rod123

Hi all, I would just like to say thankyou for the kind words of encourougement, i'm off to Addenbrookes on sunday for an op to remove a 3.1 centremetre tumour on the front left of my brain and hopefully this will give me 6 months of relatively pain free time bar the radiotherapy, which i dont really understand much about that ,but Merrill is now 3 years down the line on tuesday and she is so much better that she was so i have this to be happy for, really about the only thing she does'nt do is go out on her own and that is mainly due to her unsteadiness and the risks of falling,

I Hope i will post again, i now only have one lung so i do have what they call underlying problems, but i hope to speak to you all very soon Best Wishes Rod and Merrill x

Hi well done, found that a bit touching right at the end, especially the standing ovation well done, Best wishes Rod

HI shelly and welcome glad to hear you're getting on well, Merrill my wife had her sah 2years ago march the 27th just gone and she's had 3 angios and she breezed them each time,a little bit of soreness in the groin the next day and i do think they tell you to take it easy for a couple of days good luck for monday. Best wishes Rod

Hi i took Merrill my wife to Yorkshire for a week last year and the day after getting back she could not remember having gone that was 15 months after her ash and even now things are not much better if she watches the telly by the end of what ever we are watching she usually cannot remember the beginning,and when she rings her mother in the evening she has to ask me what we have done that day Best wishes Rod

Hi Merrill had her sah 23 months ago and has never returned to work she had 2 annis 1 clipped and 1 coiled and then a shunt fitted i think for some people recovery takes longer than other and for some complete recovery does'nt happen, but i heard a story on the radio about a lady who had an sah her husband was getting a record played for her and she had that day just returned to work 9 years later, so the moral must be never give up. Best wishes Rod

Hi my wife Merrill had a shunt fittted 21 months ago and it really did bother me at the time but i had a phone conversation with Paul (who answered this post above me) and he said something similar to this you have a heart and lungs in inside and you dont think about them and thats how her shunt will become and to be honest mostly that has proved to be true, it is a bit of a worry at the start but you learn to live with it and you dont think about it every day. Best wishes Rod

Hi, Sam sorry to hear of your illness, you seem to have come through it very well, i am a carer for my wife who had an sah 22 months ago and i think when it happens it's a scarey time for everyone, anyway welcome to the site.Best wishes Rod

Hi when Merrill had her sah it left her requiring hearing aids and i remember during the time docs spent looking at her hearing someone mentioned that if your blood pressure goes up a little you will sometimes get a gushing sound in your ears, it might be worth just getting your blood pressure checked out Best wishes Rod

Hi Rog sorry to hear about your wifes illness it is a scarey time, my wife had her sah 22months ago now,she had 2 aneurysms and had the first coiled and another clipped a few days later, it was the worst time of my life as i'm sure it was for you, recovery is different for everyone and your wife seems as though she's doing very well, the last 22 months has not been all steps forward there are times when things dont move forward or may seem that things have taken a step back but it was a serious illness and she has come through it but recovery can be long and drawn out for some and for others things seem to go much better so good luck to your wife with her recovery and remember there is no point in worry about what could happen as it probably never will, Best wishes to you both Rod

Hi Merrill takes a med for anxiety still 21 months on, her anxiety started at night and is always worse if she wakes during the night, you are right about gp not knowing much about sah but if you work it out there are 33,000 gp in the country and i think i'm right in saying about 8,00 sah a year so they dont really get the experience, but if you speak to your gp he should be able to identify and treat anxiety, the meds helped Merrill quite a lot. Good luck Rod

Hi Yes Merrills been like that right the way through,sometimes she has good periods then something completly different and unexpected happens recently it was a blood clot behind her eye,which they dealt with and something thats been going on for a while is that Merrills emotions seems to get mixed up, one night we had an intruder and while i was trying to sort things out Merrill just giggled all the way through it, Merrill does not respond to a situation how you would expect, so they are doing more blood tests this wednesday as they think it might be to do with hormones.

I hope you start to feel better soon Best wishes Rod

Hi just an update on this post merrill had an appointment at the TIA clinic at the N&N hospital and after all the checks and i think they are quite thorough, they now believe that it was'nt a TIA Merrill had but a blood clot behind the eye so they put her back on Aspirin and hopefully that should sort it out, Best wishes Rod

Hi just logged on to have a quick look,and would like to say A VERY MERRY CHRISTMAS TO YOU ALL FROM MERRILL AND I

Hi Merrill had her sah 21months ago now but if she doesnt have her sleep in the afternoon 2pm till 4pm she will fall asleep and just does'nt wake up till the next day and often if we visit people Merrill will sit there and fall asleep, most of our friends accept that now, as for dreaming Merrill says she does'nt dream as much since the sah as she did before Best wishes Rod

Hi Yes Merrill had pains all around her face they said it was due to the craniotomy and the nerves which they had to go through,she also had leg pains for along while after the op but they did eventually settle down Best wishes Rod

Hi all, thanks again for the help Best wishes to you all, Rod

Hi,as some of you will know Merrill had her SAH 21months ago now followed by a few complications the situation have been that she continued to suffer from chronic fatigue,poor short term memory speech difficulties and needs support when she walks,she also get very anxious at times this started to happen when her hearing started to deteriate.

On wednesday of this week Merrill started to get very anxious and was saying that there was something wrong with her eyes and after checking her peripheral vision i realised she was having problems with her right eye so phoned and spoke to the doctor who said take her striaght to A&E at the hospital which i did and they dealt with it very quickly she saw doc and she verified the problem and called for the neurologist but while we were waiting for him to come down Merrills eye seemed to correct itself and there was nothing for the neurologist to see, he said " i think we better put this down to one of those things that happen and we have no explanation" told me to take her home and if it happens again or anything unusual to bring her striaght back, so i took her home and she went to bed at 5.30pm and slept till 8.15 am next morning and got up and she was pretty good (she'd had about 10 bad days prior to this incident) that day i got a phone call from a doctor at the Hospital who said he had just reviewed Merrills notes and he actually thought she had, had a TIA and that he was going to try and arrange a letter to come out and get her striaght into the clinic and have her checked out for blood clots and have her heart checked out, my question is this has anyone else had this check for blood clots and what form does it take is it ct or mri or angio thanks for taking the time to read, Best wishes Rod

Hi Neil, hope you are both well and great to hear your good news, Best wishes Rod and Merrill

Hi again, i think classic symptoms of hyrdacephalus are loss of peripheral vision ie very much tunneled vision loss of coordination, sometimes what they call sunset eyes where your eyes tend to settle in the lower part of the sockets and generaly not being together if you know what i mean Merrill did'nt speak very much sense at the time either,Rod

Hi Sarah, my wife had an SAH 20 months ago now, and going to the hospital each day was horendous but things get better as i hope they do for you.

Welcome to the site best wishes Rod

Hi Kel glad everything went well for you at your angio, i took Merrill for one in november and it is an awfull day just the waiting around on top of the procedure, but it's over now and I'm sure the results will be fine , Merrill now has'nt got to go back for 3,1/2 years . Best wishes Rod

Hi yes my wife developed hydracephalus 7 weeks after the sah which was amonth after she came out of hospital they took her back into Addenbrooks hospital and fitted a shunt, Hope that helps Best wishes Rod

Hi Anne sorry to hear the sad news of your friends partner, I just read your original post on this subject and it occured to me that if they had said there is an 80% chance this op will go without problems instead of a 20% chance of things going wrong it might make people come to a different decision. Best wishes Rod

Hi Rhian and welcome to the site, i think everyone recovery rate is different and the problems are different for everyone, the feelings of sickness the doc maybe able to give you something for that and the tiredness is something i think everyone feels for some it last along while but for most i think it gets better as time goes by, you sound as though you are doing wellif you have any problems talk to your doc otherwise lots of rest lots of fluids and i'm sure you will get there in the end Good luck Rod

Hi Chrystal ,sorry to hear about your mum, but she seems to be proving them all wrong and i bet your mum is proud of you too, Good luck Rod