Swishy

Hi alan,

Your words about it being a lot to take in...wow...those are true words.  It takes time, be gentle with yourself.  I second what Sami said about being able to look for support so fast.  I was all in my own head and it took me a while to begin reaching out. 

I have found this site to be very helpful to me.  Just talking to people who understand what it is all about makes such a difference.

xx

Jean

Hi Alan,

So happy you found BTG...Took me a while, so happy I did.  My event happened 5 years ago come May.  This is a wonderful group of people all sharing experiences and helping each other as we recover and continue to live our lives.

xx

Jean

Hi Tanja,

I too had terrible pain at the bottom of my spine and was told it was residual blood ...  It was very painful, I couldn't rest my bottom on the bed without pain. The neuro team at the hospital told me about it and told me it would happen but it didn't happen until I was in rehab and they seemed a bit skeptical about it.  I was glad my neuro team had prepared me and it came and went in a week or so as they said.

I hope this pain passes for him soon. This is all a lot for him and you to go through.  I know it is scary and things don't seem to get better as quickly as we would like.  

Jean

Congratulations Super Mario .. Thank you for your supportive help on BTG... My best wishes for continuing to pursue your bucket list .

xx

Jean

Hi Sara,

Reading this has reminded me (yet again) to go easy on myself. 
 

This is a journey Sara, a mending brain is unlike anything else, I believe. 

I blame a lot of my fatigue on my age.  I have come to realize during my post SAH journey (4 and half years) that I just have to pace everything out to make sure I am not bumping into walls at the end of the day.

  It has certainly gotten a bit easier for me to do and my family now hears me when I say I need to stop for a bit or I need to sit for a while...When I need it I try (not always perfect) to make it happen for myself.  

Sounds like you are making good progress Sara and I am glad you found BTG, so many wonderful people here willing to share.  You regained your ability to walk, speak, write, drive return to work...your brain is awesome  

Thoughts are with you,

Jean

I agree with those who wrote before me.  Congratulations on your 1st year and I send you wishes for many more.    

xx

Jean

Louise, congratulation on 22 years..as I read what you wrote I am so inspired ... you say it gave you strength you didn't know you had, such wisdom in your words.  I came here 4 and a half years ago, searching for someone, someplace that I could share what happened to me with.  I had no idea I was going to meet people such as you who not only shared but cared and don't judge.  Stay well and thank you

xx

Jean

Hello and welcome to BTG,

I too had hearing loss in one ear, it did clear up with time  (perhaps a few months) and I feel like my hearing is fine now but i am left with tinnitis.   I also had the spinal pain, it is so uncomfortable....I was told both were due to blood disipating , truth I never have asked about the tinnitis, it doesn't bother me too much...I did not experience numbness but everyone is different for sure with these bleeds.

This is a great site, first off because you realize you are not alone and talking to others who have similar experiences is so helpful.

Be patient and kind to yourself, this is different from other illness.  Our brains heal slowly.  

take care

Jean

Hi Pat,

Such a wonderful post you wrote.  So happy for your 5th anniversary, I think it is a hallmark one as well   Your post speaks to the joy of life I think.  Change and opportunities make our lives rich and full...Sending you most sincere Congrats and wishes to continue with a life that is being well lived

xx

Jean

Jess, wonderful words of encouragement...Love that you wrote this, I lived with the worry but gratefully was able to get it under control..  "Keep moving forward" love these words ...thank you for sharing and thank you for your inspiration.

xx

Jean

Dear Claudette,

As Kathleen wrote above...I care...you have been through so much... I understand your worry and I also understand wanting to protect your loved ones.  They will be a comfort to you as you navigate all this.  Sending hugs and you are in my thoughts and prayers.

xx

Jean

Many thoughts and prayers are with you today Ann.  Hope each day finds you feeling better.

xx

Jean

Thanks so much Tina...Always good to get a good report.  

xx

Jean

Welcome back to BTG...so many wonderful people here who are very generous with kindness and support.

Jean

YES YAY...testing all clear

xx Jean

Hi Tina,

Thanks so much for the good wishes...I didn't wake up feeling great, had a tough night but after about the 24 hour mark I began to feel more like myself.  My balance feels back to normal .  I have never had this happen to me before so I was not expecting it. 

This is a surveillance test I have every 5 years or so because of a family history of colon cancer.  I have never had any concern about having it.  I guess everything changes.

again thanks Tina.

xx

Jean

Hi All,

I had my SAH 4 years ago but for the first time since had a medical procedure that included being put to sleep with propafol (spelling may be wrong)...I tolerated it all well woke up quickly but have been wobbly (more than my usual swishy (feel like I am walking on a boat) self.  It was noticed by the medical staff and my usual swish is not.

As I said my first time having any type of anesthesia since my event...Is it typical to take a bit of time to get back to my old self.  This was early this morning it is evening now so hoping to wake up tomorrow good as new and wiser the next time.

thanks

Jean

Hello and welcome to BTG...so many wonderful helpful people here.  I am glad you found us...You sound like you are making good recovery, be very gentle and kind to yourself.  The brain takes time to heal.  

Being with your mom is wonderful  we are all here supporting each other as we have all recovered .... I too am from the east coast of the USA but here we are with our support group from across the pond...Love them.

xx

Jean

Dawny I am so happy your surgery is over and you are recovering.  It is very interesting and amazing what brilliant surgeons are able to do.  Be well...

xx

Jean

Hi Sue,

I too welcome you.  So very sorry to read about your accident.  This is such a wonderful supportive group.

It is so difficult waiting for our bodies to recover.  As Tina said "be kind to yourself"...

I wish you well as you recover and also well wishes to your husband, you both have through a lot.

Jean

Puppies can do that  what a wonderful way to stay busy.

Congratulations on your 9th Anniversary.  I am happy you have found ways leading you to a happier stress free life.  I have found mindfulness to be helpful also.  All my best as you continue your journey.

Be well,

Jean

Hi Ann

You have been through so much and yet you find strength for your boys❤️  I send you sincere wishes for continued strength waiting for your September date ...I think you will indeed rock that clipping scar xoxo

Jean

It is a wonderful feeling to have finally have answers to something that is bothering you.  You are young and of course want to be your best.  I hope you find yourself feeling better soon..

Jean

I am so happy reading you have found a Dr. who is helping you understand what happened to you.  A good patient Dr. can make all the difference.  I agree with Mario "not knowing is dreadful"...