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Crazy

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  1. They’ve said it all really. Hope you are feeling much better and sending much love. Dave
  2. I can understand the trepidation you feel. I could only remember parts of the first one I had. The morphine had well and truly kicked in by then. It was important to have this follow up though. The risk is minuscule and it was cool in the sense that it looked like a snake had bit me on my right femoral. It was important, they were able to diagnose my vasospasm (not an issue for you) and they also found my cerebral venous sinus thrombosis (not an issue for you either I suspect). DSA is the gold standard, you’ll be fine and it will give you peace of mind when they confirm it’s non-an
  3. Yeah, it’s hard going. We’re the lucky ones though and I know you don’t feel lucky at the moment but with time you will. Make sure you talk to someone about how you are feeling, you’re going to need to get it out and decompress. We’re all here for you to help as well. Dave
  4. I walked laps of the ward after about 10 days. I walked parkrun about 4 weeks after my bleed and subsequent clot. I ran it the week after. My wife was not happy. I certainly wasn’t right but really needed it. After about 3 months I was going alright. It’s been nearly 3 years and I’m running ultras and setting personal bests. Like everyone else said, everyone is different and you should ease into it but don’t let this setback set you back. Cheers, Dave
  5. I think time is the thing that helps the most. I know this sounds horribly cliched but I think it holds true. I had my 2 year anniversary just recently and it’s just a case of keeping heading in a forwards direction. I found learning as much as you could helped me through the early days. Like a lot here I found you weren’t given heaps of information initially. My neurosurgeons weren’t great at explaining it but the neurologist was heaps better. Guess I was lucky to get a blood clot as well! It’s a minefield but we are all here to try and help you with a safe path.
  6. Good on ya Bri. Keep on keeping on mate. It’s all any of us can ever do Cheers, Dave
  7. Well done Bri, super attitude mate. The only way to be!
  8. Good luck getting answers! That’s just the nature of PMSAH. I had my bleed, the initial DSA didn’t show anything. Neither did the MRI. Then 10 days later they find big blood clots in my venous sinuses but no cause for the bleed with the follow up DSA confirmed by MRI/MRV. They still had no idea. Not their fault, there was just no obvious source of the bleed or what caused the clot. It’s a tough one, would you rather have an aneurysm or avm and know the cause or keep your PMSAH and it’s generally better prognosis? The one thing I’ve gleaned is that rebleed for PMSAH is super rare. R
  9. Hey Bri, Sounds very similar to what I experienced. I managed to add cerebral venous sinus thrombosis to the mix and was running (slowly) 4 weeks later. Certainly felt a bit funny on that first month back but 12 months later it all seems fine. Sounds like we have a similar wife! My neurosurgeon said running was a good thing to do as long as I didn’t push to hard early on. Now I’m back to marathons occasionally and a fair bit a week. Your body will tell you if you’re going to hard. Enjoy it when you get the first one done! Cheers, Dave
  10. Cheers Chris. Can’t keep us runners down! Great work mate! AMI, I had my PMSAH July 28 2018. You will get to that finish line mate. If you can get to 10k now, you’ve got it. Just be ready for a smile that you can’t wipe off your face and a few tears as well. Well done!
  11. Great work win. We get those victories where we can and they’re all sweet. Well done xxx You get it Clare. I actually feel better after a run. I need it to help me get better. Well done xxx Well done to all of us. Keep swinging!
  12. As we all know, this experience isn’t always fun. It can be extremely difficult to wake up one day and everything in your life has been turned upside down. If I had to take one thing from all this: never stop trying. There will be victories. There will be more tears but those wins will be all the more sweeter. So what’s my recent victory? Before all of this PMSAH/CVST stuff I was a ultramarathoner. Loved it. Now the thought of it scares everyone who loves me. But we, the survivors, have to keep moving forward. Have to keep living, for if we don’t, what do we have to live for? So 2
  13. Hi Charlie, Im pretty lucky I think, I’m at a bit over 4 months and have had minimal issues since about 2 months. I’m back a work now, powering on as much as they need me (I’m a casual but worked 10 days this fortnight). I get tired at times, more so than before especially if I have to concentrate for extended periods. Run a marathon no probs but if I have to think... Stay positive is the best advice I can offer. I’m up and down a bit but as long as you just keep remembering it will take time and keep working at it, you’ll be giving your self the greatest chance at reco
  14. Hi Todd, All sounds pretty standard. I’m 4 months in now and felt pretty good after the initial awful time we all have with this. Now I can get a tad sketchy with similar to what you say. Give yourself time mate, you’ve had a brain injury. It will take time to come right. Stay positive! all the bst Dave
  15. Hey Jojo, As was previously stated, you are not an impostor. All of us recover differently. We all still had a bleed tho! Your experience sounds similar to mine so I can understand why you feel like that. I would run up to 130kms a week in training for ultramarathons and I am 45 so it sounds similar. I had mine 14 weeks ago today and seem to have made a full recovery. A few little niggles here and there but a lot better than a lot of people that are still suffering. Stay positive. I reckon that was the key. A few days after it happened, when I was starting to be able to
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