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Vermont Girl

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Everything posted by Vermont Girl

  1. Hi - I had a NASAH in May 2017. A few weeks ago I had a 2nd episode of AFib which has not resolved in spite of hospital treatment for a week. After consultation with cardiology and neurology it was decided I should begin a blood thinner. After one month of treatment I can have a cardioversion. The cardiologist I s concerned re bleeding risk but says this is the only option as there are risks of a clotting stroke if I stay in AFibb. Anyone have a similar experience?
  2. Thanks all - just what I needed to hear. SAH is an event; recovery is a process! so glad you are all here. Vermont Girl
  3. Macca, you are a wise soul. Thank you so much. Everything you wrote hits the mark. Im seeing the “gift” of this current sinus infection and days at home it’s forced me to slow down, stop - and reappraise the way I’m doing my life. I need to find a way to do that regularly, without having to be sick to make it happen. It’s all about balance, I think. And I’ve got a lot to work on there, I guess. I do very little of taking care of things at home - my husband who is mostly retired, takes care of everything. Paradoxically, it might be better, for my own work/life balance
  4. Hi all im 9 months out from NASAH. Very lucky - no residual effects. - discharged from neurology Took 4months off from my academic dean position in research university. Like the job very much and am perceived as very competent I’m exhausted. Have gotten two sinus/respiratory infections that really knock me out - takes multiple doctor visits and meds to resolve, but sometimes takes a month. Have gained 15 pounds in 5 months. Very tired in the evenings, many deadlines for new programs and faculty development. Little time for my husband and grown family.
  5. I am seven months out from NASAH. Currently have a bacterial sinus infection. On antibiotics but I’ve been hit hard and illness is taking longer than usual to resolve. I’ve stayed home for 5 days, laying low, lots of water and rest. Still feeling pretty sick. Anybody else find it takes longer to get over an illness? I know I’ve been pushing too hard at work this semester. Thanks!
  6. Hi Taka. I had a NASAH about 5 months ago and I checked my BP incessantly and read every medical journal article I could find. What helped much more was rest, water, walks and patience. This forum has been terrific and reassuring. Best wishes to you!
  7. Hi Kathie i know just what you mean. I'm 4 months out with similar event and struggle. Demanding high stress job and discouraged. People on this site have been so helpful. Take the best care of yourself that you can. Vermont girl
  8. So, I had my nasah in May. Returned to work 1/2 time 2 weeks ago. Today I started back full time. Very tired. But, I kept the words of many of you with me. Drank water. Took a walk. Closed my office door and did a 20 minute relaxation cd. Looked at my calendar to see what I could it back on. Made plans to do some work from home. So glad to know you are all here. Not sure some of my health care providers "get it". But you all do. Thanks so much. Vermont girl.
  9. Thanks, Mandie. Having a much better week. Waiting on results from follow up MRI. Saw GP, told her I'm not going to take the inflammatory. Not sure she knows enough about subarachnoid hemorrhage. Communication from neurologist to her has not been ideal. Frustrating to have to educate health care provider. At any rate, doing yoga, meditation, time at home very helpful.
  10. Hi Clare - it was for my headache but I assume it was done in error. Will ask her tomorrow - will also check with neurologist. Yes, , I think I need to slow down my expectations of myself. Will also try consultation with neuropsychologist, I think. Employers are being helpful - will meet with them again following my next neuro appointment. I think I'll have the flexibility I need - if I ask for help which is not the easiest thing for me to do. Thank you.
  11. So, I am 10 weeks out and having meltdowns when frustrated. Then my blood pressure spikes. Using all my tools - yoga, meditation, walking, talking, distraction - but it's got a hold on me. Worries about return to work, my laptop was assigned to someone else but I thought it was missing and fretted over that for days. Before this, I was described by everyone as inordinately calm, focused- that's not what I'm seeing now. Hard to keep from lashing out at frustrations. Last week my GP gave me a med that is clearly contraindicated for people with bleeding, strok
  12. Thank you - perfect timing. I needed this today! As I get better, I keep thinking I can do more. I pay for it the next day - good reminder.
  13. Thanks, Daffodil. I am coming to appreciate, and heed, the messages my brain/body are sending me. Moving from "I need to get back to my life" to "this is my life". Yoga, swimming, resting, meditation are all helping, I think. Next challenge will be bringing those habits and pace along when I return to work in another month. Thanks for the "bruised brain" image - it's useful.
  14. Thanks, Casey. I've wondered about using coffee, I'll try it. I think the cognitive shift to "pain is your friend" may also be useful. In fact, this week I have been pushing too hard! I'm off to restorative yoga this morning - am hopeful that will help with many things.
  15. Thanks, Megan, that's very helpful to know. That's exactly what I want - to "have some on hand" for those days it's more than a dull ache and interferes with sleep and functioning. Having trouble getting a response from the doctors office - frustrating!
  16. Thanks so much Win. So good to know my experiences are common.waiting for call back from doctor now. Have any of you had good luck with body massages following NASUB? thanks
  17. Hi all, I'm 8 weeks out from my non aneurysm sub. Over the last few days have been trying to manage considerable blood pressure spikes that occur in response to stress . Went to emergency room and had another CT scan to rule out another bleed. All ok. Saw cardiologist yesterday and got an additional BP med. seems to be working. In the meantime the severity of my daily headaches has increased, non prescription drugs not helping and I can't get a good night sleep because I am awakened by the pain. Bad, but nothing like the hemorrhage thunderclap. I note weather has been fluctuating a lo
  18. Thanks all. It seems from the research that it's a matter of risk/benefit. Hope to have GP, cardiologist, and neurologist confer as to best plan in my case.
  19. Hi all I am having conversations with my doctors about taking Lipitor (statin drug). My GP and cardiologist recommends it (I also had atrial fibrillation the week after my SAH) and had been taking Lipitor for years. I had my SAH 6 weeks ago. My neurologist does not want me to take the Lipitor as there is some research suggesting that for people with SAH statins can increase the risk of another bleed. Are any of you taking a statin or run into this controversy? thanks - it's confusing to know what to do.
  20. Hi - I'm on about the same timeline as you are. 6 weeks post - no known cause. I understand from this great site that my continuing symptoms - headache, fatigue, strange head sensations are all quite typical. For the time being I'm avoiding anything that is strenuous as I'm still working on stabilizing my blood pressure. I find it disconcerting to not know exactly why this occurred. However, I am trying to ease back with moderate walks and swimming. I'm sure that others who have been recovering longer will have more perspective on this - and be sure to check with your health care providers.
  21. So, I'm 5 weeks out from idiopathic SAH. Was pretty lucky. Am fatigued, with headaches (not terrible) and sometimes I feel like my brain hurts if I think too much. Ive got another 9 weeks before I return to work. I feel like I should make good use of my time and schedule swimming, yoga classes, walks, etc. sometimes I just don't feel like it. I'm afraid when I go get back to work I'll feel like I "wasted this medical leave by not taking advantage of this time. Any suggestions? Am I being lazy?
  22. Hi My hemorrhage was bilateral frontal lobe about 5weeks ago. i am in good shape, all things considered. My post event headache seems to be near that location and on forehead. Does anyone know if bleed location is related to post SAH headaches and head sensations? Thanks!
  23. Dear Macca thank you so much for your very clear and wise advice. Your idea about sorting tasks through a column system is one I find both appealing and doable - not too overwhelming. I am am so impressed by this forum and the people on it. Just what I need -clear recommendations, validation of my experience, and kind people. Thank you all.
  24. Thanks, my employer has been very supportive and my physicians are part of the organization. I think I can expect good understanding particularly since they know it is not my style to lay low. They are being very protective of my time, energy and privacy. I also have a very strong administrative team who are keeping things going in my absence. I feel very fortunate. I am the one I need to be patient! I don't like it when my brain gets tired, which is the only way I know to describe it. Thank you.
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