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About MelJam

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  • Birthday 04/09/1979

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    Savannah, GA

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  1. Hello Sarah, Thank you soooo very much. I also thank you for the suggestion for list. I have been thinking about doing that, but it slips my mind. That is another issue. I was everyone's reminder of everything. Now I can't even remember basic things for myself. I am going to speak with my primary physician about my depression. I just hate to go on more meds. On a brighter side, I am getting injection therapy for my lower back, so that will take a lot of pain away (hopefully). It has taken 2 months for the neurosurgeon to approve being off blood thinners. How long ago did you have your SAH? Again, thank you very much Sarah!!!!! Melissa
  2. Hello Winb, We got really bad news for husband. He will be going on Erivedge, which is chemotherapy for 10 months. And even after that, looks like he may still lose his eye. I know this is the time to be supportive of him, but me being so stressed has my head pounding and none of the meds work to make it stop. In front of him, I am strong, but alone, all I can do is cry. And I work at a call center, so I have to act all happy. I just thought I had a high stress level with my issues, but seeing my husband going through this is no comparison. Again, thank you for listening to me vent!!!!!!
  3. Thank you so much Winb!! It is such a relief to be able to talk with people that understand.
  4. Thank you Winb!! Other than my body absorbing the blood, I have had no physical lasting effects. I mean pain of course, short term memory loss, stumbling over words, and lost in mid sentences. These pains in my arms and legs have me worried about blood clots. However, considering what happened, I do know exactly how lucky I am. Sometimes I feel like I should not be complaining. Knowing how everyone else that has had a SAH has severe disabilities. Again, thank you Winb!!!
  5. Thank you Subs!!! I do have a great support system. My job does have me scheduled half days and tell me if you feel like you can work longer, I am more than welcome. That is really the only support they offer. It seem all I do is sleep. However, it is only a few hours at a time. My body got use to a 4 hour sleep schedule from being on nimodipine for 21 days. First 3 weeks I could barely walk. The pain from my body trying to absorb the blood was about as bad as the rupture. More than half the time I am home alone. My husband works out of town during the week. That is a bit frustrating, but he has to work. I have no children, so fortunately, that helps a lot. This also has my blood sugar unmanageable. My stress level is well beyond what it should be. My husband is about to go through cancer treatment(basal cell carcinoma, that has spread to his internal organs). So his income is is about to be minimal. This is why I am pushing myself to work more. Depression has set in. No doctors seem to care about that. Which get frustrating. Friends ask how I am. I tell them I am ok. It gets tiring hearing that someone is not ok all the time. A lot of people do not continuously want to hear bad news. After awhile, they just stop asking and avoid talk to me. Which is another stress trigger. My bosses have stopped asking. Especially after I told them the doctor is not doing surgery. Oh, and I am only 37!!! Thank you again!! It is great to know I have found an online support system.
  6. I had a SAH on the right side of my brain 2 months ago. With a 100% blockage on the left side . This has been the worst nightmare. At least I am still alive, but the pain I continue to have is unbearable. Not only the migraines, but different pain in my legs and arms. No one seems to be especially concerned with the pain I am in. After the first angiogram in the hospital, they kept me in neuro ICU for 5 days. I had a second angiogram a 2 weeks after. The neurosurgeon said he wants to put in a stent and that he thinks this needs to happen sooner than later. 2 weeks later we go to an appointment, he states he wants to put me on Plavix, then he will schedule the angioplasty. I return a month later with no further tests and he tells me he is not doing the angioplasty (with no real explanation). The brain spasms(vasospasm) kept for about a month. I think I still have them. Best way to describe is squishy head. I have episodes where I lose balance, my vision will have a vibration effect, bursts of white stars where I almost fall. I take 10mg of Norco and the pain still will not go away. However, the neurosurgeon said the migraines have nothing to do with with the SAH and gave me Fioricet ( which does not work). I had migraines before, but nothing like this. Not to mention, these are WAY different than any migraine prior. I can't work full-time. I am so sensitive to all light, especially the sun. I cannot look at my computer at work for more the 4-5 hours. I sit in my home after work crying half the time. I am scared to do anything strenuous or exciting, bending over hurts my brain(blood rushing), being outside in full sun hurts my eyes(even with sunglasses on). I have had about a total of a week relief(combined days) in 2 months from migraines. Hopefully, this new neurology appointment June 1st will come up with a treatment plan. Can anyone help with any suggestions?
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