Bev897056

Thank you for your kind replies....we are all in the same boat it seems:crazy: Penny, that's interesting, i didnt know that it could do that, my goodness, another thing to worry about! im able to see, its just there are lots more floaters that ever and my eyes appear a bit hazey and shimmery if that makes sense??! Can I ask how did they clear the optic nerve? I had the vision field test done at my optitions, and it showed some areas at the top of my vision that appeared to be blacked out, I took this report to the consultant,so maybe he is following up??? Oh I can tell you something, I do sleep better knowing im not on my own! I love it on here!! xxx

Hi Guys I hope you are all well. I just have a question please if you could help out?? I went back to see the consultant two week ago and he didnt have the radiologists report for my recent MRI but looked at the images and said that he can not see anything so believes that it was something that has blown itself up and sometimes they may never know whats caused the bleed and that I should call his sectary in a week to get the radiologists report which i did and she was on holiday, so Dr Phillips (neuro surgeon) called and left me a msg to say that report is bk and there are no vascular abnormalities and no tumours and he will speak to me next time, and when I have called hospital, I am on a waiting list for a clinic appointment....??? he has also scheduled me in to see the eye clinic for tests! It just seems that nothing is ever clear,could this be because im not in any danger and as i have now had 2 CTS one with dye,an angigram and 2 MRI'S one with dye which only showed the bleed and clot that was left to dissolve (& on last mri this was nearly gone, area healing well apparently) so they are just leaving me to it? and do u think that the eye tests are to see what the damage has been? and do u eventually get signed off with consultant?? I havent officially been told whats caused the bleed? maybe coz they dont know??? There never seems to be anyone to ask questions like this to as my GP doesnt really know???? Any help and advice is appriciated.... Bev xxx

It is such a comfort to know that it's not me going mad and these horrible symptoms r after effects of having a bleed in my brain! I am so grateful that u have all replied and kris u sound like u have had the same symptoms as me and found it all just as hard to deal with.... I am going to join a gym this week and swim and do yoga to try chi me out. It's all the not knowing that's done me and the dr and neuro surgeons just have a get on with it attitude but sometimes I do t even feel like I'm on this planet and it's a struggle to just get on with it. I need to return to work too soon something which I'm dreading coz I just don't feel 'right' but who knows when I will. Wishing u all well Bev Xxx

Thanks for your reply! I think a lot of my symptoms are due to anxiety to be honest, I have just totally changed as a person and struggle with this, thinking that I should be ok, but at the end of the day, we have all suffered a serious condition, and i need to accept that my brain will take time to heal. I just wish that people could also understand that just because I look ok on the outside doesn't mean i am better now! Its this spaced out living in a dream that i struggle with,like a clogged head, but maybe it is a mixture of the bleed and over thinking stuff! Im so grateful for this website and reading others stories! x

I am new to this site after brain bleed in March and that explains it all....I have lost all confidence in my body now, i thought stuff like this happened to others!!!! You never ever know what is round the corner and i will never take anything or anyone for granted!

Hi I posted earlier about issues with floaters and flashing lights after my bleed in March,but I forgot to mention about the issues I have with my ears feeling full and noisy and just the general feeling of being on another planet, spaced out and dreamy?! I just would love to hear if this is normal?? and also, because they haven't found a cause for the bleed what could it have been? a vessel that has blown itself up? I have so many questions arrrrggghh!! Bev

Hi Everyone I have recently found this site and hope that anyone can let me know if they are experiencing what I am after my brain bleed with no cause i may add.... I suffered a bleed in my right temporal lobe, 4 month ago and stayed at Leeds LGI for a week to be monitered because the bleed had happened 3 week prior and after seeing 7 differet dr at my gp surgery and not being diagnosed with anything, I finally went to the optitions and they rushed me straight to LGI as i had swelling at the back of my eyes from the bleed. The neuro surgons are saying its a sizeable bleed and have had 2 ct scans 1 with dye, an angiogram and an mri with contrast, nothing detected yet apart from the blood that is hanging around and breaking up. I just wanted to ask everyone how you felt after the bleed as 4 months on, I feel sick, dizzy, eyes seem to dart etc and just feel spaced out like when i walk im in some sort of dream world, also have blurry vision,lots of floaters and flashing lights and balance issues! I am 30 years old, just turned 30 after the bleed infact so not good being 30 so far, i have a 2 year old son and the whole thing has just turned my life upside down as all i do is worry. I am even seeking counciling for anxiety as i am so afraid that i will have another bleed. I returned to work and work at a desk on a computor all day, and have issues concentrating what with the dizzyness etc......so im back on the sick for now. Will i EVER be the same again?? I really would love to hear from anyone who may have these symptoms and is this normal??? Thanks guys Love Bev x