lynnfarmer6

Hi Debbie.

I suffered a SAH on 7th May 2012 and am still recovering. 12 months to 2 years is a good estimate. I hit a bad patch after 3 months as that was when the fatigue, nausea and sore muscles set in. I have good days and bad. But feel that every time I am tired, my brain is repairing itself! I have started driving again and have a holiday booked, so please don't forget when you feel low, things will get better in time!

Lynn xx

My husband had a SAH on 9/4/13. He had the clipping at the Southern General Hospital but it wasn't all caught or the clip moved and he had a 2nd bleed 2 weeks later which was then coiled. He had a shunt inserted and then taken out due to infection and then reinserted. He has had chest infections. He had pulled his feeding tube out and when they reinserted it they accidentally punctured his lung. He has now had to move out of the surgical ward at the SG as he doesnt require any more surgery and is in a medical ward at the Victoria awaiting transfer back to the SG rehab unit, where he has been accepted, when a bed becomes available. He has been in the Victoria for the past 2 weeks. I have now heard from the nurses that he is going to be transferred to this Brain Rehab unit in Bellshill until a bed at the SG rehab unit is available hence my question if anyone has experience of this unit.

Tricia

Tricia,

I was treated at the SG last year. I was in a medical ward for a month before going to the Physically Disabled Rehabilitation Unit - PDRU. They said they were waiting for a bed, but I think they were actually waiting for my strength to return and for my thoughts to be clearer. I had physio and speech therapy on the ward. When I went to PDRU, I was walking better.

If you want to ask any more questions about PDRU, please contact me.

Lynn x (Glasgow)

Lynn,

Hi and welcome to BTG.

If it was anything to worry about they would say a month wouldn't they?

I know it is a worry for you but we cannot afford to stress ourselves out, so call them and say this, ready?

Your letter has frightened the life out of me " Or words to that ilk lol

You will be okay but better than worrying as Louise put it contact them rather than worry xx

Good Luck

WinB143 xx

Thank you. They have been in touch. I have to have an MRI scan in 2 years time so everything seems to be ok just now.

Lynn x

Hi Lynn

First if you don't understand why not give the consultant sec a call.

But the anni sounds ok, & they are going to monitor the neck 2yrs, not sure what else I can say but no doubt someone will come along with a better reply.

Im in Scotland too East side.

Thanks Louise. You are correct and that is what I have been told.

Lynn x

Hi everyone.

I had an MRI scan 2 weeks ago and received a letter from my consultand this morning. It said that the left sided aneurysm remains well-occluded by coils. It also says there was a small amount of filling at the neck and the neuro radiologist has kindly agreed to review me in his clinic to discuss the need for further angiography. It said, in addition, he has arranged another MRI scan in 2 years time.

I don't know what this means! Can anyone help?

Lynn.

Hello Lynn,

Welcome to BTG, it's good to know we are not alone in coping with our recovery.

Wish I lost my appetite as I love food since waking up.

I cannot walk that far but getting there. I did 100 yards but hubby said it was only 50 !!

Be Well and keep happy.

Love

WinB143 xx

Hello WinB143!

When I left hospital, I continued with the build up drinks I consumed in hospital. I have now been eating crisps and chocolate. I also eat pasta.

I cannot walk far and get tired quickly. I have a long way to go.

My aim would be to go out and have a meal in a restaurant.

Lynn x

Bless you Lynn and welcome to our little corner of the net! Definitely this is a long recovery and it can get us so down sometimes, but the positive spirit is essential.

You had a long haul in the hospital! I bet it feels so good to be home. I still remember being there like it was yesterday. I had excellent care, but wow I couldn't wait to get home to my husband and my dogs. I only was there three weeks!

I don't know how I would have made it through with my sanity intact had I not found this site! Everyone on here is so wonderful, and just having others who understood was a HUGE benefit.

Thank you very much for your positive comments. It is difficult for people to understand what we go through!

The simplest tasks like getting washed and dressed are major tasks and everything is such an effort.

After I came out of hospital, I had a month when I really wasn't feeling that well. I was sick and dizzy, but this disappeared. It is very hard for me to leave the safety of my flat. My sister has been a great tower of strength for me.

Lynn x

Hi Lynn and Welcome to BTG,

What wise words from you! Glad you are doing ok and have a positive attitude. It certainly makes it easier to have a healthy approach to a tough situation.

Maryb

Hi Maryb,

Thanks very much for your encouraging words.

After a year, it is the tiredness which affects me most and results in me taking naps.

Lynn xx

Hi Lynn, welcome to BTG! Glad you found us.

Sandi K.

Hi Sandi,

Thanks for the welcome!

It is an inspiring website! It is good to hear of people in the same position.

Lynn

Hi Lynn,

What an inspiring post & your positivity will be so hopeful to other new members who are just starting the recovery journey now.

Good to see another Scottish member on here

Michelle x

Hi Michelle. Thanks for your reply and your kind words.

It's good to hear of other people's progress.

Every day, things are so difficult. e.g. getting washed and dressed.

Lynn xx

This is my first post.

I suffered a SAH on 7th May 2012. I was in hospital for 3 months and exercised in the hospital gym and undertook speech therapy.

I have been out of hospital for 9 months. My movement is better, but I suffer from sore limbs, fatigue and lack of appetite.

It is a long road of recovery and it is important to listen to your body and let it dictate the speed of your recovery.

At this point in time I am not the same person I was before the SAH, but I know at some point I will be the person I used to be. Patience is a great virtue.

Lynn.