Mrsherring

Hi Charza 

I am sorry to read about your experience. I had a NASAH on Christmas Day 2022 with no specific cause. I'm doing fairly well physically but the emotional / mental side is tough as I am also in the depths of menopause. I haven't experienced the jerking you speak of, how horrible for you and sleep deprivation is awful.

I can't see when you experienced your bleed but I am going to assume it was fairly recent. Whenever it was, please speak to your doctor as there must be something they can do to help, even if it is temporary assistance with sleep medication - not wine! 

Same You is an excellent charity - there might be something on there to help you with, here is a link. 

https://www.sameyou.org/resources

I am sure you have heard it before, but be kind to yourself and treat yourself with love and care. 

Best wishes, Anne x 

On 21/12/2023 at 02:18, Swishy said:

A lovely message indeed.  It says it all.  Congrats on your first year Mrsherring.  One year is such a milestone. Many positive thoughts to you tonight, I too don't know what  caused my bleed but 6 years have gone past.  Great words in that message...

xx

Jean

Thank you Jean for your kind words. I am feeling the positivity from you! Xx

On 21/12/2023 at 09:49, Louise said:

Have a lovely day on Christmas day enjoy it - be thankful it'll be better....

 

I had a SAH 24yrs ago No idea what the cause was and was so scared of any landmark ani-versaries but what I've learnt is fear isnt the place to be just enjoy your Christmas... 

Thank you for your lovely message. My Christmas Day was peaceful. I love that quote “fear isn’t the place to be”. I shall try to remember that. Xx

On 15/03/2023 at 11:09, Jo S said:

Hi,

 

Once again, thank you to everyone for responding to my message. In these early days of recovery they have been a great source of comfort and information. 

 

I have been reading through lots of the posts and everyone is so amazing. I feel a little bit of a fraud as my symptoms are minimal  compared to some people. My headaches have settled and are bearable without painkillers. My hearing is improving slowly but I still have tinnitus and painful oversensitivity to certain noises. I have just purchased some Loop Earplugs after reading Jo_S and Karin's posts.  I hope they might help and perhaps save my marriage as my husband coughing still appears to be a problem!

 

Jo_S is was great to hear that you are back running.  As you said, walking in these first few weeks of recovery has really been the best thing for me mentally and physically. Before this happened,  my  body was used to running and gym 6 days a week, no medication (can't remember the last time I swallowed even a paracetamol) and  very busy days as a teacher. With suddenly no physical activity and all the medication whilst in hospital I don't think my body knew what had hit it.......especially the codeine and laxatives!!

 

I am not really suffering with fatigue but I am very aware that since leaving hospital I have not really done anything other than walk. I will continue to take try and take everyone's advice and be patience and take things slowly. The school I work at is not putting any pressure on me but as I said earlier I do feel a bit of a fraud when I am out and about walking. Yesterday I bumped into a parent of a child who attends my school! Didn't really know what to say other than look guilty and a quick 'Good Morning!'. 

 

I feel very lucky to have found this site and grateful for the recovery I appear to be making.....keeping well hydrated definitely helps but I also wee soooo much! 

 

Many thanks for all the advice

 

Jo 

 

 

 

 

 

 

Definitely not a fraud - it all sounds quite similar to my experience. I just struggle massively with the fear of it happening again but I have received very good counselling. This site is so helpful, informative and reassuring. Thank you for sharing your story. X 

On 29/06/2016 at 09:43, Chelle C said:

Hi Sherry,

 

So sorry you are having such a hard time with the worry of it happening again,

 

In the early stages of my recovery I was really terrified that it would happen again,

I`m now 2 years post bleed and I don't worry so much now,

 

You may benefit from some counselling, try speaking to your GP they may be able

to arrange that for you.

 

I had some talking therapy and it did help a lot, I also listened to the advice that I was

given from everyone at BTG, we have all had the worry that you are having now.

 

You will get through it as you progress with your recovery, it`s all part of the healing

process I think.

 

I used to use a distraction if I started to worry, I`d find something to take my mind away

from the thoughts I was having, my cupboards have never been tidier.

 

Why not come on here when you are feeling worried we are all here to help each other

through the difficult times and you will find a lot of helpful advice and of course a lot of

new friends at the same time.

 

Try not to research things to much, you can scare yourself, I know I did.

 

You take care and I wish you well with your recovery,

You know where we are if you need us,

 

Look forward to hearing more from you.

 

Love

Michelle xx

Hi Michelle - I am new on here so not sure if I am replying in the right place. I am sat here crying as I read your post. I am a year post NASAH and seem to live in huge fear of it happening again (happened Christmas Day 2022 for no reason, I was dancing to goofy music and kapow, it occurred). I have had really good counselling but today has been tough due to quite strong head pains, I have been so scared.

I have also been scared of looking at this particular chat feed on this forum - but I did and I am sobbing because of the positivity! Oh my Lordy - having a NASAH and full on menopause is fun!

Anyway, I won’t ramble on but just want to say thank you for your lovely, positive post. Anne xx

On 10/03/2023 at 20:39, ClareM said:

Hi Jo, as Tina says warm welcome to BTG.

 

You are really early days and I hope you are not thinking about returning to work anytime soon? Most people are recommended to take 3 months and then a phased return.

 

I too was quite fit when I had my bleed at 55 in fact I was out running when it happened. It took me several weeks before I was able to go out walking alone and a few months until I ran again. I am now running up to 5 miles 3 times a week and attend a couple of gym classes too. I really think that the running has helped my mental and physical health though many people ask how I can run after having a bleed during running!

 

Things will hopefully improve with time though maybe your current symptoms are are caused by you doing too much too soon. Try and make sure you get plenty of rest in between those walks!

 

Take good care and keep us updated with your recovery.

 

Clare xx

Hi there, not quite sure how to navigate this site so I might be replying to your post in the wrong place. I find it really inspiring that you are running -

I am too scared to run since my NASAH last Christmas Day (not the one just past). I was dancing to goofy Christmas music and kapow, it struck me, age 53. I do swim as it helps my mental wellbeing. A year on and I still struggle mentally and today I have had sharp pains in my head that really scared me.  I just want someone to say “you are going to be ok”.

It is tough at times. However I do know how lucky I am and as I say, I have found a comfort and reassurance in your post. I need to be more “Clare”! Anne x 

Sat here crying! What a lovely message to read. I am approaching my first year anniversary (Christmas Day!). No idea what caused my NASAH so the fear and anxiety have been huge. I have just seen a title on here called “NASAH - will it happen again?” - I am too scared to click into it for fear of what I may read. I clicked on your story instead, thank you for the fantastic, positive post. X