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Winb143

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  • Content Count

    4,378
  • Joined

  • Last visited

  • Days Won

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Winb143 last won the day on March 30 2018

Winb143 had the most liked content!

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About Winb143

  • Rank
    Senior Member
  • Birthday September 3

Profile Information

  • Gender
    Female
  • Location
    Deepest darkest Kent.
  • Interests
    Singing rude songs my Dad taught me when young.

Converted

  • Biography
    Old Hag...born in prehistoric era...youngest of 10 !!!!
  • Location
    Kent
  • Interests
    eating chocs and shopping.. singing with family
  • Occupation
    was secretary
  • SAH/Stroke Date
    SAH Aug 2009 then Shunt in Aug 2010

Recent Profile Visitors

2,795 profile views
  1. I gave up smoking when I awoke as never liked the way I smelt, but a glass of wine and a cig was so nice after a rotton day at work. But Hubby gave up drinking totally !! while I was in cuckooland in case he got a call from Hospital. I used to imagine myself sitting on low wall with dogs and having a glass of Vino and a cig and then I realised I needed to get healthy !! Better late than never lol !!! So went cold turkey as I'd put my family through enough. Plus not walking made it harder for me to be tempted. Tell Hubs try and give it up with out trying to preach to him. It worked for me as I felt guilty as to what I had put them through.. Since 2009 I have had a half a glass of fizzy wine and lemonade and orange juice combined it has put me off drink for life ..well nearly !! Good luck to you both and get him to see a consultant on such matters as I was told no smoking !!! Gained weight eating chocs instead !!!
  2. Hi Jean, I was bed bound for so long I had core problems, still do. I was told I'd never walk again. Started taking 2 steps now up to 500/600 yards then back aches, I went swimming but I could only swim under water as botty floated to top . Not being flippant but it was good to stand where the water squirts out and hit my back ..was heaven. Used to hang on and kick legs out which helped also. I saw a comment on somewhere a man said he had to stand for a while and my back ached reading it. My aim is to walk around a supermarket as I have to go in chair for long walks ..Good luck and never give up we will do it no matter what others say. I was really written off by my BI Team by a man saying to me "what makes you think you will walk again" Ever wanted to say rude words to them lol. But it helped as I wanted to prove him wrong and you must prove all doubters that the human spirit can do what it likes.. See you have helped me as I'm getting off my bum and a walk around the garden xxx got 2 seats if back goes xxxxx Good luck Jean and remember you can do it xxxxxxx
  3. Hi Sherry, When I first came on here I was a pain but I was so happy to see people who can now laugh about what happened to us . We cant let this beat us can we as we are Survivors xxxx Do what others have said eg. drink water, and brain message is brilliant reading !! Down days I come on here and tell them about my barometer head, and weird smells . part and parcel I guess of B.I. My way to work my way out of bad days is either go to bed or sing and a smile...It keeps me going but drives hubby potty xxXXxx Welcome to behind the gray and life goes on xxxx and so do I ha. Seriously welcome to BTG ((She who shortens things) Keep a smile at hand always for down days xxxxx All the best Win xxxxx
  4. The Barometer heads as I call them are not nice are they Alison, when weather is overcast I feel my neck is going into my shoulders lol and my head feels heavy. Lots on here get them, and the buzzing in ears. We all get these in one way or another ..well most do. Happy Sunday Also we have on forums a Green room where we can rant or let off steam, or feel worried and I always ask sensible questions like "is this natural" Ha ha !!
  5. Hi Alison, Happy Anni~versary xx Good you made a quick recovery, until I found this site I was so scared and I saw laughter and joking going on and it makes me feel so much better to know I am not the only one. That is how I first thought of it after waking up from cuckoo land. Once I had a shunt put in I awoke and my Daughter found this site that helped her also as she was worried for me. I am at the stage now where they don't let me get away with anything so I know I am better lol. Cannot walk very far but at least I can walk little ways before back goes xxxx Glad to hear from you as posts like yours help others who come on here xx
  6. Swishy alias Jean & FRM , I think you are doing great from when you first came on here so well done to you Jean xx. Can you imagine all of us going to see FRM to tell him our complaints, we would be his only patients, as others would walk out fed up with waiting. Also FRM you would get a bad head. From us all remembering what we was going to say at the same time. Got to smile as we must have said some funny things when in Cuckoo land xxxx Love to you all Salsa classes start at 12. FRM Win xxxx
  7. Hi FRM, I am so happy to have made it and I thank my Family for that as OT's said to say goodbye to the old me and they thought I'd never get better so they said to"Put her in a Home" so in a way glad I called them witches lol . None of this I remember but my brain told me not to trust them. Was injured brain then. Hubby wouldn't have any of it and my Sisters tell me how great Hubby and Daughter were. Sisters singing to me etc and when I had a shunt put in I woke up and sung to Nurse. I get on hubby's nerves so I know I am better ..Isn't it so good to have made it xx I do sometimes look up to sky and have a conversation with my Mum and sometimes Jesus as I saw a man in a long gown when out of it. My Daughter and I, we laugh at silly things I said. Thought one time I was in a café and I wanted to pay for it and we look back and giggle. We are Survivors FR and so pleased we made it xx This site helps loads as if I told anyone else what I told you they'd go" yeah yeah Win " Glad you are doing well and good to have happy people around us xxx and sing a song or 2 in key or out lol Take care and Adios mi amigo lol xxxx
  8. Hi Sarah, I had to have another Scan as I had a seizure now I've suffered with Epilepsy since 14 puberty and I had a fit last February which was like none before. I was like the girl who's head spins round xx I rang my Epilepsy Specialist up and he sent me for a scan and the letter I had back was so scary it said I have had another 2 but small chronic bleeds, but have healed themselves . I saw the word chronic and was so so scared. I am the one who always says no stress lol Well talk about stress I was in full flight panic mode so looked it up and it said Acute is worse than Chronic. I came back on here so pleased I only had a chronic bleed ha ha . Before that once again I thought I was at Deaths door. It is natural to panic as long as you don't go into full flight mode as I did xxxx Good luck and Stress free unlike me ha xxxxx
  9. Hi Paula, After I had my shunt put in and woke up and eventually could sit straight my Daughter told me about this site (To be honest at that stage I was a bit doom and gloom) I was down and came on here and I saw people who had a bleed/SAH etc. and they seemed to be able to laugh while I was planning my funeral. Then I realised there is a life after a bleed/SAH whatever we had. The more I chatted the more I smiled, so down went the funeral plans and I started living again, walking is not that good 400/600 yards then back aches. This site is a godsend and has helped me loads ..so good luck and remember we have been there and it doesn't sound silly as everyone has been through something similar on here xxxx Keep well and sing happy songs xxxx
  10. Thing that helped me was the Brain talking to me.. " A Letter From Your Brain - By Stephanie St. Claire ©1996" It made sense to keep calm and it sort of explains what we've been through it is under "Inspiration" I think xxx (short term lol) https://web.behindthegray.net/articles.html/inspiration/a-letter-from-your-brain-by-stephanie-st-claire-©1996-r167/ It made me calmer to be with people who had their B.I. and the whole site helped me as I found people who could laugh again, so once again to Mods and Karen and Family a Big Thank You xxxx We are not alone xxxx
  11. Hi Nikki, Now always listen to your brain xx and body also if tired rest up. Good luck for the future and keep a smile at hand for those down Days. This site has helped no end. Hope to hear from you in Forums /Green room one day. Keep bright and cheery it helped me xxxxx Of course all what the others have already put xxxx
  12. Mandy, You have been through it and I do not know if anyone on here has heard of it. Perhaps if they have one will get back to you ..Good luck on both recovery's sounds like you are a fighter. Keep in there and never give up All The Best Win xxxx
  13. Was good Daffs, Perhaps that is why I couldn't listen to my Sister for long as she only told me tales of woes and her troubles. My brain couldn't take it. I used to want her to hush up as it gave me bad head lol Poor Sis. When recovering I was selfish and didn't want to hear about her Sons arguing. Even the man talking I wanted to say oh come on spit it out (I think it is me) ha ha. Guess I have got self centred since brain malfunction lol Thanks for that Daffs methinks I should look at self rather than blame others (I wont) xxxx
  14. Sophie, It isn't something that we can get over quickly but we are survivors, that in itself is good. But we are all here and to know we are not alone in this helps me lol selfish !!! My Daughter found this site and for me it was a godsend xxx We can share worries and tales of woe and people actually understand as they have been through it xx so wishing You Good luck Sing and think happy thoughts is my answer to all ills lol xxxx I was coiled and had to have a shunt for hydrocephalus as I was in cuckoo land. Be well and don't let things get to you laughter is best medicine xxxx
  15. Jess, Sorry to hear about Daughter, I have had a shunt in since 2009 permanent one. (But I am an oldy) Keep searching or ask Docs what is best for your Daughter xx They can advise you... Good luck to Daughter xxxx
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