I ever smoke again.It took a brain aneurism to get me to quit smoking.
  7. A very warm welcome. Please, any time, communicate and let others who have been down this path help. I still remember how helpful people were to me. I learned practically nothing from the doctors and everything from here. You are in a very difficult recovery period right now, but it gets a lot better. Chill out, relax, stay off work a long time. relax, relax, relax, relax. And please , know that there are people here very helpful to your recovery. Speaking with people here helped me IMMENSELY. good luck and hope to hear from you soon!!
  8. This topic is me to a T. Wow, it's about time I heard more about this. This is the kind of thing you get here and nowhere else. My doc said what they call this is "need for cognitive rest". You need cognitive rest. I put headphones on when people are blabbermouthing and it annoys me trivial conversations when I'm trying to concentrate. Some people think I'm probably a jerk, but they don't understand what I'm doing.
  9. What a great reply! You I think are earlier out than me. But we both had similiar bleeds. I, too, had really weird behaviour in hospital, with accusations toward family similiar to yours. Strange, how the mind works.
  10. Wow, what a crazy ordeal!!! You deserve to have ptsd from that! Your situation must have been terrifying. I hope you recover from this. You are also recovering from the bleed 4 months out. I had problems for 6 months. Try to see a counselor. Especially one who does ptsd. Your situation was more frightening than most soldiers that have been in battle! you have every right to have severe ptsd, and again, you need to recover. Try to rest, dont dwell on things. Try not to deal with the hospital negligance thing untill you have fully healled, ok??
  11. Hi, I just wanted to briefly say where I am 1 1/2 yrs out. What made me think of it is, I spoke with nurses who have known and worked with me forever and this is what THEY see. Firstly, i am happy and doing great. I am working almost full time.But again, it is best to let Others tell you how you are, because like most men, I am in some denial and want to push forward. Here goes: 1)I am more laid back about life. This has been the best gift of this thing. I fly and visit family, play golf, run, and dont work so hard. My ICU doc told me all young people he sees with this are uptight workaholics and that was me. I was kind of a miserable workaholic before and not now. YEAH!!! Thank you!!! 2)I cannot learn some things. I read a lot and am learning spanish. Why???? Bcz i am trying to prove I can do it. But the other night, i went to a salsa class and just could NOT learn it. 4 steps, could not do 4 steps. I can learn on my own (ie:learning spanish) but if someone verbally shows me, i can not learn it. simple things.Frustrating. 3)this is funny, but i put things in particular places and they MUST be there or I get angry. This is all after the bleed. I had a rentacar the other day. And immediately after getting in, I rearrange everything to where it "lives" in my home car. Things must live in their place!!!I have some fear of losing things. My mind cannot remember where i put it. So i always put it one place only. When parking the car I always park in same spot. Each place i go has one spot. Or else i will never find the car. 4)I am more adhd now. So say my coworkers. "we have to keep you on track" they say. 5)my emotions go up and down. This is a tough one, because I do stupid things and people blame me. I think the emotion center of my brain was damaged. This causes me trouble because noone wants a doctor with emotion issues, right?? 6)I meet people, then remeet them. Funny. 7)I repeat myself a lot. This annoys people. They tell me all the time. "you already told me that". I get that a lot. (just reading this post, i noticed i have repeated the "learning spanish" thing 4 x already, jeeeeesh!) 8)My short term memory is TERRIBLE. What were we talking about??? Just kidding. But seriously, if i am in a restaurant and get up to grab a fork, half way there I have no idea what I went there for. So I say to myself "fork,fork , fork, fork" and then the person near me says "what did you say??" And i say "fork". And they say "why are you saying fork?" It is daily comedy in my life. 9)I have eliminated toxic people from my life. Another gift of this experience. I used to be polite to them out of politeness. No longer. They have been deleted. I also remember , very clearly, who came out of the woodwork to help me through this crazy ordeal, and I remember very clearly who abandoned me and pretty much left me to die. My deficits are comical to me. They show something of how the mind works. I can memorize the past preterite tense of spanish of an irregular verb, BUT cannot remember where the car is! I have strengthened my relationship God thru this ordeal and thank Him every day for my recovery and new life!! I am probably more glad that im not paralyzed then dead. I was very lucky to be alive, not paralyzed, back to work. So you will never hear me complain about my deficits. To me, they are comedy. I thank God every day for my new life!
  12. Great to hear you are recovering. 5 months out, i was a bit of a wreck. Lol. I had emotional issues, would get angry, then cry, it was weird. The problem with brain injuries is , to someone else, you appear normal. If you break your arm, you wear a cast. Everyone sees and understands. But with a brain injury, your strange behaviour makes no sense to other people and they blame you. That is my take. Maybe I should have wore a sign?????I also had sleep problems. They were frustrating. Good luck. I will pray for you.
  13. Very interesting story! i really appreciated that. Best of luck.
  14. it sounds like they are doing a VERY thorough job, especially your second doc. Do understand that bleeds can be either 1)arterial (larger, higher death rate) or 2)venous (slower, but still very serious.) An angiogram only finds ARTERIAL aneurisms, not venous. If "no aneurism found" that means it was a venous rupture of the blood vessel causing the bleed. Your first doc feels that your bleed was venous. Your second doc is concerned it may have been arterial due to the large volumes of blood. My advice: do whatever your doc says, they seem very thorough to me. Getting a 2nd opinion is always good. Get hypertension treated well. Good luck.
×
×
  • Create New...