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Winb143

Members
  • Content Count

    4,721
  • Joined

  • Last visited

  • Days Won

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Winb143 last won the day on March 30 2018

Winb143 had the most liked content!

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About Winb143

  • Rank
    Senior Member
  • Birthday September 3

Profile Information

  • Gender
    Female
  • Location
    Deepest darkest Kent.
  • Interests
    Singing rude songs my Dad taught me when young.

Converted

  • Biography
    Old Hag...born in prehistoric era...youngest of 10 !!!!
  • Location
    Kent
  • Interests
    eating chocs and shopping.. singing with family
  • Occupation
    was secretary
  • SAH/Stroke Date
    SAH Aug 2009 then Shunt in Aug 2010

Recent Profile Visitors

3,106 profile views
  1. Hi Ami, Like Daffs I also had Hydrocephalus, but I was in cuckooland as it was keeping me there. I remember nothing apart from cooking a curry then shouting "help me" as I passed out. I remember nothing until shunt was put in and I slept most of the time. Went from Kings College to local hospital, were my Family were told I'd never be the same and to put me in a home. Cheek !! Hubby took me home and a year on from bleed I had a shunt put in and it took me a while to sit up alone or even hold myself up. All this I am told by my wonderful hubby and daughter. Hubby was going to say no to op but it got me better and now we argue and moan like we did before the bleed. So I know I am better ha !! Keep a watch on it and forgetfulness ie short term memory loss is part of the beast. But if worried please see a Doc as nothing like peace of mind ... Good luck My Bleed was 2009 and shunt was fitted in 2010 Still trying to walk more. !!! Be Well Ami xxxxx
  2. Still I stink, was told it was due to my SAH/Bleed , Comfort stinks clean bedding smells my hair stinks and water is foul. Love a coffee from a shop and can eat out okay love food, I feel like I have had a shower in dirty stale water, Now use babies shampoo and very mild kids detergents. Still get laughed at by hubby who says I have an ism as in phantosmia. I go "can you smell that Al," he goes "smell what your ism?" He is a kind soul but if you hear of woman hitting hubby over head with her shoe..It is me ha ha ..It is a problem though arghhhh!! Can always eat well though !! Just smells have changed perfume stinks etc etc been demoted to cheap perfume or body sprays light ones xxxx
  3. Sarah I once said to a Hospital Doctor "It is my Body and I want to know what theses pills are doing to me" He told me and I broke down as they caused malformed babies....hence only the one Daughter as I wasn't on them then !! But this is about you and you have a right to know it, is your head, wish you all the luck in the world xxxxxx
  4. Hi Ojib, Oops shortened your name put it down to my SAH !! Ojibwe I never had AVM but SAH followed by Ventriculitis UTI and then Sepsis, Good job I was asleep while being pumped with whatever got rid of it. My sisters sang to me while out of it and Husband and Daughter took it in shifts to make sure I was okay. Was told by OT's who I played up to put me in a home as I'll never be the same ever again. Hubby told them we will take her home then. When I got home Doctor said I had Hydrocephalus had shunt put in for that and woke up singing to Nurse. I swear by a smile and singing to help us remember and happiness. None of it I remember until shunt was in ..So keep talking to Mum and keep away people who only tell you their problems she needs loving and I pray she gets better Obibwe and get some rest also xxxxx Keep talking to her xxxx happy things xxxx Get well soon Ojibwe's Mum xxxxx
  5. Hi Jenni this site helps as we know we aren't the only ones, it is early days and the Docs say do not lift heavy things but when you have children you have to. Real world and Hospital world clashes !! Our brain has gone through a lot and it needs a rest. Somewhere on here under Inspiration is "A Letter from your Brain" and it tells us what our Brain has been through, I was scared when I eventually woke up and thought no "uh oh Win and doom and gloom " My daughter found this site and it helped her and it has helped me. As she was the one awaiting for me to wake up !! I saw people talking about life and everyday things and I got my smile back... As this is a place people have been through similar things to you and we can understand how scary and sometimes the same has happened to us. Good luck and Welcome to BTG (My abbreviation of Behind the grey) Keep chin up and remember we are here when you want to vent or just put it in writing whats worrying you xxxxx Or join in Keiths quizzes in Forums Green room xxxx "A Letter From Your Brain - By Stephanie St. Claire ©1996" is good to read.
  6. Feel for you All Kathy, Not much more I can put. I do get weird heads when stormy weather is about but always see Doc as others have said xx Here is hoping Dad makes a miraculous recovery xXx God Bless you All xx
  7. Hi Lori, My Daughter found this site while I was in hospital when I knew what had happened I was pleased I had got through it and realised what a smashing Family I had. Will take us some time to get better still working on back stopping me from walking. I came on here and people laughed and that in itself helps as we are not alone and any aches and pains I'd come on here and talk my worries over and I left laughing xxxx My Answer is singing and smiling a lot ..I mean sometimes I get the weeps, but I am an old dear and was a younger old dear before my bleed. We are here when you need to give vent ~ I do that a lot so Welcome to BTG and smile xxx or I'll sing and drive you potty ha just kidding xxxx Good luck Win xxxxx
  8. Hi Andrew I was at Kings College and was in cuckoo land for a year after a time I was sent to Maidstone where they told me/Family I wont improve and to say goodbye to who I once was. Put me in a home (Cannot use rude words on here but would have). I had hydrocephalus which kept me in unresponsive condition. Couldn't think straight and it was all a dream, so my hubby told Male Nurse at Kings and I saw original Surgeon and he suggested a shunt be put in ..I woke up and sang to nurse and was home in 3 days. My dogs were pleased to see me so if worried was you given a Nurses No. you could ring? If so ring them or get hold of your surgeon again ..Good luck xxxx
  9. I am walking after told to be put in home as I'll never be same phew thanks to Family xxxx Here to prove them wrong ..Human spirit steps in and tells us we can ..800 yards walking but aim is to walk without back going on me a whole weeks shopping xxxx Well done Mark and keep on proving them wrong xxxx Welcome to BTG my short name for this site xxxx A godsend when you have a down day and just to know we are not alone in this xxxx Welcome and keep on keeping on xxxxx
  10. All what others have put and keep happy xxxx I wish you all happiness and everything that life can bring you xxxx
  11. Louise when I first come on here I was "who typed first? ahh GG ahh but who was the one I forgot all of you" Happy 20 years and many more. This is a life saver this site as I always say. Saw so many joking and hold on but they are laughing and happy. I'll have some more of this ...Been a real pleasure to see you all doing well, and me I couldn't walk at all but I remember doing my 100 yards walk or 5 steps as it was in early days now 800 to a thousand yards ... You all said well done and Keith in those days had his chefs cartoon pic. Well done Louise hears to next 20 years xxxx and many more you have given me hope as always xxxx All of you are my secret pals who I tell my Family about they go yeah yeah Win lol xxxx Love you All Especially Louise today xxxx Go get em xxxx You have done really well xxxx Loved the last 2 lines especially Louise xxxx Thanks and all you Mods and Karen (goes without saying ) XXXX Song time ha ha j/k
  12. Tell them that you are a bag of nerves over this and stress isn't good for us Sarah, hope you do get things sorted as it is your head and you want the right diagnosis given. Good luck XXXX Scary for you xxxxxx Agrees with Sami and Tina xxxx Grrr puting you through this xxx
  13. Phew Sarah such a relief for you, now when you can drive I'll have a chocolate cake please xxxxx Young Lady
  14. Hi Carolyn, I remember first coming on here, I used to ask is it normal to have this and that. I was so scared !! Then I saw how many had bleeds etc and it gave me hope as I was sure I was dying, used to sing songs for funeral and any little pain scared me witless. If in doubt always see Doc...it will take stress away knowing it is the norm. I awoke after shunt was fitted, until then I was in cuckooland They are a nice lot on here and a trouble shared is a trouble halved, ..Welcome to BTG (Behind the grey) and we are survivors always remember that. Hope to see you in Green room forum when you are up to it. Headaches come and go !! but get less. All the best to you and see Doc to just get the stress and worry out the way xxx All the best Bossy Win ha ha xxxx ....Oh and on here under Inspiration is "A letter from your Brain" it tells you what happened to our brains. !! Make sure you drink water as I was told that also, as said above by Skippy xxxx
  15. I also lost my Dream world and then I had one and I realised I didn't miss them that much. I used to have vivid dreams and woke up hubs telling him off ..realising I had dreamt it all. Poor man !! Never mind we more than likely dreamt but our short term memory wouldn't let us remember and our brain needed to shut them out!! It is a funny old world and all what we go through, But so glad we are all survivors though xxxx Life is good Love to All
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