Sallios

Congratulations. That’s such encouraging news xx

Thanks. Compostc and congratulations on your anniversary too. It gives me a great deal of hope when I see others with many anniversaries behind them 😊xx

Thanks Karen and Jess and congratulations on 18 years today Karen 🎉😊xx

Count my blessings every day, grateful for support of my family, friends and BTG xx

I was driving when I had mine. Sudden pain and strange feeling like there was liquid running inside my head. I carried on driving as there was nowhere to stop and decided not to drive down the back lane and kept going on main road. I even managed to reverse my car on the drive.

I don’t know how I managed to get home but I have heard from other people some amazing stories about how they managed to reach safety. Once home everything happened: double vision, vomiting, feeling I was going to die. I remember being pushed up the slope of the ambulance then nothing for three days.

Took me ages before I could drive down that road even as a passenger and I still have flashes of memory as I pass the place it started nearly four years later. 

Thanks. Earliest appointment  is 26th July ☹️

Thanks Tina. Feeling lousy this morning. Going to try to get a gp appointment next week. 
Sally x

Me again! It’s been over two years since I last had migraine with aura and now I’ve had two in the last month. The one I’m having now is with a really awful headache. Also the visual aura started then went away after half an hour then came back again two hours later. I’ve had a headache for four hours so far: one side of head but very painful. A bit scared. 
Sally x

I was coiled but the scan last year showed I had a remnant

I’ve seen a lot of posts where you talk about your anni having a neck. Does anyone know if that’s the same as a remnant?

Heard today my annual MRA is next Tuesday. Keep telling myself I got through it last year and so fingers crossed 😊🤞

Congratulations. Great news 😊

I’ve just set up a monthly payment 😊

Sallios 

I’ve only just seen that Macca has passed. Very sorry to hear that. So very generous of his family to think of BTG. He’ll be missed. 😒

So sorry to hear of your loss. I haven’t been on here for a while. Win was always so positive and upbeat. Singing to everything. She will be greatly missed. 

Dear Fiona

Thanks for your reply. After having SAH it’s easy to fear that the slightest pain in the head might suddenly develop into something much worse. Nine months in I still get headaches but take them more in my stride for now. 
Best wishes

Sally 

Thanks Michelle for your reply. It’s really worrying and easy to wonder if it’s (SAH) happening again. Guess it’s a case of keep calm and carry on. 

Wishing you well

Sally x

Really disappointed tonight: haven’t had an aura for six months and I’ve just been woken up with one. Trying not to be scared. Also feels like my brain is being squeezed slightly. Just when I thought I was getting somewhere. 

Dear Sarah

Good luck with the angiogram. I hope it all goes well and doesn’t set off any auras.

Sally

Dear Michelle

Thanks for your response.

The auras are worrying but GPs don’t seem to be too concerned. 
 

I hope yours continue to be few and far between. Good idea to stay calm while they are happening.

Sally x

You’re right we should all avoid Dr Google but the problem is once you’ve read it’s hard to forget it. I just hope I can get my follow up soon. 

Dear Sarah 

Thanks for your reply. My experience of the auras sounds very similar to yours. Started in hospital and has continued ever since (11 weeks since SAH) getting more frequent. They start as a small flickering blob in the distance which quickly gets bigger and bigger until it covers my vision. Both eyes involved: open or closed. Zig-zag silver/black ovoid which flickers. Lasts between 20 minutes and half an hour but no headache.
 

It is reassuring to know that someone else has the same thing and that you are still OK. Unfortunately I’ve looked this up on Google and it says that aura without headache can be a precursor to a stroke. So this is preying on my mind. Like yours my GP didn’t have much to say about it. I’m still waiting for my follow up. 

So pleased to hear yours are finally reducing in frequency. 
 

Thanks again.

Sally

Thanks Super Mario. The admin team at my surgery have apparently been on the case for the last two weeks but to no avail ☹️ I’ll keep trying. 

I had SAH with coiling and EVD 11 weeks ago. How long before I should get a follow up appointment?

My GP says I should have one as does my contact from the Stroke Association and someone at Headway. I still have back pain although it’s not as bad as it was.

What’s worrying me more and more are the auras. They are getting more frequent around 3 times a week. My GP knows about them and says to ring for a follow up hospital appointment.

I keep trying but all I get is an answerphone and I leave a message but no appointment materialises. At a bit of a loss to know what else to do. It’s like a brick wall.

Does/did anyone else have frequent auras ? 

👍done x