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Winb143

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  • Content Count

    4,182
  • Joined

  • Last visited

  • Days Won

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Winb143 last won the day on March 30

Winb143 had the most liked content!

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About Winb143

  • Rank
    Senior Member
  • Birthday September 3

Profile Information

  • Gender
    Female
  • Location
    Deepest darkest Kent.
  • Interests
    Singing rude songs my Dad taught me when young.

Converted

  • Biography
    Old Hag...born in prehistoric era...youngest of 10 !!!!
  • Location
    Kent
  • Interests
    eating chocs and shopping.. singing with family
  • Occupation
    was secretary
  • SAH/Stroke Date
    SAH Aug 2009 then Shunt in Aug 2010

Recent Profile Visitors

2,646 profile views
  1. Winb143

    Feeling scared

    My surgeon told me not to stress and the only way I found not to was sing, but it stressed all around me out as I was sooo flat lol Keep thinking happy thoughts if possible, and try not to worry but I do not practise what I preach lol Be well and hope all goes well xxxxx
  2. Winb143

    Vertigo?

    I get giddy when I wake up, and I cannot jump out of bed as before I have to sit there and wait !! and only then do I get up and dash to loo !! So try sitting before you move I have noticed picking things up off floor = bad move and move slower but still see Doc xx Put your mind at ease. Hope all goes well xxxx You also Jess xxxx
  3. Hi Ruth, Never give in, I had an SAH4 and was told I'd never walk again and the PT's advised my hubby to put me in a home, which hubby said no to them !!! Pulls a face at said Physios lol I never did like them lol !! Cannot remember them to be honest I can walk 300 to 400 yards on a good day but on down days I do nothing !! Apart from have a sleep !! but the only physio they gave me was hitting a balloon none of this I remember as had hydrocephalus, had a shunt put in and awoke and hubby told me what happened as I never knew. I am so glad I awoke and am able to tell my baby who is 40 plus lol how much I love her in between rows. I found this site and realised there is a life after a bleed. Well my Daughter did and I saw women who could smile again and then another and this is when life doesn't stop after a bleed. Wishing you all the best and my answer to all ills is sing and smile as much as you can xxxx Good luck Win alias Winb143 xxxxx
  4. Hi Jimble, My epilepsy started at 14 puberty years I hoped against hope that they'd one day slow down. Just got my AED drugs to slow epilepsy down at the age of mid 55's and 9 years approx later I had a SAH and back they came with a vengeance !! I had another seizure, so told my Epilepsy Specialist about it and told him "It was like one I have never had before" He decided to put me on more Keppra which I couldn't take, so he tried me on another AED and been on it since Feb 2018 and not had a seizure since then and not even had the shakes ..Touch wood". Had another small bleed that caused the bad seizure. Good luck on getting drugs sorted out, Wishing you all the best with getting them sorted Regards WinB143 alas Win Remember I had them from 14 not when I had SAH, hopefully yours will go who can say xxxx
  5. Try and see Doc and tell him as it is more than likely nothing but to put your mind at rest tell Doc. Nothing like peace of mind when we are getting better xxx It is only 6 weeks but we need to be happy and not worry about things . Let us know how you get on xxx
  6. Hi Chris I was out for and age so all I know it was SAH4 an after they put shunt in I saw my daughter, Hubby looking sad and run to them and woke up. Still can only walk approx. 350 yards but considering was told "what makes you think you will walk again " was a red rag to a bull !! So I am standing longer walking more and it is a slow journey we are on. Good luck and keep on going xxxx
  7. Winb143

    My wife 2 year scan

    Best to keep an eye on it as recently I had a bad seizure, had them since 14 and now an old dear. This one was different from any like I've had it was a rough one, so went and saw my Specialist in epilepsy and he said "have a scan to be safe" So had a scan and it showed 2 small bleeds that had healed themselves and shut off by blood, the Doc said they were Chronic, I was at my wits end. Which isn't that far ha. Looked up chronic bleeds and it said acute is worse than chronic phew but I was so scared. and before that time I was telling everyone No Stress bad for us" I didn't practise what I preached and went into panic mode big time xx So keep wife happy and they will look at it again and keep an eye on it (No Stress nooo stress all you want) xx A few on here have ones that they keep an eye on and I'm one now lol Good luck to wife and keep her happy xxx
  8. Winb143

    Out of the Blue

    Hi Blueberry, See Doc and see if he knows what it can be and apart from keep drinking water I am no help but I hope they go. I worried about every pain I had and made myself a nervous wreck until my Daughter told me about this site and to know we are not alone is a great help xxxx Good luck and keep well xxxx
  9. Hi Bev, A man who worked with us, well his granddaughter was treated like you was they sent her home with headache relief pills She was only 14 and they never scanned her and she died of bleed on brain. Was so upsetting for All of them. Then Her Dad became a 1st responder. He was my 1st responder, My Daughter says I never made much sense when in cuckoo land but to be honest I never have xxxx ha Never worry and see Doc if worried about anything, I was so scared and my surgeon told me stress is bad for us. Keep going forward and when on a downer I find singing happy songs helps, shame my family do not agree lol Good Luck xxxx
  10. Winb143

    Angela

    Hello Angela, Welcome to BTG, my Daughter found this site and it has been brilliant for me, just to know there are others here who have been through the same and can laugh about it. My Family were so good and patient with me and my sisters sung to me, had no option but to listen lol shhh !! As I had hydrocephalus and remembered nothing until they put a shunt in to drain spinal fluid off brain. I had coils put in also, I was told "No Stress" so I sing and upset Hubs and Daughter. It takes a time to get over a bleed so slowly does it and I also repeat myself and have to ask hubby "Did I ask you this Al" short term memory is sooo bad but it is getting better. I do believe singing helps me, shame I am tone deaf ha ha xx Good luck on recovery and remember it is a long Journey we are on but we are Survivors xxxx Love Win xxxx
  11. Winb143

    Lorna

    Hi Lorna, Welcome to BTG, early days for you yet Lorna but we will get there slow but sure as we cannot rush our brain while it is healing. This site is good as we all know we aren't alone in our struggle to get back to where we were. I was so afraid, and my Daughter found this site it helped her and when I awoke it has helped me, we can talk about what happened to us and know that others understand as they have been through the same. So welcome and good luck to you xx my first outing was to a Café for coffee and cake and in those days I couldn't hold a spoon and hubby had to tip coffee into carboard cup as I was so weak.. Keep progressing some days 1 step forward and 2 back but it does get better. Look I can smile now and also turn on the tears when I want lol xxxxx Good luck on recovery and hope you get your mojo back, remember time heals xxxx Win xxxxx
  12. Hiya John, I was 9 years SAH/Shunt in 2018 as I had mine in 2009 is that correct? as maths have taken a nose dive I blame my shunt but it woke me up xxx What I put my Family through makes me feel guilty. Well a little lol, but now they are treating me as normal so they know I am getting there !! Darn my acting needs a brush up. Good to see names I remember, must be getting my short term memory back ha ha xx Well done John and keep in there XX
  13. Winb143

    Comeback - Bill

    Bill, I had a really funny Mum who told me all the silly sayings and she always put my life into perspective. When she was on a Downer and she tried to gas herself once, I learnt this when I was old enough to understand it. She sent us kids out with my older Sister and this is how she and Sister told it. MUM " I was on a downer and your Father had played me up so I sent Sylvia out with you kids got a pillow and got comfy in the gas oven and then the bleeping gas meter run out of money ".. Meanwhile my Sister took us to an Aunt who came to our house as she knew Mum was really down. Mum said to Aunt "you know me Eileen I always mess it up" So as Mum would say head up shoulders back and remember you are better than anyone else. And life is just a bowl of cherries but she got all the pips xx xx I am so glad she never done it as I wouldn't have had so many happy times with her xxxx Hope you will remain happy and after what went through we are entitled to have off days and just think we made it xxx Lots do not xxxxx Keep happy Bill xxxx And remember a Happy song a day keeps the blues away xxxx And a chat on BTG xxxx
  14. Winb143

    New Member: Rook

    That's the Spirit Rook, others may give up on Mum but while she has family she will get there. She needs you more than ever now, when others give up on us, our Family are a Godsend xxxx Keep her active as much as you can, perhaps getting out the pair of you for a coffee. I love going out ha ha !! We need our family more than ever, as when people give up on us it is so wrong !! Human spirit is there and Love of our Family helps so much. It must be hard work, when I first went out I couldn't sit up properly kept falling sideways so had a big chair and my hubby asked for paper cup for me. ha poor man!! but I have just got out of shower on my own and washed myself and so on. Good luck to you and Mum xxxxx See we can get better with a bit of help xxxx Never give up on Mum xxxxx All the best and laugh when you can xxx
  15. Winb143

    Ten Years Today

    Hi Colleen belated happy Anniversary xx and many more. My Daughter has panic attacks, she went to the Doc and she said you are in good health ie heart lungs etc are fine !! Daughter skipped out of surgery. She has the odd one or two when she puts herself under pressure. We talk about it when she needs to. They are not nice things and scary but try having water and mints for dry mouth days and remember "it to shall pass" vicious circle they are you panic and work self up then you feel you are losing control. Been there come out other side. I do not get them anymore apart from one in 9 years. (Due to worry about SAH) (Touch wood and whistle ) Keep Well xxxx
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