kellieone

hi there thankyou for the welcome i had my bleed in march but the OT did tell me that it takes around 2 yrs for the brain to heal. the pain is not unbearable so i do feel abit guilty as many people seem to have unbearable headaches. think i should just mention it to g.p anyway, think it just makes me anxious when i feel it probably had it before but did not take any notice kelly xx

hi there i didn't have an anurysm, no high bp before and none now so i'm not on any meds, i do get occassional pain but nothing i need meds for just the odd paracetamol xx

hi all just wondering, my bleed was on the right, i get those strange sensations on that side the ones we all talk about, but get more pain on my left side of brain, do you think that is connected or just the normal kind of pain we all get anyway? wouldn't have thought anything of it before but as we all now every little thing.... kelly xx

yes i intend to keep a check on my bp and to work along the lines as if i had a problem with it, cause obviously i can have a problem with it if you get what i mean ha ha sorry to confuse xx

neither of my children really came near me in hospital and my oldest when she did didn't really speak to me, as soon as i could walk it was like someone had switched a switch on, they both immediately went back to normal with me, my daughter laughing and joking and my son jumping on me which hurt but i tried not to let it show ouch ha ha it's harder for children because they don't really understand and it's alot for them to deal with. like sami i let them no thats it ok to say and ask what ever they like, that all thoughts and feelings are ok xx

hi tammy my mum and my sister have suffered a great deal since i became ill in march 09. they both looked after my children aged 11, 3 and 7 wks at the time. there lifes were turned upside down both had been doctors and told that they were suffering with post traumatic stress. my mum still has not gone back to work although as time goes by she does less for us, it has effected her pretty bad, she doesn't like to talk about it and my sister blocks it out they both witnessed what happened whilst it was happening. i feel for them as i don't no how i would have coped if i had seen them like it its terrible to see someone close to you in that way, so close to death, and then i was paralysed couldn't do a thing for myself till 8wks after. my 11 yr old doesn't talk about it and when i speak to her she makes it short ands sweet, my 3 yr old talks alot about hospital and my poorly arm and leg, my baby does'nt have a clue and thankfully we didn't loose our bond. i no they all worry about me but try not to show they are overly concerned, i have anxiety attacks and i see the worry in their face. i think that as a carer you feel you need to be the strong one and when the cared for are alot better the carer starts to wind down from all the stress, worry etc and then it starts to take a toll on them, its so important to let it out, you've been through so much yourself. kelly xx

hi ray im also new here, look forward to speaking to you kelly x

hi andi, it's unreal what some people come out with, it may have been a mini stroke on a medics scale but to you it is something very big and will of course effect you and your life, i understand about the anxiety, we all no things can happen to us but when it actually does it is a different matter, as i've been advised confidence and time will be the healers esaier said than done sometimes during these early stages but talking with people on here has helped me a great deal already, weve all been or are going through very similar things so that makes it easier for us x

hi myra, are you on any medication for BP now? i'm not have not had high bp since but have been told to go for regular check ups x

thanks for that, yes we all have alot in common but no 2 of us are the same, yes i think they may have also kept me in cause i misbehaved then on the other hand i'm surprised they didn't evict me there was some great staff i really miss them x

now i've thought about it i think the answer is obvious, it must depend on where the bleed is, how big etc... they said my recovery was really quick and i was discharged earlier than they expected so i guess i just to have to go with that xx

i've been reading about non anurysm sah and im abit confused, well i am anyway but abit more now :confused: people with non anurysms had quite a short stay in hospital whilst i was there for 3 months, my story is non anurysm but is more like that of an anurysm :confused: hope i'm making sense i was paralysed down my left for 8 weeks and still am weak although getting stronger, any answers or ideas would be much appreciated! xx

hi rod, thanx for the message, my recovery has been really good and quite quick, the probs i'm having are rather mild, my walking is quite good still limping though, my main thing right now is the mental/emotional part i.e anxiety panic attacks, obviously my left side is still weak but also quite strong. where was merrill treated? all recovery is different isn't it? yes we are both extremely lucky for this im eternally grateful, your right we just have to get on with what we have to do. i really feel for carers/close relatives of us, sometimes i don't think people realise what you are also going through, i don't no if you find this but i often think it of my mum x

thankyou so much xxxxx

hi has anyone had an sah not due to avs, anurysm etc.. i did and would like to speak to anybody else who has i also had a stroke xxxx

hi celia, i lost alot of hair whilst in hospital and upon release it went on for about 6 weeks in total and has thankfully stopped now

hi andi, i to am my own worst enemy! anxiety has been the worst part of my recovery at home. i think talking to others will help us x

thanx again for all your welcomes! xx

hi there thankyou for your reply, its agreat comfort to no i am not alone and have found people who share what i have been through. i didn't have an anurysm, mine was caused by hypertension, i didn't have HB before and not had it since. they said i have nothing on my brain aqnd if i have it was to small to pick up so i guess im lucky as people with anurysms have had to go through surgery etc where as i skipped that part. i look forward to speaking to you more

thankyou its so good to no that others have experienced the same. well it is'nt good cause if i had my way these things wouldn't happen. i'm glad i've found this site i think it will help me alot. hope to speak sn xx

ha ha no im not a leicester fan xx

thankyou everyone for your warm welcome, i look forward to reading your stories and getting to no you all xxxxx

cont... after arriving at qmc i had another CT scan with dye? and was told that i had, had 2 bleeds caused by hypertension, i have never had HB before and haven't since that day, i was told i had no anurysms or avs and the blood would be absorbed back round the body. i was shocked but pleased as i automatically thought that i would have to be operated on. the panic attacks continued until a doctor came in and at last told me that i was not going to die. i didn't really understand what had happened or what was going on all i knew was that i couldn,t move, couldn't look to my left and my head hurt. they said that recovery would take along time, i had no idea how long!! i just wanted to get home i have 3 children aged 11, 3 and 7 mnths she was only 6 weeks old when it happened so i was desperate to be with her. my mum was allowed to stay with me for nearly a week whilst my sister only 23 was at home with my 3 children. what they went through then must have been awful to say the least. nobody could tell me if i would walk again or regain my arm. i stayed at qmc fot 3wks until a bed became available at leicester general hospital, i was moved there to be nearer family. some of the staff there were amazing, others i was'nt so impressed with! the physios came to see me very early on and started work with me which although sitting up was very scary as i kept falling cause id lost my balance i enjoyed it cause i just looked at it as its one step closer to going home. when i arrived at LGH i was so happy to be home, 1st time ive ever been glad to be in leicester i met my consultant DR Critchley a lovely man and was told that i'd stay on the neuro ward as i was on a waiting list to go to the younger disabled unit which is a building apart from the general for intensive rehab, but there is a long waiting list. to be continued xxxxxxxx

hi all i had my sah/stroke on march 21st 2009, i was at home decorating when i developed a headache, it rapidly got worse and so i presumed it was a migraine. i could not look at the light and laying down did not help, my mum reassured me on the phone that i was ok just to lay down in a dark room. after around 30-40 mins i was repeatedly sick but still thinking it was a migraine. after around 20 mins after 1st being sick i stood up and my arm was floppy i could not move it at all. i called my mum and my aunty came and took me straight to a&e, there nobody seemed to rush to my attention although by then i really thought i was going to die. whilst being assessed i realised that i could not look to my left i was in a sheer state of panic. i was put in a bay to wait to see a doctor. i cant remember much about this apart from feeling like i was going to die and shouting staff to come to me which they did not, my aunt had gone to bring my mum to me as she obviously knew that what was happening to me was serious. before my mum came i was taken for a CT scan, after having the scan i stood up and my leg felt wobbly. i was quickly sat down and after that my entire left side was paralysed but i still had feeling. i was put into recuss and told i was going to be taken to the queens medical centre nottingham, i paniced even more. i kept asking if i would die but nobody answered me, 1 nurse laughed and said no your not going to die. i wonder if i imagined that?? as my story is rather long and i have not really repeated it before i will continue another day xxxxxxxxx

thankyou for a quick response, i am taking anti depressants and have just had my first session with a councillor, im glad i found this site to share things with people that understand, i think your right it is early days recovering from a traumatic event and i think strength, a positive attitude and time will be a great healer, somedays easier said than done:frown: i think looking through this site will help me a great deal. thankyou kelly xx