Charza

Hi there Anne, thank you so much for taking time to reply. I hadn't heard of Same You, so that is a really helpful resource, thank you again. It has been 3 months since the NASAH for me and sleep issues since end of Dec. Have a GP appt Monday so will see how I get on. I was in hospital for 2 weeks, but got no info on anything when I left. Take Care too xx

Hi Clare, Thanks for taking time to reply. I had the bleed just under 3 months ago. I had some jerking in the hospital and sleep was so disrupted due to all the meds and checks, etc. They became more regular about a month from initial bleed.

Hi all, this forum has been the most helpful in everyone's kind sharing of information and experiences for me to better understand what actually happened to me. The emergency care was amazing, (UK resident) but feel like there is minimal follow up support and just left to find own way with symptoms and management after discharge. I feel so lucky with having a bleed without the anneurysm - although there was an extensive bleed, no cause found. I had 3 lumbar punctures for pressure management and was restarted briefly on nimodopine for vasospasm during my 2 week inpatient stay. I think I am recovering really well but having major sleep issues. I have developed ongoing issues with jerking limbs everytime I fall off to sleep that start with a single limb - usually an arm/leg but progresses to all my limbs and sometimes feels up my back and neck too. Then the affected part feels all tingly for a bit. It doesn't hurt, but they can be quite powerful. I don't actually have an issue with wanting and falling asleep but he jerks wake me up every time. I often can't finally get to full sleep until around 4am. So this impacts on everything else the next day. It also makes my tolerance for frustration and petty annoyances at an all time low - yikes! I have been practising all the good sleep hygiene advice and over the counter antihistamines and chamomile teas etc. I have noticed that if I drink a glass or two of wine I actually sleep better, but don't want to end up medicating this way. It is really difficult to speak to a GP and the neuro nurse has told me I am discharged from her service and these symptoms aren't from the SAH just coincidental timing. Has anyone else had issues with their sleep and managed to resolve them? Thank you for taking time to read this, wishing every single one of you positive vibes and the very best in your recovery.