Tiny Dancer Posted June 7, 2013 Share Posted June 7, 2013 Have any of you been diagnosed with a NASAH caused by this rare condition known as Reversible Cerebral Vasoconstriction Syndrome (RCVS), sometimes known as Call-Fleming syndrome? That's what the doctors at my hospital here in Canada told me caused the bleed, without aneurism, in early February. The main symptom, which brought me into emergency, was thunderclap headache, first and worst ever, which had occurred four days before. They are still not sure what had triggered the bleed, which was small, they said, although several arteries affected. I am (or was) a very active 60-something female who was in good health before this occurred suddenly. My recovery is not going as well or fast as I had anticipated, based on information they gave me upon release (they said headaches caused by blood reabsorption through system would disappear within three months; also they did not predict the nausea that I have started to experience recently). With the help and love of my husband, grown children, younger sister and a few close friends, I am trying to be patient and positive. This site is an excellent source of data and fulfills a need for a community of folks who understand each other's ups and downs, and I thank you. Quote Link to comment Share on other sites More sharing options...
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