Jump to content

Xamder mom

  • Posts

  • Joined

  • Last visited


45 Excellent

About Xamder mom

  • Birthday 02/12/1957

Profile Information

  • Gender
  • Location
    New Hampshire USA
  • Interests
    Bible Study, Dog training, quilting, sour dough baking, hiking!

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. No apologies necessary! The changes can be upsetting and baffling at times. Doesn't it seem that the fatigue hits at a most inconvenient time! We're all able to relate.
  2. I’m grateful to be able to come her and peruse the posts and comments. It’ll be four years in March since my SAH. I STILL have headaches and a buzzing feeling in my head. But I’m ok with that to be honest. My husband is wonderful and seems to intuitively know when I’m not feeling great. I worked for a medical doctor before retiring and we chatted recently. After doing some research he found a study and told me that 16% of us will live with chronic headaches. They come and go! So I’m resigned to that but so very thankful to still be active! To hike and jog a bit with the dogs and enjoy the outdoors is really good medicine. I Hope each one here has a blessed year.
  3. Daffodil, I have utmost respect for you! thank you for posting and for being an example for all of us! PS: The dogs are great to get you going and "in the moment" aren't they! They don't care if you look a mess or feel like a grump. They are happy in the moment if you so much as make eye contact and smile at them! Mine have taught me a lot! Congratulations on 8 years.
  4. I can hardly believe it's been three years since the day that changed me forever. We were having the worst snowstorm of the year in New Hampshire USA. There were virtual white-out conditions but me being Me, I strapped on my boots and set out to take the dog for a walk. I was pretty close to home when the pain hit. I described it as a "lightning strike" in the back of my head. It almost brought me to my knees and I knew. Something is wrong. I was able to make it home. At 59 years old, I had always been fairly fit. Sometimes very fit, but exercise has always been part of my life. I have run half marathons and often hike here in NH. I train German Shepherds in protection work and no one has ever had to coddle me. Fast forward a half hour or so and my dear sweet husband called the ambulance. He knew by my moaning and holding my head that something was definitely not right. Sub-Arachnoid Hemmorhage was not in my vocabulary at that time....It was not anything I had ever heard of! I see the hand of God in the entire day because the snow storm had left the highways with virtually no traffic. Massachusetts General Hospital had no one in the queue for admittance or CT Scan. Zip! right in. My husband had to leave the small community hospital that I was originally brought to and feed the dog, get clothes and drive to Boston. 12 inches of snow had accumulated but a dear friend had plowed almost a mile to my doorstep. Hubby drove in and was out on his way to me in minutes. I believe I received excellent care in the Neurology Department in Boston. Scary as it was. After the second follow up CT Scat with contrast the Doctor told me to resume my life and "Forget this ever happened." I did try! A week or so after the SAH i suffered severe back pain which the doctor told me was the blood from the bleed moving down my spinal column. I was assured that it would dissipate. Silly me. I assumed the headache would as well! My headache was NOTHING like the pain of onset so I followed doctors orders and just carried on with my life. Mostly, this has worked! My husband could not be more understanding and my adult children are wonderful. So having chronic headaches seems to be my 'New Normal" I can always "feel" my head and somethings I tire of it. Other times my head hurts quite a bit but i have had a follow up MRI which showed nothing and the headaches seem to be here to stay. I still jog, train the dogs and we have retired and purchased a Motor Home. Our trips together have been delightful. I love life, and I cherish every day. Thank you for reading if you have gotten this far! Oh! And it's Pi Day! I ate pie.....chocolate.
  5. I so enjoyed reading your post! I’m sure your family is blessed to have you! The loss of loved ones is a challenge for sure and post SAH especially. The timing must have been difficult. But YAY for a grandchild and your two adopted children as well. You sound busy..... my three year anniversary is the 14th of this month. I need to share as well!
  6. I'm coming up to three years this month as well !! I can say for certain that my brain is always reminding me that it's there. People who have never experienced this do not understand. It seems that many of us do our best to describe what we are feeling and although my buzzing, painful sensations sound a bit different from yours they are very real and annoying nonetheless! I hope you have a good week and get the rest and refreshment you need.
  7. I'll be three years post bleed in March and I live with headaches but I've never heard the term "Ice Pick Headache.' I can ALWAYS feel my head in the location of the original pain. Sometimes it's not bad thankfully but it escalates and can be severe. Sigh. My Internist gave me another MRI which was normal so I realized that I'm probably just going to live with it... It is sad to read your stories on the one hand and then on the other I realize it's a part of this bleed.
  8. I'm so thankful that you posted this. Reading the comments from others is helpful as well because we really are in an exclusive group aren't we? I won't give you any advice but I'll just thank you for posting and when my 3 year anniversary comes up in March I hope I can express my feelings as well.
  9. Subs, Thank you for that. I have seen many highs and lows to be sure and I see my family dealing with it all in a loving and patient way. I read somewhere that we don't LOOK different on the outside.....
  10. I just found this site! I"m coming up on three years since my SAH. I am so excited to read the experiences of others who had a similar experience. In March 2017, I took my dog for a walk as normal. I was a healthy 59 year old with a history of exercise and regularly jog, lift weights and achieved a 4th degree black belt. No one has ever accused me of being a delicate flower so when I experienced a headache so severe it almost brought me to my knees I knew something was seriously wrong. This was pain!.... I'm not sure exactly how I made it home as i was probably 1/4 mile when the pain occurred. I remember looking in one of the houses as I passed and wondered if anyone saw me holding my head and moaning. Funny what you think about and remember. Thank God for my husband who called 911. There are many details around that call and the trip to a community hospital that would make you cringe, but thankfully I made it to Massachusetts General Hospital that afternoon. No coiling needed! I was home after a few days. I did have severe back pain a few days after and was told it was the blood in my spinal cord and it would go away. Looking back............ I assumed the head pain would go away too. I was most certainly much better than it was at onset, but still there. So what does one do after an event such as this? Carry on! "I'm fine!!" "Fine, Fine, Fine!" So grateful to be alive and off to church I went thanking the Lord for my husband, my family, modern medicine and a Savior who loves me. Let me say I'm a person who hardly ever had a headache. Now as days grew into months I continued to have a buzzing, painful sensation in the exact same place as the excruciating bleed. Someone described a crescendo type of pain that would decrescendo and sort of fizzle out. In my desire to carry on I just power through it when it's bad but that results in fatigue and tiredness that feels like a weighted blanket on my body! I also noticed that I have trouble recollecting things. For example, repeating a list or instructions is impossible. Some would ascribe it to my age... but I can put in on the calendar as happening the day of my SAH. Anyhow, that' my story in a nutshell. I still get the buzzing headache and I'm wondering if anyone else has experienced it? If you took time out of your day to read my story this far I thank you. And to all the wonderful folks on here who have shared and supported others thank you as well.
  • Create New...