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Hiya again,
Update on the hormone thing, just heard from the doc at Walton, the last blood test shows that apparently i am producing just enough of the hormone myself to warrant NOT having to go on any meds, as he says its a "double edged sword" at least i don't have to take meds but my chance of getting back to normal a bit a quicker has gone out the window, this ****** brain haem has got a lot to answer for, cos i definately didn't feel like this before. ( sorry for the moan ). I don't think there is any info on it yet as it's only a trial, i think there are 10 of us taking part and it's going over a year?, i have to go back in Nov and have the test done again, so i should think something will come to light about it at the begining of next year.
I think it's going to be a bit longer before i'm wearing my knickers on the outside of my jeans, but hey ho
All the best
Jan xx
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Hiya Karen,
It was my left middle cerebral artery which was affected and i'm 7 months down the recovery line.
Iv'e found i can't walk for a long period of time without having to have a rest, if i don't have a rest i find my balance goes and i start to go off in all directions, also i can't put my head back to look up, this makes me dizzy, the same thing happens if i bend over to pick something up. My sight has been slightly affected, i'm getting an aura in my right eye and according to my optician my " tear film " is as dry as a bone, this explains why my eyes keep going red, to people who don't know me, it must look like iv'e been on a bender, red eyes and wobblin' all over the place
Jan
xx
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Hiya everyone, i'll keep this short, because the internet keeps knocking me off ( i've tried this about 1/2 dozen times ). I had a SAH on the 5th Nov 08 followed by a vasospasm and three TIA's and was readmitted in Feb 09 with a blood clot, I thought for one horrible moment it was another bleed!!!!!!!!.
Out of the blue, 3 wks ago i received a letter from Walton Outpatients saying that the Walton Centre had referred me, it was for my Pituitary gland to be tested, I thought it was a bog standard letter, but it turns out they have just received funding to test for damage after a SAH. They took blood every 1/2 hour for four hours after giving me a hormone injection, and iv'e just had the results, it turns out i am now not producing enough cortisol, they have done another test to make sure it's not a false negative, the Dr is phoning me next week with the results of that, if that comes back the same it seems i will be on hydrocortisone, which according to the Doc will only take a couple of days to kick in and i will start to feel like a new woman. I know a lot of people on the BTG site suffer severely with fatigue, so fingers crossed this might be the way forward for a lot of people.
I've just got to say a huge thank you to Arrowepark Hospital and The Walton Centre for the care i received, they were absolutey brilliant.
Hello to Janet,
Janxxxx
Life begins at 39 - Michelle
in Introduce Yourself
Posted
Hiya Michelle,
There's 2 things we have in common, the SAH and our birthdays . I had my SAH on the 5 Nov 08, mine, like yours, came out of the blue. I was home alone, my hubby had just gone to work on a 12hr night shift, luckily i didn't pass out and managed to phone him and get him to come home. I'm still sruggling with stuff, but i'm i hell of a lot better than i was, it's slow but sure.
This is a cracking site and although i don't post a great deal i come on most days and have a trawl through, its really comforting to know you're not alone, and there are people who understand exactly what you have been and are going through.
Best wishes
Jan x