Louise

Hi there

Sami's you're right about the games, when I was in the re-hab hospital they got me doing word search puzzels they are great for the brain, I had to do the kids ones though.

Its just a case of finding a good way for YOU to remember things its what suits YOU wither its yellow post-its or whatever.

Mind you this comes from the person who has just forgot the milk at Asda why because it wasnt on my list.

bye just now

Louise.xx

Supermarket car park - that's what I meant........

da silly me

Hi Jackie

Nice to hear from you,

Ah the world of list's I have lots of lists going on sometimes especially at this time of the year, I find it quite helpful.

I know its easy to say try not to worry but really do try when the mind starts to race its hard to stop it - I know.

I dont drive but your consultant wouldn't say you could drive if he didnt think you were able, maybe get someone to take you somewhere quite & have a go see how you feel.

Bye just now, hope to hear again from you soon

Louise.x

Brilliant news Keith

It's a great feeling isn't it.

Take care

Louise

Hi Therese

Nice to hear from you, 'glued' with onyx' isn't amazing what they do.

My coils are sealed with Platiumn!!

You rest up & take care of yourself

sending you relaxing wishes

Louise.xx

Hi there

Welcome to this little group, I found this has been very good therapy for me since I found it by accident too, I havent been to an actual support group just this - very supportive

Hope to hear from you soon.

Louise

Hi there

Yes we are all thinking of you.

But it will help you through a crapy time it was good that you called the doc & had a chat I know what you mean about meds leaving their mark but its not all like that Karen honistly

Sending you a big hug too mines will take ages to get their on dial up comming from Scotland ha!ha!

Louise.xx

Hi Cassidy

Yes a very warm welcome hope to hear from you soon

Take care

Louise.xx

Hi

Just wanted to say on Wednesday at least you wont have it at the back of your mind for Jan through the festive season one way to look at it perhaps!!!

Take care

Louise.x

Hi

Couldn't agree with Sami more no matter how many ribbon & bows you put around it it's a ' totally time' but we all have one thing in common apart from the obvious we have climbed the highest mountain & survived anything else has to be easy

xx

Hi Karen

No its not just you that worried about having a seizure once you came off the meds everyone must have thought I was nuts you not alone.

Kind of like you I dont want to give the impression of all gloom & doom I find I'm worse in the winter the long cold dark months I'm far better spring & summer people say its all in the mind but I honistly think I am better when the weathers good.

Catch you later

Louise.x

Hi Karen

I don’t think that going on anti-deps for a little while is all that wrong ok so maybe not everyone agrees with me there!!

Your GP will talk it through with you which will be as good as too, & these days you don’t get hooked on them like once was the case, it will give you a little relief too.

On saying that, No it doesn’t mean that I don’t feel like you do I actually did, but hey you have to think about number one & if it helps then give it a go.

I know exactly what you mean about the physical being a reminder as I said to someone this is with me 24/7 I get no ‘time off’, I’ve had to learn to live with it not fight against it, however I also like you I don’t want pity or people to feel sorry for me.

I was on Sodium Valporate when I got out of hospital for seizures which was kind of like an anti-depres which got me through the first 2 years when I came off them the fear of would I have a seizure engulfed me I didn’t remember what had happened when I’d had one I was for ever watching the clock to see if I’d missed any time especially when I was on my own (which was often) when I think now it sounds so silly I know how it can run your life I was lucky I saw a physiologist at the re-hab hospital but I was never lucky enough to be able to speak to other people that had went through similar to me to understand…. For me its really only been in the last 4 years that things have improved physically & that’s due to the damage the SAH caused ME that wont be the case with everyone because already you’ve seen that we all have different things going on.

Well I’ll stop there beginning to ramble (as norm) I hope that this all makes sense when I read your post Karen I could so remember the feelings take care…..

Louise.xxx

Hi Sami

Yes its a nice feeling that when your not anxious and your questions have been answered I felt like that on one of my visits not my first though because I still didnt understand it all :?

Hey I dont know the size of mine the location or anything I asked Ronnie last nigh he didnt know he said he was just greatful I survived it.

Well that's my break over I'm filling up the wardrobe still didnt know I had as many handbags I never use them now but you never know one day!!!!

Take care

Louise.xx

Hi Sami

Yeh great news you must be well pleased

I'd remembered about that sensation in the head which is how I thought it was healing when you mentioned it before.

I am so pleased for you Sami, isn't it funny about the Ginkgo thing them all saying different things :?

Well bye just now take care

Louisexxx

Hi Sami

I had remembered that it was today nope not my memory getting better my Auntie gets her cataracts done today that's why.

Let's know how you get on.

Speak soon bye just now

Louise.x

Hi Sami

People are like that with my tube you can run your finger down the side of my head & feel the bumps but its under the skull a lot of people wont touch when I talk about it.

Good idea taking Siobhan with you there will no doubt be scans of your brain have to say the first couple of visits I had I wasnt really interested in it but Ronnie was it got a better idea of it all I think.

Take care

Louise.x

Hi Sami

I dont feel anything except the tube that's in my brain, I never felt anything going pop at the time at least I don't remember anything!!!

I have coils sealed with platinum for a long while I was sure they were moving around but my GP & then my consultand when I saw him both put my mind at ease saying that things were just settling down & they were right because after a time I didnt feel anything.

Take care

Louise.xx

Me again

I can recall things from the past in vivid colour like a TV in the begining it was so weird Ronnie & his pal John were there & although I was looking at them something was said that jolted me into the past & when I saw them I saw them as they were when I meet them in their bikers leather jackets it was very strange it was a kind of total re-call.

Thankfully I dont do that now but my dreams can still be like that.

When I was first home I was alway asking why? how come? just like a child really that too was weird it's the biggest computer going 'the brain'

xx

Its horrible when you wake up like that I used to do that often, I also had a ritchal when I woke I used to ask myself my name & address I think that was from being in hospital when they asked me all the time dont do it as often but ocassionally I still do - on bad days.

Physio can be tireing but if it helps you.

I do IT at college before that I only knew how to switch the thing on how things have changed for me in 7 years (well very nearly)

Take care & relax today

Louise.xxx

Hi Karen

The reason I put that in yesterday was to say that for ME even now I still have bad day's dosn't mean that everyone will have that after this amount of time its how I have been damaged as Ronnie put's it but I have come on so far since those days I do see the difference in myself.

And today is another day a better nights sleep, because we put the blow up bed on top of the sofa bed.

And the painter & decorator here he's sanding down the walls a the mo.

And I got an email from my cousin that was here from Aussie, her cousin in Aberdeen is getting married end of Aug next year so there's a big possibility they are comming over for it yippee so there's alway tomorrow.

You must have been tareing your hair out on Sunday with the site Karen? but it got sorted out?

all for now

Louise.xx

Hi Sami

Thank-you so much for that

It's funny just when I think I can guess how I'm going to be wham its different just the damage that the hameorrhage caused me that's all.

Glad to see that you had a great weekend its nice that gives you such a boost I find.

Take it easy

Louise.xx

Hi there

Arent you on a Bettablocker Karen, there's a lot of things I cant take because Im on that & other BP meds.

Hope your all ok today?

Ps Karen I have put something on the form but didnt know if I've put it in the right place, its not me having a moan its just saying that even I have it rough, maybe I come across as being over it I'm not. Hope its ok dont want anybody put off.

Louise.x

It’s not always easy, even after 6 years, the type of Brain Haemorrhage that I had makes this so.

At the moment we are about to get our bedroom decorated ‘goodie’ well yes & no, just now there are 2 single wardrobes in the hall, & the parts of the larger one in between them the kitchen has a headboard from the bed a mattress, & the base of the wardrobe in the corner there’s all the things from the wardrobes, the livingroom has the bedside tables & an auto-man.

So what’s my problem after all it cant get done without all this, well the brain has a problem with all the things around its like being closed in, in some ways, it’s having trouble deciphering it all its strange because part of me knows that its silly, so stupid of me to feel like this & once its done I’ll be ok again but it’s the bit in between.

I guess last night didn’t help we slept (or rather didn’t) in the spare room on the sofa bed it’s so hard it was awful so there wasn’t much sleep last night.

The painter was to start this morning & can’t now till tomorrow though he asked if he could start next Monday yikes….but maybe just as well the way I’m feeling.

I get to another mile stone on Wednesday it’ll be 7 years on the 1st but at the moment I feel as though I’ve gone back about 4 years, I just thought I’d put this in to say its not always plain sailing for me but I do know that it will get better I just have to wait…. Thanks for listening.

Bye just now

Louise.xx

You guys cheer an otherwise very dull day thanks for that.

I'm off now to put my feet up all the house up heaval is wearing me down a bit its just how I am that's all.

Have a brilliant weekend

Louise.xxx

Aw! thanks for that Sami I know I cut to the chase because I forget otherwise.

Yep being on here nattering has really done me the power of good even after all this time I'm still learning what I can & cant do even now.

Karen you have made it possible for me to be able to do it thank-you so much for this site

take care