MUTTI

OK SCOTT

THEN IT WOULDN'T BE SYMPTONS. DON'T YOU THINK IT WOULD FALL UNDER SHORT TO LONG TERM AFFECTS? SEEING HOW SOME OF US CLEAR UP OVER TIME AND OTHERS ARE STILL DEALING WITH THEM.

EVELYN

SCOTT MY COILS ARE MADE OF PLATNUM AND WAS NEVER TOLD OF A PROBLEM WITH ANY TEST, I WAS TOLD THAT IT WOULD NOT SET OFF METAL DETECTERS BY AN EMT, AND THAT THEY CAN STILL USE PADDLES ON YOU IF NEED BE WITHOUT ANY DAMAGE.

HOW DETAILED DO YOU WANT TO GET ABOUT RECOVERY?

AND ARE THE SYMPTONS COVERING BEFOR OR AFTER SAH OR DURING?

HERE IN THE USA THE DR REPORTS TO THE DMV AND HE HAS TO REPORT BACK TO RELEASE IT.

THAT IS THE ONE THING THEY HAVE THAT IS CONSISTANT ABOUT SAH HERE.

I HAVE TO SAY I DID NOT GET A HOLD ON MY LICENSE BECAUSE I HELD A LICENSE IN ANOTHER STATE AT THE TIME OF SAH AND THEY HAD NO IDEA WHERE THAT WAS.

EVELYN

ANNE

I DO UNDERSTAND EXACTLY WHAT YOU MEAN, I FEEL LIKE A BORE ASWELL, GLOOMY AT TIMES, I HAVE TROUBLE TRYING TO FIND THINGS TO TALK ABOUT, AND TRAPPED INSIDE THIS PERSON THAT I DON'T REALLY KNOW ANYMORE. SORRY DID NOT MEAN TO GO ON SO.

LOVE AND HUGS EVELYN

HI KIM

THANK YOU FOR SHARING YOUR STORY AND I AM GLAD YOU ARE RECOVERING SO WELL.

PLEASE STOP IN AND CHAT SOMETIME.

I AM SO SORRY YOU LOST YOUR DAD, I TOO LOST MINE SHORTLY BEFOR YOU DEC 29 97, BUT NOT TO SAH A HEART ATTACK TOOK MINE.

LOVE AND HUGS EVELYN

YOU KNOW I HAVE NO SCARS YOU CAN'T EVEN SEE WERE THEY WENT INTO MY LEG FOR ANGIO,

BUT I WISH THEY COULD SEE THE SCARS INSIDE, I SURE FEEL THEM.

HUGS TO ALL EVELYN

LAURA I COULD NOT USE ONE OF THESE I CAN'T STAND ANYTHING COLD NEAR MY HEAD OR NECK IT MAKES ME HURT. BUT WE ARE ALL DIFFERENT.

THANKS FOR TRYING EVELYN

OUR NEWS SAID SHE HAD A TUMOR THAT CAUSED THE HAEMORRHAGE, AND IT FOCUSES ON THE BABY.

EVELYN

WELL I HAVE TO AGREE WITH EVERYONE YOU HAVE TO WONDER WHERE THEY ARE GETTING THIS TIME FRME FROM. I WAS SENT HOME WITH A PAPER TELLING ME WARNING SIGNS ON THE INCISION OF A CLIPPED SAH, (AND I WAS COILED) ALONG WITH A WHOLE LOT OF PERSCIRTIONS. OTHER THAN THAT JUST FEAR.

THIS IS WERE WE THROW ARE HEADS BACK AND LAUGH AT THE SILLY PERSON

HONESTLY WERE DO THEY GET THIS STUFF EVELYN

IT IS VERY SAD BUT SOMETIMES A BLESSING COMES FROM A TRAGEDY.

I ONLY WANDER WHY THEY DIDN'T WAIT LONGER, AND GIVE THE CHILD A BETTER CHANCE OF SURVIVAL WITHOUT COMPLICATIONS, AT 25 WEEKS THERE CAN BE SO MANY, I KNOW FROM EXPERIENCE AND IT WASN'T A HAPPY ENDING.

LETS JUST PRAY THAT SHE DOES WELL.

WITH GREAT CONCERN EVELYN

WELCOME KOMODO

I HAVE NEVER HEARD OF TERSONS SYNDROME, BUT I HAD MY EYE COVER WITH BLOOD TWICE AFTER SAH NEVER SEEN THE DR ABOUT IT, IT SLOWLY WENT AWAY AND I HAVE SO FAR NOT HAD IT HAPPEN AGAIN.

GLAD YOU MADE IT THROUGH LOTS OF LUCK TO YOU.

EVELYN

HI DEBBIE

WELCOME HOPE YOU ENJOY THIS SITE LIKE I DO.

TAKE CARE EVELYN

IT SOUNDS LIKE MAYBE THE FIRST PLACE TO START WOULD BE THE HEAD NEURO AT THE HOSPITAL PERHAPS SOME ONE COULD PUT SOMETHING TOGETHER FOR OUR WHOLE GROUP?

IT IS THE SAME HERE IN USA.

EVELYN

I DID HAVE TROUBLE CATCHING WHAT WENT AROUND BUT NOT ANY MORE.

I HAVEN'T CAUGHT ANY THING FOR OVER A YEAR AND A HALF PLEASE READ THE BOOK I SUGESTED IT ITS ALL ABOUT KNOWLEDGE AND IT IS IN THE BOOK I HATE HEARING HOW ILL EVERYONE IS ALL THE TIME IT MAKES ME FEEL BAD.

GET WELL SOON LOVE AND HUGS TO ALL EVELYN

I DON'T GET THAT PROGRAM IN US BUT SOUNDS LIKE THEY NEEDS A GOOD REAMING AND REALITY CHECK... AS IF WE DON'T HAVE ENOUGH TROUBLE GETTING SOME ONE TO LISTEN TO US.

EVELYN

IT IS VERY SAD, WE KNOW A COUPLE IN PORTLAND OREGON THAT LOST THERE 13 YEAR OLD TO A BRAIN HAEMORRRHAGE. WE JUST NEVER KNOW, MY DR THAT WAS MISS DIAGNOSING ME, IS EXPERIENCED, UNFORTUNATELY I THINK DR THAT DO HAVE EXPERIENCE FAIL TO LISTEN TO WHAT IS BEING TOLD TO THEM, AND THE CONCLUSION WE ALL HAVE MIGRANES...

IT IS A SCARY THOUGHT TO HAVE TO TRUST SOME ONE WITH YOUR LIFE WHEN THEY WON'T EVEN LISTEN AND PERHAPS LEARN A LITTLE MORE.

EVELYN

HI CAROLINE

GO AHEAD MAKE THE CHANGE, YOUR HAPPINESS IS THE MOST IMPORTANT THING, I AGREE WITH YOUR HUSBAND AND PAUL FOLLOW YOUR HEART.

LOVE AND HUGS EVELYN

MY HAT IS OFF TO YOU, BUT ONLY FOR A MOMENT I MUST KEEP MY SPRINGS WARM

THAT IS WONDERFUL I AM GLAD YOU FEEL BETTER AND YOU ARE HAPPY WITH IT.

LOVE AND HUGS EVELYN

HI MYRA

TOO HAVE HAD PERSONALITY CHANGES, QUIKER TO ANGER, MORE VERBAL I TEND TO BLURT OUT THINGS AND I NEVER WOULD HAVE DONE THIS BEFORE.

AS FAR AS THE MEDICAL PROFESSIONAL AND I USE THE TERM LIGHTLY, THEY SHOULD LOOK INTO THE AFFECTS BUT I FEAR ALL THEY WILL WANT TO DO IS MEDICATE US I DON'T NEED MEDS JUST UNDERSTANDING.

AS FAR AS THE COUNCELLOR GOES YOU HAVE TO ASK YOURSELF HOW MANY CASES OF SAH SURVIVORS HAVE THEY TREATED, AND CONSIDERING HOW MUCH THEY KNOW ABOUT US I FEEL IT IS SAFE TO SAY THAT YOU ARE NOT IN DENIAL, THEY ARE WITHOUT THE KNOWLEDGE TO HELP YOU.

THAT IS MY TWO CENTS WORTH.

DON'T LET IT GET YOU DOWN YOU ARE A WONDERFUL PERSON AND ARE JUST GOING THROUGH A NEW EXPERIENCE.

BIG HUG FOR YOU LOVE EVELYN

HI DONNA

I AM ALSO FEELING THE SAME AS YOU, AND IT HAS BEEN 3 YEARS IT SEEMS TO COME IN SPURTS AND THEY ARE FARTHER APART BUT LAST ABOUT THE SAME AMOUNT OF TIME.

HUGS FOR YOU HOPE IT PASSES SOON EVELYN

HI NURIANNA

I WAITED TOO AROUND CLOSE TO A YEAR TO HAVE MY HAIR CUT, BUT I HAD MY SAH COILED SO HAIR COLOR ONLY A COUPLE MONTHS BUT I HAD MY DAUGHTER DO THE COLOR, I HAD A HARD TIME LETTING ANT INE NEAR MY HEAD I KNOW IT WAS PSYCHOLOGICAL BUT IT STILL BOTHERS ME I TALK LIKE A CRAZY WOMAN WHEN I GO HAVE MY HAIR I AM SO NERVOUS.

BUT YOU WILL FEEL IT BETTER NO DOUBT.

LOVE AND HUGS EVELYN

HI SHELLY

I CAN ONLY SPEAK OR MY SELF BUT IT HAS BEEN 3 YEARS AND BRAIN FOG IS STILL AN ISSUE FOR ME BUT SEVERITY VARIOUS DEPENDS ON WEATHER STRESS ETC. ASWELL THE CONTROL DOES IMPROVE BUT IS STILL AFFECTED BY THE SAME THINGS. MY HAND SOMETIMES JUST LETS GO OF THINGS I AM HOLDING BUT DOES NOT HAPPEN AS OFTEN AS IT USED TO. I STILL GET DIZZY BUT THAT GOES ALONG WITH THE REST GOOD DAYS BAD DAYS BUT GOOD ARE OUT WEIGHING THE BAD.

SO PLEASE TRY TO BE PATIENT, ONLY TIME WILL TELL.

LOVE AND HUGS EVELYN

WELCOME TO BTG BARBARA

THIS IS A GREAT SIGHT WITH A WEALTH OF FRIENDS AND INFO.

XXX EVELYN

HELLO TERRY AND WELCOME TO BTG. YOU ARE AMONGST FRIENDS AND HOPE YOU FIND THE HELP HERE THAT I HAVE FOUND.

XX EVELYN

THAT IS GREAT NEWS CAROLINE YOU TAKE CARE AND ENJOY.

LOVE AND HUGS EVELYN

HI LILAN

I HATE TO SOUND NEGATIVE BUT FINDING ANOTHER DR COULD POSE A PROBLEM I HAVE FOUND AND THROUGH MANY ON THIS SITE AS WELL THAT DR DON'T KNOW ENOUGH ABOUT THESE THINGS ONLY HOW TO REPAIR THEM.

I READ THAT THE ANNI IN THE BASE OF THE BRAIN ARE THE ONES YOUARE BORN WITH AND THE OTHERS DEVELOPE. MY UNCLE HAS HAD A STROKE AND AN AUNT ASWELL A COUSIN AN ANNI AND MY GREAT GRAND FATHER DIED FROM AN ANNI.

AND I HAVE RECENTLY READ THAT THEY SAY COCCAINE CAUSES ANNI'S SO CAN ANYONE KNOW FOR SURE I THINK NOT, ON THE OTHER HAND YOU REALLY SHOUDN'T ALLOW YOURSELF TO WORRY LIKE THIS WHEN YOU THINK ABOUT IT IT IS A HIT OR MISS THING AND WE CAN NEVER BE SURE WHO WILL BE AFFECTED.

I AM UP LATE TONIGHT WAITING WORD ON MY SON HE WAS IN A QUAD ACCIDENT TONGHT AND WAS TAKEN BY AMBULANCE TO THE HOSPITAL. SO MAYBE IT IS THE STRESS OF LIFE THAT CAN CAUSE SUCH THINGS BUT MORE PEOPLE STRESS THAN HAVE ANNI'S SO THAT SHOULD BE A COMFORT. JUST REMEMBER LIFE IS TOO SHORT TO SPEND IT WORRYING SO.

AND I HAD A SCAN IN 1992 AND IT SHOWED NO ANNI THEN BUT 13 YEARS LATER IT HAPPENED.

SORRY TO HAVE GONE ON LIKE THIS BUT I WAS JUST SAYING WHAT CAME TO MIND.

XXX EVELYN