Rachel G

Thanks for the replies. A neurologist recommended neurontin for the nerve pain a few months ago but I never tried it....I think I will though. Do you guys have any idea why the burning/tingling is in whole head when my craniotomy was just on one side? No one seems to have a good answer and I'm curious to hear your thoughts. One more question....why headaches and strange head sensations so many yrs later? The first three years post op I was symptom free.??? Thanks for your support and time...I finally have a place to turn for support and answers

Does anyone have strange feelings / chronic headaches so many yrs after their craniotomy? I had an SAH / clipping in 2005 and years later still have wierd head sensations (burning, aches, tingling) all around the head...not only at the surgery site. I've been checked out by numerous docs (GP, neurosurgery, neurology) and I've had several tests.....everything comes out clean so docs think it's nerve pain and anxiety. Anyone else have this? It's driving me crazy!!!