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Eruditedk

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Posts posted by Eruditedk

  1. Hi thank you for your replies and kind words

     

    it's more stressful for someone who thinks like I do to have a No cause SAH as I need answers to process things.... I am also finding the after care support less than required, though as i have said the urgent care treatment was out of this world... 

     

    I will keep reading the forums and hope my mood stops being as changeable as the UK weather.. 

     

    Have a lovely weekend Daniel x 

    • Like 1
  2. Hello BTG forum I have just found this group and am posting for the first time so please forgive any fopars...

     

    If this introduction is too long winded I am sorry, I am having a very difficult time coming to terms with what has happened and am struggling to find any useful feedback from my doctor... I don't want to burden my family with my worries and found this group and read some threads and hope maybe I have found somewhere and a group that will understand what I am going through and be able to offer me meaningful guidance for this journey..

     

    As an introduction I am a very lucky survivor of a no cause SAH which happened on the 23rd Jan 2021... 4 days before my 49th birthday..

     

    My life prior to the SAH had been a wild adventure, numerous businesses and a rewarding career, 19 years overseas in the Gulf and Asia, some extraordinary experiences, several scrapes and situations you could not make up as stories, and I truly felt like I was Batman...invincible...

     

    Wow was this SAH a rude awakening and why I am now truly lost..

     

    My SAH story.. I was sitting at my desk at around lunchtime trading cryptocurrencies and forex which I used to do daily, very relaxed smoking  "herb" my chosen vice when a sudden onset "thunderclap" headache arrived...

     

    Unusually for me I knew something was not right as said having lead varied life and being through many scrapes my "gut" told me this was not something to ignore or self medicate for.. so I took myself to lie down, pain killers didn't work and after a couple of hours I called the NHS line to get advice.. I ended up having to take a taxi mid afternoon, alone to Southport Urgent Care hospital where they conducted CAT scans,  chest XRays, bloods etc. and told me they believed i had had a brain bleed...

     

    Luckily for me I was very lucid, I was in fact still trading online on my phone which the doctors thought was unusual but I was really just trying to distract myself and prove to myself my brain was working.. 

     

    Due to COVID I went to hospital alone, my fiancé is from overseas and didn't understand what was happening and was alone at our home, my 78 yr old mother was alone in the midlands and my sister alone in London...I had to make them all aware what was going on which was a decision I struggled to make to be honest, not fully understanding what I was going through and not wanting to cause my family stress

     

    They decided to send my in an emergency ambulance to The Walton Specialist Neuro Centre in Liverpool.... the nurses in Southport and ambulance staff were incredible and kind and started to try to explain to me the severity of what was happening ...

     

    All I can say about the care I received from the NHS is that it was incredible, many of the nurses and doctors are indelibly written into my memory...

     

    A 2 week stay at the Walton Centre, CAT scans with dye... 2 DSA procedures, not able to have MRI as apparently I have metal in my eyes and for someone like me, who understands through facts and data, the most frightening and stressful diagnosis...

     

    No cause SAH....

     

    So, you nearly die, are incredibly lucky you are not physically or mentally impared, after 2 very invasive DSA procedures they have no idea what happened or why... is it just me that finds this more difficult to deal with than something that could be pin pointed as the cause... 

     

    A separate "incidental" aneurism in my brain that they at this time do not want to treat.. 

     

    So 3 months on having had to find a new house to rent as our landlord had sold where we were, the stress and physical exertion of the move and my own stupidity taking on too much I am now in need of advice and support ...

     

    I am willing to share my experiences and happy to be an active member of this group and truly hope as I learn and progress I can pass some insights to others in need..

     

    However, at this time it is I who is in need, maybe a delayed reaction or realisation that I am not who I was before it happened I feel quite lost and alone in how to deal with the cards I have been dealt..

     

    So I thank anyone who has managed to wade through my introduction and thank in advance anyone who provides advice either directly to myself or to others that I find reading through the forum posts..

     

    I am happy to be here, and look forward to learning and participating where I can

     

    Thank you all again I am sure I will ask many questions moving forward...

     

    Best wishes to all... Daniel..

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