Maria1959

Hi Cath Lovely to hear from you. How is the phased return going. I am off work until October and then trying to go back maybe a couple of hours a day - again getting tips from here like taking travelling time into account. I work for the NHS and I have had support from my HR department. I am enjoying watching the olympics and today the sun is shining!!! Take care Maria x Mary Thank you for taking the time to write especially during a tornado!!! What a time to have had - hopefully you get the appointment and help you deserve. I know how lucky I m to be here and if I am left with balance issues and headaches then I am very lucky. As my doctor has not had a patient with SAH and I go in with my list of questions I think she panics - since finding BTG I am educating her! The only follow-up appointment I had was last Monday at the Parkinson's Clinic! I questioned this app twice but was told I should attend. After having obs done and lots of questions the Consultant said I was at the wrong clinic and would refer on to neuros - mainly for my continued headaches and balance problems he didn't think this should be happening - now if I had not found the BTG I would have been so worried that maybe the symptoms not normal - but I came away maddened that I did not need to attend but knowing that my symptoms are normal! Take care and hope goes well Maria x

I must thank Kris, Shellie and Sarah for the support and a big thank you for getting to the end of my long winded story - do tend to ramble on a bit these days! But I do love to read everyone's thoughts I get so much from it. Maria xx

Hi Kris Thanks for your support. I have been an avid reader of everyone's stories, threads and comments and feel much calmer and more in control now. I am looking forward these days instead of looking back at what I had. Maria xxx

Hi to all Like most people here sent home from the safety of the hospital with no information and told nothing. I think I had my SAH following a gym session (treadmill with earplugs watching TV) so not marathon training. Felt a ping pins and needles and didn't feel well but couldn't say why went home and carried on for a week with sleeping problems due to headaches but again not that bad took a couple of pills and still went to work. Thursday (April 5th 2012) went shopping for Easter holidays and I suddenly felt unwell thought I may faint, fortunately I was with my daughter who said I "looked odd" we left the shopping and by the time I got to the car couldn't walk lost the use of my right side. By the time I got home (10 mins) everything was fine but had a a terrific headache took a couple of paracetamols and my daughter took me to GP who said it was probably TIA but as it was Bank Holiday weekend nothing she could do take aspirin and go home. Friday morning same thing happened again but weakness lasting longer so went to A/E and after a couple of hours was given more aspirin and told to go home and attend out-patients TIA clinic on Tuesday morning. After happening twice more on the Friday went back again to A/E. Because I could managed all pushing, pulling, smiling frowning tests they were baffled, but fortunately I had my "paralysis episode" while in cubicle and was able to show doctor what was happening. I was sent to stoke unit (Good Friday at midnight I was only patient not handcuffed!) as my paralysis was coming permanent. Early Saturday a consultant arranged MRI, CT and Angio CT and angiogram to neuro unit to lie flat on my back for 5 days and discounting brain tumour, Wednesday morning 6 am a doctor came and said I had a NASAH, it had stopped bleeding itself. As they had thought perhaps a tumour I was given dexamethasone which gave my ability to walk and use my right side back again. There was no treatment and as beds are urgently needed on neuro wards and was transferred to gynae ward and told to just lie down, when I came round to asking questions the nurses being gynae had no answers for me. Discharged home 2 days later with no follow up and no explaination. Having stopped the dexamethasone my right sided weakness returned. My GP had no idea what to do or be able to answer my questions. Over the long weeks I have gained my balance and use of right side back, headaches are getting fewer, sleeping is still a problem, my head felt like I was sleeping on a brick have bought several different pillows, driven my family mad trying to find the perfect pillow. Been back in as I thought I was having another, but turned out to be a severe migraine with numbness and weakness. Did see a neuro doc that time and as i said it was 14 long weeks for me and why was I struggling with balance, tiredness and stupid speech when tired. She said its "only 14 weeks". She suggested I look into support groups as they have a better understanding. Once again thank you all and wish everyone a speedy and full recovery. Maria