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hwyaden

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hwyaden last won the day on September 20 2014

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About hwyaden

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    Welsh Valleys
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    Carer

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  1. thanks peeps. i've got two a.m.'s chasing the health board now to see what's going on re. our complaint.
  2. Hubby is doing really well since I was logging in here every day. We're still waiting for an outcome of the complaint against UHW Cardiff and have now got our Assembly Members involved as the hospital just keep ignoring me. Conrad should have had his 6 month check up back in June but only now has he got an appointment for the end of September and that has taken many phone calls and emails to sort out. Conrad is walking much better now but the pain he gets on his bad side gets him down a lot. His aphasia is improving all the time and he's getting more confident in speaking to peo
  3. who could do that? would it be the gp?
  4. sorry for my long absence on here - it's been a long time since i had a chance to log in since hubby came out of hospital (well, since i kidnapped him ) he's doing really well despite some awful disabilities. he has right sided weakness, severe aphasia and right sided hemianopia and double vision. the thing causing him the most problems right now is the pain on his right side. he describes it as stabbing and cannot sleep well at night because of it. the sites of pain vary from day to day but it's usually his right eye, right foot, right groin and inner thigh and his face on that
  5. no apology needed - i could feel your anger pouring out in your post and you have every right to feel like that, given what you and your lovely wife have been through. i've heard from the hospital - they've given me a named person to help me through the complaints procedure so i'll keep you posted. best wishes to all of you - you're such a fantastic bunch of people, oh and win - the leader of the local stroke group is a singer and bursts into song at the drop of a hat - you'd get on well with her
  6. it's been a busy couple of months. to cut a very long story short my husband learnt how to use his mobile phone and it was only then that we realised how much he was being neglected in hospital. he hadn't had an eye test, physio, occupational therapy or anything and we were told he would move to a rehab hospital nearer home when a bed was available. he spent weeks sitting staring at the floor waiting to be moved, then we found out someone hadn't sent in the relevant paperwork for him to be transferred. hubby was begging to leave hospital so we picked him up. the hospital phoned our gp an
  7. wow - scary stories!!!! had a chat tonight and apparently they were waiting to do the angiogram when he was more compliant as they didn't want to give him another general anaesthetic. they're pretty confident the coiling will do the trick so it's just a matter of waiting until next week now. they also gave him a scan today to see if there was any reason for his double vision. he's got a patch on his eye today so he can see
  8. do you think the signing of the consent form has anything to do with the delay? does the patient themselves have to sign it? only hubby hasn't really been 'with it' enough to do that until now.
  9. i hope it works. they've told him the worst case scenario is more brain surgery to do clipping so now he's convinced that that's what will happen. his bi-polar hasn't been bad at all since he's been in the hospital but i can see he's at risk from an episode with all the stress this is putting on him. i don't often wish time away, but i wish it was next week and the whole procedure was over and done with.
  10. thanks all - i'm waiting on a phone call from the vascular specialist and i'll ask her why it's taken so long. hubby is devastated that he's not moving nearer to home just yet and can't understand why they won't just let him go. i keep trying to explain that this will hopefully stop any further trouble in his head but he just doesn't understand enough about it yet.
  11. hubby had his intra-cerebral bleed 3 months ago and he had a blood clot removed from his brain, but no coiling or clipping was done. now we're waiting for him to be moved closer to home the hospital has done an angiogram and have found the aneurysm which needs attention. they said they'll try coiling it sometime next week and if that fails then they'll go inside and clip it. i'm kicking myself for not asking the doctor this afternoon why they've waited until now to give him the angiogram and do something about the aneurysm -he's been in hospital for so long so i don't understand why they'v
  12. it's that love and devotion that's keeping her going! how is she right now? has she got over the operation? let's hope she won't have to have any more and can put her energies into getting better each day. xxxxxxxxxxx
  13. i think she's gone back to the home she's been staying in, but i'm waiting for the day when she goes home with paul for good
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