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I'll Listen Better Next Time!


July 9th, 2014. A-day. The day after our anniversary. I was 49 years old, thin to average build, and a smoker, had been for about 35 years.

I had been having some pretty beastly headaches for the last three weeks. That morning was like every other, I woke up with a head ache. And like every other morning, I showered and got ready for the day.


I went to see my chiropractor, now most times this offers relief but not for the last two weeks..I should have listened to my body. I also think as a medical professional he dropped the ball too.

After my appointment I went shopping with my youngest daughter (Adeline 20). My head hurt more and more. Addy suggested that I eat and have some water, so I did. No relief so we came home.


By the time we got home I had started vomiting. Addy went to change her clothes and in the few minutes she was gone, I found the floor. She came back and asked if I had fallen, I said no, but I felt like I was having an aneurysm. Addy helped me up and took me to the couch along with a bucket since I was still barfy. I complained about being hot, so she went to my room and got me looser clothes.


Addy then called my husband to tell him there was something wrong...he was five minutes from home. He came in to talk to me and I made no sense so he had Addy call 911. We are right down the hill from the fire hall so it was only a five or ten minute wait.


The EMTs were sure I was drunk. When my girl lost it on them and told them I had not had a single drink or any drugs. They then decided I was dehydrated, again Addy said that was not the case. So they stood me up and made me walk out to the ambulance (which I can't believe!). My husband and daughter were to follow in our car.


Not three minutes in the ride the ambulance pulled over and the driver got out and into the back. My family was having a fit now. I think I had a seizure, because my clothes were cut off me.

I arrived at the first hospital where they put me in a trauma unit and put me in a coma. My husband and all three of my daughters(Melissa, 28 and Cynthia, 24) and my in-laws were there by now. the doctors spoke to Addy about our day, and by process of elimination decided to transport me to a second hospital with a leading team of neurologists.


When I arrived, they sent my family to the family room to wait. I think at one point there were over 20 of my family in the family room. They sent in a grief councilor to speak with my family before they spoke to a doctor, it scared the daylights out of them all. They were told that the chances of my pulling through were two - three percent. My bleed was huge and they would do their best.


I had one surgery that day, and a second one the next morning. I, being the world's best patient was extremely violent. I had fourteen IV's and things poked into me, arms and legs were a mess of hoses. I also had two large holes in my head, one of which was the EVD. I ripped all the hoses out of my head, arms, legs and chest. Then I ripped off my hospital gown and started to head-butt the nurses..screaming the entire time.


Can you picture it? I told my husband he was horrid and I was going to divorce him when I got out of there, I said the meanest things to my kids...breaks my heart. So they sedated me and restrained me. I don't remember doing any of this.


I was ten second Tom from 50 first dates. I would ask why I was there and before they were done explaining to me, I asked why they would do this to me, what have I done...and on and on it went for about three days.


There tried to move me from ICU to the neurology ward, but I took a turn for the worse and went right back down to ICU where I stayed for sixteen days. In those sixteen days, all I wanted was to go home and to see my dog.


I got to go home with restrictions. No driving, no alcohol, no getting my heart rate up for three months. Addy quit her job, and missed a semester of university to stay home with me. I turned 50 sixteen days before my three month check up...no wine on that day. I had cut my beautiful long auburn hair short and dyed it platinum blonde in honor of turning 50. The OR nurse didn't recognize me. She told me that I was the neurology wards miracle because no one in the ward thought I would make it. But I was cleared, I was now able to drive, fly and do things again.


I am approaching my first anniversary and I have to say I'm okay. I still have a lot of headaches, can't do yoga and have some deficits that I am trying to work around or with. I am a non smoker now, and will never put a smoke to lips ever again. My husband quit the day I came home, and my middle daughter quit too. I can't believe my grandkids had a grandma that stunk like that!!


I am angry, confused, guilty, a little sad and I am blessed. But I am here. Recovery takes a long time, and I don't like to sit still. I am trying to accept the new me. I am trying to get my drive back. I am going to do this, and I'm going to make it a trip to remember.

Next time I'm going to listen to my body better! :)

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Hi again Terry,


I had mine in 2009 and remember nothing apart from swearing at a few nurses whom I thought were hurting me !!  I got Ventriculitis then Sepsis. so it was a long haul for me and family.

Shunt fitted for hydrocephalus in 2010. 


You are a survivor  so we owe it to all of those who never made it to live life to the full and if possible be happy.


When I first came on here I was very down awaiting my death, awful I know but I thought next step is death.  I am so grateful to BTG and my Family as I saw people who had got over it and could laugh.


I now make every day happy apart from the odd ruck with Family.

So lets see a smile on your face and we can go out and LIVE again.


Be Well

Win xxxx song to come later xx

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Hi there Win!


Thank you for your support.  My husband told me the other day that he has never seen me laugh so much as I do now.  Addy said she has never seen me laugh myself to tears so many times...ever.  So maybe I just have some down days.


I do think that recovery is a long process and I get blue when it goes slower than I would like, or I find another thing that I have to pace myself at.  I am bull headed, and don't quit until I have to :)


Everyone here has had a tough row to hoe, but yes...we have all made it.  I will smile every time I think of your kind words!


Have an amazing day!  


P.S.  I can't wait for the song... but in the interim here is one for you.



"My head keeps spinning

I go to sleep and keep grinning

If this is just the beginning

My life is gonna be beautiful"

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Life is good and it shows you how loved we are by our family.


I will write some more if that's okay with you but my lovely daughter dishing up dinner and I cannot refuse it since op lol xx


My excuse for being, well how shall I put it Pleasantly plump, okay

truth time obese ha ha  I love chocs xx


Just keep smiling and think of times when you have laughed so much you have cried with laughter.  Mornings and before you go to sleep think happy thoughts xx It really helps xx


Good luck on recovery


Win xx xx

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Hi Terry,


Hope things are going well for you, and you have been okay in yourself.


I had the hump the other day and my hubby and Daughter bore the brunt ha ha but awoke full of beans today !!


You take it slow and I hope you are doing well xx


Take Care of you and Family  xx


WinB143 xx xx

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I was so scared after I knew what happened to me but it does get better,  and you are around people who have had the same experience as you have been through.


Type away and go from there,   do as Super said Introduce yourself to Us and you will get replies this site has helped me and my daughter  who had nowhere to turn when her Mum was in Hospital (Me) lol  xx


Good luck xx


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