Guest reme_1 Posted November 24, 2007 Share Posted November 24, 2007 Hi,I'm from the US (Chicago area). New to your group and read many of your posts. Now overwhelmed with info. Jan 1992 I suddenly got attacked by the 'worst headache in the world'. Was taken to emergency room- of course they thought it was a migraine - except I don't get headaches. Even tho' I knew I needed help I couldn't sign myself in because I didn't have insurance from my new job yet. (In US we have to work full time 30, 60, or 90 days before we get insurance-- until then tough). The 1st night in the emergency room they xrayed my neck & head -- which showed nothing, of course. Somehow I got home in a taxi. Laid on my bed all day and sipped a little water and puked. After 24 hours the pain was still so pain I crawled to the phone, called a taxi again to go to the E R. I thiink they did a cat scan which I guess wasn't clear. Again, somehow I got home, same scenario: sipped a little water, spit it up, the pain like fire in my brain. I think on the 4th day I finally signed myself in, not knowing how to pay the bill. I don't have much recollection of these 2 weeks. This time they did an MRI which showed a burst blood vessel and one still twisted. For the next week and half, I was on strict bed rest to see if the blood dissipated and if the other vessel relaxed and if there were another aneurysm ready to burst. No sitting up, no going to the toilet. Since I was under morphine the whole time I couldn't even make sense of the tv or radio. I was pretty much out of it. Everything healed fine. No surgery or coils. Got to go home. I SEEMED ok. Went back to work WAY TOO SOON and had seizures every day. I just assumed it was because I went off pain killers cold turkey. I was 43 and healthy. Nothing was wrong with me. hmmmm It's been 15 years and occasionally I still have those upper body seizures starting with a sharp, very painful pain in my temple. There's no warning. I am aware of my surroundings but can do nothing to stop it or control it. My mother saw it happen for the first time this summer and I thought she'd have a heart attack (she's 80). Afterwards I'll be ok but really exhausted. Never did go to a dr for this or ask for meds for this. Now just last week (mid Nov 07) I was waiting for eye glass appt. and had 3 strange episodes (in 45 minutes) where I lost all control of my body. My speech slurred and my walking - the little I tried to do- was clumsy and unsure. The nurse put me in a wheelchair immediately and sent me over to the E R. I just spent several days in the hospital for MRI, cat scan, EEG, EKG, blood tests, etc. I was told I have simple partial seizures and got carbamazepine (anti-seizure med). Sorry for the LONG first post. I would like some feedback. After my hemorrhage, the doctor didn't mention seizures, or to continue seeing a dr, or not to go back to work too soon, or possible long effects. In your posts, you mention mood swings, loss of short term memory, trouble sleeping, trouble with concentrating, trouble handling life when in a crowded area. oy, oy, oy, I thought it was from just getting older. Quick examples: (1) My vision changes all the time. (2) When I worked in an office doing accounting, I'd give my boss a report, he'd make some changes, then I'd go back to the computer and sit for the 15-30 minutes having absolutely no idea how to run the report again- very close to tears. (3) I cry at everything on the news. (4) I haven't had a normal night's sleep in years. (5) I can not have a conversation if there are loud conversations or other loud noises nearby. I just started that new med so I can barely walk or sit up. It's a good thing I'm not working this week. Is gabapentin any better? Please help. If you have any suggestions, I'm listening. Again, I apologize for this post being so long. And thank you for your patience and understanding. Quote Link to comment Share on other sites More sharing options...
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