Hi Everyone!
I've just got back from Leicestershire, Hinkley to be exact, and I couldn't wait, knackered as I am, to get to this board and I'm overwhelmed with the wonderful things you are all saying. (Neil Diamond is singing 'Love On the Rocks' on the TV as I write - great song! Sorry.)
Louise, I had the 'marvellous' task of dealing with the consultant at the hospital who informed me, 'We don't want to prolong Sharon's death any longer, so we won't be keeping her on the respirator or treating her any longer'(I kept this from her family until she was 'in the clear').
At the same time, I was advised in so many words to accept and give up on her - I came away seething but my sweetheart proved them wrong and was kicking all the way; literally. She still had her memory then, and it was one of the most emotional times I've ever experienced in my life. I went in one evening and asked her if she remembered the house, our lovely garden that she virtually lived in and nurtured, and the adventures we'd have in our camper; she had a tracheostomy but the words 'I love you' were perfectly formed in her mouth, it was unbelievable! These days, I'd have to say she probably has no memory of those times but she knows me when go in.
Pam, we are thinking of paying for private physio, but we are going to have a meeting with the Stroke Rehab Unit, who monitor Sharon's condition, and push for physiotherapy. I don't like the way Sharon's foot is starting to point forward due to the limited movement in her legs; it may be the fact we need but I know about the battle to get things and sometimes I wonder if it is down to funding.
Bogbrush, thank you so much; you were up ****** early this morning!!
And thank you Shanti and Fifibucks, we are fed up and feel she's been dumped even though the nursing home are great with her but they only do what the care pack says to do.
I'm so grateful to you all - you have really lifted my spirits. I haven't had much to eat today and this glass of wine is making me p****d!! So Goodnight and I'll see you all tomorrow.
Phil
xxxxx